I don’t want my mum to die

Hey guys, 

Just abit of background, my mum is 55, and was recently diagnosed with Advanced bowel cancer, that had spread to the liver and lungs. 
In terms of treatment, she was declined surgery, as the cancer had spread too much, we are awaiting an appointment with the oncologist to discuss if she can have palliative chemotherapy- but will assess her fitness. However, she is extremely weak, as she was also diagnosed with covid last week, which she got from hospital when she went to get her ascites drained. 

When she was first diagnosed in February, I was positive as prior to her becoming diagnosed, she appeared to be the fittest she had ever been- ie/ working out, walking 10k daily steps, eating well. I would've never thought she had Stage 4 cancer. But recently I'm feeling extremely deflated, angry because the cancer wasn't spotted earlier, and extremely depressed. 
I want to be positive, but at the same time, I am petrified. I don't want my mum to die. I can't imagine life without her, and don't want to imagine life without her.  I keep thinking why didn't we do more. I feel like I'm going crazy. At the same time, I keep thinking, should I be preparing for her death, or should I wait until oncologist decide on treatment plan. 
I just don't know how to feel, or what to do to ease the pain. Please can someone help? I feel really down  

Parents
  • I'm so sorry to hear about your mum and can only feel your sorrow and fears. i lot my mum to stage 4 lung cancer less than a year ago and the loss is still very raw. i was lucky that my mum lived up until 90 but the wooly delivery of her condition by medical profession was not acceptable. Yes she had mild dementia deemed up until hospital admission able to make decisions (and 6 months prognosis) family left to relay news. And what news when tests ie mri/x ray discharge summary sheet read probable/likely ? Hardly definative so we held on to hope and said nothing other than to give her our care and love at home where she wanted to be. I'm glad my mum got that wish what with arising covid but i am and was not satisfied with my mothers GP or hospital or even mcmillan nurses who were not even sympathetic of our fears and feelings on wording.  I am blessed that she had  painfree death and we were with her and that she had a wonderful home carer, but as for support and understanding from health professionals that will stick in my throat forever. Much is left to family and you have to fight your corner and support when your least strongest. I will miss my mum forever and thankgod that she was not hosptilised against her wishes with increase of covid admissions and action that insued. Stay strong and always do your own research and questioning medics might not like it and you seldom have your mind at rest but dont worry about who's toes you tread on . Medics may think they are gods and beyond reproach but be a big voice on any concerns you have with your mums condition and progress of this terrible desease.   David 

Reply
  • I'm so sorry to hear about your mum and can only feel your sorrow and fears. i lot my mum to stage 4 lung cancer less than a year ago and the loss is still very raw. i was lucky that my mum lived up until 90 but the wooly delivery of her condition by medical profession was not acceptable. Yes she had mild dementia deemed up until hospital admission able to make decisions (and 6 months prognosis) family left to relay news. And what news when tests ie mri/x ray discharge summary sheet read probable/likely ? Hardly definative so we held on to hope and said nothing other than to give her our care and love at home where she wanted to be. I'm glad my mum got that wish what with arising covid but i am and was not satisfied with my mothers GP or hospital or even mcmillan nurses who were not even sympathetic of our fears and feelings on wording.  I am blessed that she had  painfree death and we were with her and that she had a wonderful home carer, but as for support and understanding from health professionals that will stick in my throat forever. Much is left to family and you have to fight your corner and support when your least strongest. I will miss my mum forever and thankgod that she was not hosptilised against her wishes with increase of covid admissions and action that insued. Stay strong and always do your own research and questioning medics might not like it and you seldom have your mind at rest but dont worry about who's toes you tread on . Medics may think they are gods and beyond reproach but be a big voice on any concerns you have with your mums condition and progress of this terrible desease.   David 

Children
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