Whipple procedure anyone?

Hi, I've just joined and was wondering if anyone knows anything about this type of surgery? My husband has just had it to deal with a malignant duodenal ulcer, which we know is a rare type of cancer but its all very new to us and everything has happened so fast. Any help or advice regarding enzyme therapy tablets (Creon) in particular - and good food choices (I cook everything and anything from scratch) would be very much appreciated. Thank you.

Parents
  • My husband had whipple op for duodenal cancer last December and recovered well. Taking creon and omeprazole. Unfortunately the cancer reoccurred in his remaining pancreas and is now inoperable. Having chemo now. If you are offered adjuvant chemo I would have it. My husband was told he didn't need it. Can't help wondering if he had started chemo before they found it had returned it might have mopped up the cancer cells before they increased 

Reply
  • My husband had whipple op for duodenal cancer last December and recovered well. Taking creon and omeprazole. Unfortunately the cancer reoccurred in his remaining pancreas and is now inoperable. Having chemo now. If you are offered adjuvant chemo I would have it. My husband was told he didn't need it. Can't help wondering if he had started chemo before they found it had returned it might have mopped up the cancer cells before they increased 

Children
  • Hi Suenmags

    Sounds like we’re in a very similar situation. Doug’s op was in July ‘17 and the cancer had spread to his liver within 3 months. He had IV Cisplatin and Gemcitabine over a six month period which seemed to hold things at bay but then it spread further to his lungs (tiny nodules at the moment) and also resurfaced at the original site but the worst affected area is around his navel where a tumour has developed and is growing - the oral chemo, Capecitabine doesn’t seem to work on it.  Is this the same drug(s) as your husband has had? You mention adjuvant chemo, which is, I think, what the clinical trial at Guy’s hospital involves (docetaxel?) Has your husband has this and has it been effective? I think we’re going to go with the trial if all the preliminary tests are OK. It’s a big time commitment but hopefully it’ll be worthwhile. Our main problem right now is getting his pain under control and keeping it at a level that he can still get on with doing the things he wants to. How is your husband doing and is he having a lot of pain? As you say, it’s such a cruel disease. I really feel for you - so many mixed emotions as a partner and carer, it has put us through all kinds of hell. Sending warm wishes and strength to you both, all the best, Rosie

  • Hello Rosie

    Don didn't meet criteria for any trials. His first chemo session wiped him out so Monday's is lower doses. Keep trying different pain killers as he is in pain. I'll have to wait and see if that is better and if the cancer does shrink. At the moment struggling to get through the days. Good luck with the trial hope it works for your husband. My brother keeps saying to me belie Winston Chutchill  KBO keep buggering on. What else can we do

    All the best suenmags