Glad to chat anytime. I have a neighbour who has been through this and we had a good chat over a glass of wine a couple of nights ago and it helped to find out a bit more about the process. A very positive and practical person who took it all in her stride. Eight years since diagnosis. Felt a lot more positive after that. It's the fear of the unknown. My younger girl seems okay, she is on the autism spectrum -my older girl is reacting a little differently -also on the spectrum but high functioning. I'm struggling to deal with her emotions to be honest.  She can be brutal verbally. I think I will need professional help with her 

Hi Gemmaclare, how are you this morning? I really hope the anti histimines work for you. The one I took was citirizine as it was the one recommended by the nurse. I must admit that I didn't wait to see what my oncologist thought I just went ahead and bought some on my way home from the unit. The result for me was amazing, from excruciating bone pain to none. When I told my oncologist what I had done he was very interested - said he'd never heard of it. Why? Surely he should have. I found and am still finding, as I navigate my way through some horrible side effects of the drugs I am now taking, that it is the nurses who have the best and most useful information, so listen to them. Ask them the questions and I'm sure they will help you.

Wishing you all the best with your treatment and just remember that you will come out the other side of this. You probably won't be the same person you were at the start, you will be a stronger, more resilient you. Keep strong, sending a big hug through the ether, Mog, xx

Hi,hope you are ok. Could you tell me what dose you took of the anti histamine please. I was told to take anti histamine by the chemo unit but they didn't say any particular one or if to take at a higher dose then the 1 a day recommended on the box? Thanks

Hi Gemma,

I have recently been diagnosed last month and just started chemo last week. Mine is a little different as it is Her2 positive but I thought I would reach out as I am 41 as well and it would be nice to have a friend that is going through similar experience. 
 

It's been an emotional rollercoaster already but I am doing everything I can to remain strong and positive, it is very hard and scary though. 
 

I am on 6 cycle of Docetaxel and carboplatin alongside pretuzamab and tratuzamab then will have lumpectomy then radiotherapy. It's definitely a lot to take in. 
 

I have sent you a friend request as well if you wanted to chat privately, happy to send you my number as well. 
 

Having a good circle definitely helps. 
 

How you feeling with the chemo? I have had some fatigue, trouble sleeping , dry mouth and stomach aches but getting there 

Sending you lots of positive thoughts. 
 

Veronique

Hello Gemma 

thank you dpso much for finding the time to reply.. 

I still don't have a start date hey and am scared it will keep growing... 

I will be in touch with you if you don't mind to share dipport xcx

I took just the one a day but split it into 2 and took half in the morning and half in the evening. Some brands are easier than others to break in half, the little lozenge shaped ones are best. Good luck!