2 years since stage 4 prostate cancer diagnosis

Hi all, I’m new to this particular forum so thought I’d start by going through my experience of cancer so far. After having a PSA test, biopsy, MRI scan, CT scan & bone scan, I was diagnosed April 2022 with stage 4 prostate cancer which had spread to both hips, the inside joint of my left hip, my pelvis, Lumbar vertebrae number 4, Thoracic vertebrae number 9 and my chest bone. I had no urinary problems at all and no classic prostate cancer symptoms. It all started with pain in my left hip which led to Drs appointment and PSA test which came back as 53.3. I was started straight away on Firmagon injections, which I still have every 4 weeks. I started chemo May 2022 and finished September 2022, which shrunk my lymph nodes. I also started Zometa bone infusions which I still have every 8 weeks. I have regular MRI & CT scans and the latest scan has shown the cancer has now spread to Thoracic vertebrae number 10. I had palliative radiotherapy a couple of weeks ago to ease pain in my spine. I’m on daily medication and also Zomorph tablets and Oramorph daily to control the pains. I’ve got great medical support from GP, Oncologist and cancer nurses, palliative care team, local hospice, district nurses, occupational therapy nurses, to name just a few. I’m 53 years old, so relatively young to have prostate cancer to this degree. I’d never heard of a PSA test until my cancer journey started and I’m trying to raise awareness of the importance for men to have a PSA test, as with all cancers, the earlier prostate cancer is diagnosed the better. I know this post is a bit longwinded and if you’ve read this far, thank you. 

  • Hi Dave, relaxing in the garden on a lovely summers day sounds fab, and reading too sounds perfect. I love reading as I'm not a TV fan. Unfortunately i can't have chemo as all the toxins it causes in the blood would stop my heart, and other than paracetamol, no painkillers either, so most surgeries are too risky though i did see a CBT therapist to help me manage pain so I can have some surgical procedures and minor operations without anaesthetic or pain relief. I do have a few co morbidities and significant conditions, but we have to stay positive don't we. though the dark place is never far away, Like you i have counselling, mine is at my hospice and for nearly a year now, and would recommend it to everyone. Dave I have an allotment, been today, which I have had for 18 years and love, though lately I need a lot of help though on a good day I can do something. have a lovely day and say hi to your family for me..

    Eddie

  • I haven’t worked for just over 2 years, obviously work took up a lot of my time, so I’m finding new pastimes to occupy me. I’ve always enjoyed reading and nice to get back into it. I’ve bought so many secondhand books online, I’m running out of space to keep them now, so I downloaded the kindle app to my tablet and download books that way now, it’s a cheaper option too. You’ve certainly got a lot going on medically and add cancer to that too must be very difficult for you somedays. You’re very limited with the medication and pain relief you can take too, which I’m sure doesn’t help. I used to quite enjoy gardening but since my cancer diagnosis I found it very difficult to do, even cutting the lawns in the front & back gardens turned into a chore, it turned into a very painful and time consuming task. Over the last couple of years we’ve had both gardens dug up and replaced with patios with artificial grass and flowers, so we can still enjoy being outside but without the upkeep and maintenance needed. My counselling is also at my local hospice and I have reflexology therapy there too, which I find very relaxing. Hope you’re having an ok day and enjoying your allotment.

    Take care, Dave

  • Hi Dave, having fewer treatment options is what it is, and you would be surprised how much pain you can tolerate with the right training. I retired about 5 years ago, well before cancer, mainly due to heart problems, and didn't want to work to the end, and wanted a little time to do the things you have little time for when working. Dave I have tried reflexology, I had 2 tasters 15 minutes, and 3 full 60 minute sessions and preferred the 15 minute ones, mainly due to the therapist who could apply more pressure when having the 15 minute one, the lady who did the 60 minutes was too gentle and having neuropathy I couldn't feel her. so now I have a light full body massage with 15 minutes of reflexology at the end, wonderful, best wishes 

    Eddie