Starting chemo for breast cancer and need some pals!

Hello

I've posted on this forum a couple of times over the past few weeks. 

Initially after being referred to breast clinic from my GP after finding a large lump in my right breast when starting to wean my second child ( now aged nearly 2 years) off breast feeding. Stupidly thinking it was a blocked duct or something but instead being told i have a 6cm tumor grade 2, oestrogen positive HER 2 neg mass.

I've been through an horrific time imagining the worse and wondering over to the dark side of thoughts convinced I was full of secondaries and going to die leaving my 2 young boys.

Ive found the support of a few ladies on here invaluable and searching the topics in this forum so much more informative thar good old Google!

I had a clear MRI and CT and got my treatment plan last week. Chemo first x4 Paclitaxel every 2 weeks, followed by EC x4 every 2 weeks. Am trying cold capping for the sake of my 4 year old mainly.

Then macetomy without immediate reconstruction,  will need radiotherapy as its grown on the chest wall. Then the hormone blocking stuff for the next 10 years. I'm 41, I wasn't ready to finish breast feeding, or having babies even tho my husband was adamant we were done with our 2 boys.  And of course I feel so blessed to have them.

I had my first chemo a few days ago and feel OK ish. Bit achey after GCSf injection for bone marrow production. Bit spacey and weird. Still in denial somewhat this is happening to me. Still bursting into tears at times.

I'd really like to meet a couple.of ladies who can share similar experiences or are at similar stages in their journey with this thing to help me through.

Many thanks in advance 

Gemma xxx

Parents
  • Hi Gemma 

    you sound so much like me 

    I was diagnosed on the 6th of July , was absolutely terrified as I imagined the worst I have 43 mm in my breast but also have 28mm in my lymph node ... 

    was terrifed and still freak out even though I have my scan results and they showed no futprther spread ... 

    I have not had my first chemo yet think it is planned for tge next week or so ... scared 

    EC x 4 every other week, Paclitaxel every week for 12 weeks .. surgery then radiation... 

    I too a. Looking for somebody who is going through treatment more or less the same time as me ... 

    this has rocked me to the very core of me as it fors to all of us... my mind went straight to worse case... 

     Ot going to cold cap as I don't want to spend anymore time than I need too... 

    please feel free to add me so we can share messages and virtually hold each other's hands . 

  • Hi justathena 

    Thanks for taking the time to reply, sounds like we are at similar stages too. During my 2am Internet searching I've read several of your posts on here and understand completely the overwhelming anxiety of it all and worry especially about spread of secondaries. That's amazing you been given the clear for that and have a treatment plan to start chemo next week.

    Sounds like we have similar treatment too, I still don't understand all the decisions for different chemo etc. And surgery first verses chemo. 

    Always here justathena if you would like support and chat xx

Reply
  • Hi justathena 

    Thanks for taking the time to reply, sounds like we are at similar stages too. During my 2am Internet searching I've read several of your posts on here and understand completely the overwhelming anxiety of it all and worry especially about spread of secondaries. That's amazing you been given the clear for that and have a treatment plan to start chemo next week.

    Sounds like we have similar treatment too, I still don't understand all the decisions for different chemo etc. And surgery first verses chemo. 

    Always here justathena if you would like support and chat xx

Children