Starting chemo for breast cancer and need some pals!

Hello

I've posted on this forum a couple of times over the past few weeks. 

Initially after being referred to breast clinic from my GP after finding a large lump in my right breast when starting to wean my second child ( now aged nearly 2 years) off breast feeding. Stupidly thinking it was a blocked duct or something but instead being told i have a 6cm tumor grade 2, oestrogen positive HER 2 neg mass.

I've been through an horrific time imagining the worse and wondering over to the dark side of thoughts convinced I was full of secondaries and going to die leaving my 2 young boys.

Ive found the support of a few ladies on here invaluable and searching the topics in this forum so much more informative thar good old Google!

I had a clear MRI and CT and got my treatment plan last week. Chemo first x4 Paclitaxel every 2 weeks, followed by EC x4 every 2 weeks. Am trying cold capping for the sake of my 4 year old mainly.

Then macetomy without immediate reconstruction,  will need radiotherapy as its grown on the chest wall. Then the hormone blocking stuff for the next 10 years. I'm 41, I wasn't ready to finish breast feeding, or having babies even tho my husband was adamant we were done with our 2 boys.  And of course I feel so blessed to have them.

I had my first chemo a few days ago and feel OK ish. Bit achey after GCSf injection for bone marrow production. Bit spacey and weird. Still in denial somewhat this is happening to me. Still bursting into tears at times.

I'd really like to meet a couple.of ladies who can share similar experiences or are at similar stages in their journey with this thing to help me through.

Many thanks in advance 

Gemma xxx

Parents
  • Hi Gemma 

    you sound so much like me 

    I was diagnosed on the 6th of July , was absolutely terrified as I imagined the worst I have 43 mm in my breast but also have 28mm in my lymph node ... 

    was terrifed and still freak out even though I have my scan results and they showed no futprther spread ... 

    I have not had my first chemo yet think it is planned for tge next week or so ... scared 

    EC x 4 every other week, Paclitaxel every week for 12 weeks .. surgery then radiation... 

    I too a. Looking for somebody who is going through treatment more or less the same time as me ... 

    this has rocked me to the very core of me as it fors to all of us... my mind went straight to worse case... 

     Ot going to cold cap as I don't want to spend anymore time than I need too... 

    please feel free to add me so we can share messages and virtually hold each other's hands . 

Reply
  • Hi Gemma 

    you sound so much like me 

    I was diagnosed on the 6th of July , was absolutely terrified as I imagined the worst I have 43 mm in my breast but also have 28mm in my lymph node ... 

    was terrifed and still freak out even though I have my scan results and they showed no futprther spread ... 

    I have not had my first chemo yet think it is planned for tge next week or so ... scared 

    EC x 4 every other week, Paclitaxel every week for 12 weeks .. surgery then radiation... 

    I too a. Looking for somebody who is going through treatment more or less the same time as me ... 

    this has rocked me to the very core of me as it fors to all of us... my mind went straight to worse case... 

     Ot going to cold cap as I don't want to spend anymore time than I need too... 

    please feel free to add me so we can share messages and virtually hold each other's hands . 

Children
  • Hi,hope you are ok, I was diagnosed for the 3rd time in April and had a bilateral mastectomy at the beginning of June, I started chemotherapy for the 2nd time on 7th July, I'm having carboplatin and docetaxel this time. I tried the cold cap first time but my hair fell out anyway and it is brain freeze on another level. I am suffering with extreme tiredness and my body aches like I have the flu. 

  • Hi I am so sorry you are here 

    I would like to share my path way with you please as we. An hold hands together  I hope they are able to remove al, the deadfall desease for you 

     

  • Just a quick tip for all you lovely ladies having chemo. I went through it last summer - I was diagnosed on the 16th of March. I had horrendous bone pain from the tummy injections to stimulate bone marrow after the first jab and I was in agony by the time I'd done the 7th one. When I mentioned it to a nurse on the unit she recommended anti histimines. You can buy them quite cheaply over the counter, although I did get mine prescribed. The main thing is - THEY WORKED!!! No pain at all from the tummy jabs for the next 5 cycles of chemo. They may not work for you but please give them a try. For the sake of a couple of pounds you may be spared this awful aching. If they work, tell your oncologist. Mine had no idea until I told him. 

    Good luck ladies, I wish you all well on you cancer journey, take care of yourselves and keep positive. You can do this!! 

    Best wishes and virtual hugs, Mog, xx

     

     

  • Hi Mog

    Thanks for stopping but and posting such useful info! 

    I had my first tummy injection a few days ago and have had leg and hip pains since and today pain across my upper back. I'll mention the antihistamine when I'm back in again for next dose thank you so much!

    Lovely to hear from someone out the other side xx

    Thanks for the hug xx

  • Hi dumps48

    Sorry to hear you're going though the treatment cycle again , hope you are managing to keep and feel well.

    Useful to know about the cold cap, im trying it but am certainly not pinning all my hopes on it working,  just incase it doesn't. I just need to figure out how I'm going to explain to my 4 year old when my hair falls out. 

    Thanks for stopping by xx

  • Hi justathena 

    Thanks for taking the time to reply, sounds like we are at similar stages too. During my 2am Internet searching I've read several of your posts on here and understand completely the overwhelming anxiety of it all and worry especially about spread of secondaries. That's amazing you been given the clear for that and have a treatment plan to start chemo next week.

    Sounds like we have similar treatment too, I still don't understand all the decisions for different chemo etc. And surgery first verses chemo. 

    Always here justathena if you would like support and chat xx

  • Hi Gemmaclare, how are you this morning? I really hope the anti histimines work for you. The one I took was citirizine as it was the one recommended by the nurse. I must admit that I didn't wait to see what my oncologist thought I just went ahead and bought some on my way home from the unit. The result for me was amazing, from excruciating bone pain to none. When I told my oncologist what I had done he was very interested - said he'd never heard of it. Why? Surely he should have. I found and am still finding, as I navigate my way through some horrible side effects of the drugs I am now taking, that it is the nurses who have the best and most useful information, so listen to them. Ask them the questions and I'm sure they will help you.

    Wishing you all the best with your treatment and just remember that you will come out the other side of this. You probably won't be the same person you were at the start, you will be a stronger, more resilient you. Keep strong, sending a big hug through the ether, Mog, xx

  • Hi Justathena, hope you are as OK as you can be. Just wanted to let you know that the anti histamine that I took with such remarkable success was citirizine. After the nurse on the unit told me about it I didn't wait to see what my oncologist thought I just went ahead and bought some on my way home from the unit. From terrible bone pain to none. It was miraculous for me and I hope you will have the same result. Do let me know how you get on if you decide to try it. 

    Good luck! Keep strong and remember you will get through this. If I can, you can. Just take each day as it comes and before you know it you will be out the other side.

    Sending best wishes and a big hug, Mog, xx

  • Hi,hope you are ok. Could you tell me what dose you took of the anti histamine please. I was told to take anti histamine by the chemo unit but they didn't say any particular one or if to take at a higher dose then the 1 a day recommended on the box? Thanks