Hi Rosie.

I hope you and your hubby are well now?

My dad had whipple procedure done almost 2 years ago, and has been doing amazing. Then a few months back he started struggling with eating much, had terrible diarrhoea , bloating & extreme tiredness. Blood test first cane back all clear, about 4 - 5 weeks ago, then 2 weeks ago, more blood tests showed raised cancer markers. 

I just wondering if anyone else had this after whipple?

My dad is only eating tiny portions , is very bloated & uncomfortable  & has lost a lot of weight since this started few months ago. 

I am desperately worried the bloods & how he is feeling means cancer is back. His GP sent off for emergency scan 3 - 4 weeks ago & emergency appointment 2 weeks ago. We had heard nothing so my sister called the hospital and he has appointment to see someone tomorrow as to wy he is so bloated etc. Then I take him to see GP  again tomorrow at 4pm.

I am dreading did it out if cancer is back as not only do I have my Dad to worry about , & obviously my Mum, but also my hubby who goes into alcohol detox soon too. 

I am SO scared xx

Hi Daddykins

I’m really sorry to hear about your Dad and I hope he’s not in too much pain. It sounds like the medical team need to get on top of his scan quickly so you can see what’s going on. My husband didn’t have the same problems as your Dad but his cancer had already spread to his liver when we got the results back after his Whipples op. He has had several cycles of chemo over many months and is currently on Capecitabine which is a tablet form of chemo, although this may stop shortly as we’ve been referred to Guy’s for clinical trials. His cancer is now in four different places and he is on continuous morphine and amytriptyline to help manage his pain. Do not despair! We are living with cancer and still doing everything we can to enjoy our time together and with our family. Last week we had a family holiday in Wales and Doug (my husband) played 18 holes of golf with our 3 sons! It’s a tough time and each day brings its own challenges but we keep tackling things head on and refuse to give up on life and love. I hope you have support to help you to cope, whether it comes from family, friends or both - but do draw these people close around you and don’t be afraid to ask for help when things get tough. Most people really do mean it when they offer to help and appreciate the chance to do something for you and your Dad, no matter how small, I think it helps everyone to deal with the awful situation we find ourselves in. Good luck to you and your Dad and I really hope you both get the care and support you need.

Hugs  

Rosie x

Hi Daddykins

I’m really sorry to hear about your Dad and I hope he’s not in too much pain. It sounds like the medical team need to get on top of his scan quickly so you can see what’s going on. My husband didn’t have the same problems as your Dad but his cancer had already spread to his liver when we got the results back after his Whipples op. He has had several cycles of chemo over many months and is currently on Capecitabine which is a tablet form of chemo, although this may stop shortly as we’ve been referred to Guy’s for clinical trials. His cancer is now in four different places and he is on continuous morphine and amytriptyline to help manage his pain. Do not despair! We are living with cancer and still doing everything we can to enjoy our time together and with our family. Last week we had a family holiday in Wales and Doug (my husband) played 18 holes of golf with our 3 sons! It’s a tough time and each day brings its own challenges but we keep tackling things head on and refuse to give up on life and love. I hope you have support to help you to cope, whether it comes from family, friends or both - but do draw these people close around you and don’t be afraid to ask for help when things get tough. Most people really do mean it when they offer to help and appreciate the chance to do something for you and your Dad, no matter how small, I think it helps everyone to deal with the awful situation we find ourselves in. Good luck to you and your Dad and I really hope you both get the care and support you need.

Hugs  

Rosie x