Starting chemo for breast cancer and need some pals!

Hello

I've posted on this forum a couple of times over the past few weeks. 

Initially after being referred to breast clinic from my GP after finding a large lump in my right breast when starting to wean my second child ( now aged nearly 2 years) off breast feeding. Stupidly thinking it was a blocked duct or something but instead being told i have a 6cm tumor grade 2, oestrogen positive HER 2 neg mass.

I've been through an horrific time imagining the worse and wondering over to the dark side of thoughts convinced I was full of secondaries and going to die leaving my 2 young boys.

Ive found the support of a few ladies on here invaluable and searching the topics in this forum so much more informative thar good old Google!

I had a clear MRI and CT and got my treatment plan last week. Chemo first x4 Paclitaxel every 2 weeks, followed by EC x4 every 2 weeks. Am trying cold capping for the sake of my 4 year old mainly.

Then macetomy without immediate reconstruction,  will need radiotherapy as its grown on the chest wall. Then the hormone blocking stuff for the next 10 years. I'm 41, I wasn't ready to finish breast feeding, or having babies even tho my husband was adamant we were done with our 2 boys.  And of course I feel so blessed to have them.

I had my first chemo a few days ago and feel OK ish. Bit achey after GCSf injection for bone marrow production. Bit spacey and weird. Still in denial somewhat this is happening to me. Still bursting into tears at times.

I'd really like to meet a couple.of ladies who can share similar experiences or are at similar stages in their journey with this thing to help me through.

Many thanks in advance 

Gemma xxx

Parents
  • I'm in a similar position. Diagnosed in 4th July. Loads of tests CT, bone scan and MRI over the past two weeks. Starting chemo next week. Still waiting on results of tests and like you were I am imagining the worst regarding spreading etc... I'm hoping it hasn't but I'm still finding it hard to believe this is happening but at the same time just want to get on with it now. I have two teenage girls 18 and 13. 

  • Hi Lynda P

    Thanks for replying to my plea for finding some ladies experiencing the same thing . Sounds like we are similar timeliness. I remember the all consuming anxiety of waiting for scans and results just such an awful time,  I didn't make any better by googeling. 

    I'd say just take each day at a time and you'll soon be there with results,  just feels like forever waiting . Then you'll get a plan for tackling this. 

    Here if you ever want to chat anything through xx 

    Hope you're finding a way through with your girls xx

  • Glad to chat anytime. I have a neighbour who has been through this and we had a good chat over a glass of wine a couple of nights ago and it helped to find out a bit more about the process. A very positive and practical person who took it all in her stride. Eight years since diagnosis. Felt a lot more positive after that. It's the fear of the unknown. My younger girl seems okay, she is on the autism spectrum -my older girl is reacting a little differently -also on the spectrum but high functioning. I'm struggling to deal with her emotions to be honest.  She can be brutal verbally. I think I will need professional help with her 

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  • Glad to chat anytime. I have a neighbour who has been through this and we had a good chat over a glass of wine a couple of nights ago and it helped to find out a bit more about the process. A very positive and practical person who took it all in her stride. Eight years since diagnosis. Felt a lot more positive after that. It's the fear of the unknown. My younger girl seems okay, she is on the autism spectrum -my older girl is reacting a little differently -also on the spectrum but high functioning. I'm struggling to deal with her emotions to be honest.  She can be brutal verbally. I think I will need professional help with her 

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