I don’t want my mum to die

Hey guys, 

Just abit of background, my mum is 55, and was recently diagnosed with Advanced bowel cancer, that had spread to the liver and lungs. 
In terms of treatment, she was declined surgery, as the cancer had spread too much, we are awaiting an appointment with the oncologist to discuss if she can have palliative chemotherapy- but will assess her fitness. However, she is extremely weak, as she was also diagnosed with covid last week, which she got from hospital when she went to get her ascites drained. 

When she was first diagnosed in February, I was positive as prior to her becoming diagnosed, she appeared to be the fittest she had ever been- ie/ working out, walking 10k daily steps, eating well. I would've never thought she had Stage 4 cancer. But recently I'm feeling extremely deflated, angry because the cancer wasn't spotted earlier, and extremely depressed. 
I want to be positive, but at the same time, I am petrified. I don't want my mum to die. I can't imagine life without her, and don't want to imagine life without her.  I keep thinking why didn't we do more. I feel like I'm going crazy. At the same time, I keep thinking, should I be preparing for her death, or should I wait until oncologist decide on treatment plan. 
I just don't know how to feel, or what to do to ease the pain. Please can someone help? I feel really down  

Parents
  • I'm sorry to hear your mum is fighting cancer. I am 48 and was diagnosed 20 months ago with stage 4 kidney cancer. How did that happen? I didn't have any symptoms until just before I was diagnosed. My symptoms were tummy ache that came and went a slight change in the colour of my stools and weight loss but it was only just before diagnosis that these symptoms occurred. I was in total shock and angry to be told that a CT scan showed a 12 cm cancerous tumour on my kidney which had spread to my lungs! Unbelievable. I lost my mum 4 years ago to kidney cancer that spread to her bones, the same cancer. However my mums was found really late and aged 72 her first symptoms were a fractured pelvis!! The cancer caused bones to break! I get angry that my cancer wasn't found sooner but how could it be if I had felt well and kept fit beforehand? Like your mum finding mine was so unexpected but advanced she  found. I used to worry I would die but now 20 months later I am feeling fairly well. 
    It wasn't always like this at first I was really ill with immunotherapy and was in an out of hospital and my daughter who is 27 was devastated thinking I was dying. Now I have discovered my treatment isn't working well enough and am currently waiting for a  suitable clinical trial to hopefully control the cancer now growing on my lungs. I feel positive against all the odds and am hopeful that although my cancer may not be curable but can be managed for a few years yet. The problem with cancer is it's often not found until the cancer is advanced but hopefully my age and level of fitness will help and help your mum too. Try and be positive and just be there for your mum.

     

Reply
  • I'm sorry to hear your mum is fighting cancer. I am 48 and was diagnosed 20 months ago with stage 4 kidney cancer. How did that happen? I didn't have any symptoms until just before I was diagnosed. My symptoms were tummy ache that came and went a slight change in the colour of my stools and weight loss but it was only just before diagnosis that these symptoms occurred. I was in total shock and angry to be told that a CT scan showed a 12 cm cancerous tumour on my kidney which had spread to my lungs! Unbelievable. I lost my mum 4 years ago to kidney cancer that spread to her bones, the same cancer. However my mums was found really late and aged 72 her first symptoms were a fractured pelvis!! The cancer caused bones to break! I get angry that my cancer wasn't found sooner but how could it be if I had felt well and kept fit beforehand? Like your mum finding mine was so unexpected but advanced she  found. I used to worry I would die but now 20 months later I am feeling fairly well. 
    It wasn't always like this at first I was really ill with immunotherapy and was in an out of hospital and my daughter who is 27 was devastated thinking I was dying. Now I have discovered my treatment isn't working well enough and am currently waiting for a  suitable clinical trial to hopefully control the cancer now growing on my lungs. I feel positive against all the odds and am hopeful that although my cancer may not be curable but can be managed for a few years yet. The problem with cancer is it's often not found until the cancer is advanced but hopefully my age and level of fitness will help and help your mum too. Try and be positive and just be there for your mum.

     

Children
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