Struggling with my dads slow death (death rattle)

Hi all,

my poor dad is slipping away and it isn't a fast and peaceful process.

2 weeks ago he came home out of the hospice and has been in bed since. He lost consciousness 4 days ago and has drunk anything since then. 48 hours ago the death rattle started and it is just horrific to listen to. I feel like this is new going to end, most people slip away quicker when the death rattle starts I believe but he is just carrying on and it is so painful to watch. 
he is only 62 and has bones metastasis which spread from his liver.

does anyone have any experience of how long he can go on breathing like this?

 

my heart is breaking 

 

thank you

 

  • Hi I'm so sorry to hear about your Dad. No one prepares you for watching your loved ones come to the end of their life. My Mum died on 6th February. Mum went in hospital on 20th January. We were told she had secondary liver cancer. Mum fell while in hospital and had a bleed on the brain she then caught Covid 19 and died saturday night. Mum had the death rattle when we arrived on saturday afternoon and died about 5 hours later. It was heartbreaking to watch. Stay strong. You aren't alone. 

  • Hi my love, my dad not long past away aged 82 with tonsil cancer which effected his breathing, and developed phnemonia which was hard to watch as fluid filled his lungs, few days before he passed I noticed a lot of irratibility and rigid body movements, such as being bit in distress, which he was given seditive,and lots pain killers intravenously , seditive stopped him from anxiety but during those distressing movements, which can be apart of death unfortunately coming within few days after.I noticed breathing became more shallower over night, just a day after his distressing movements occurred. I think it’s apart of his body shuttting down which can be so upsetting to see. He was unable to open his eyes, but could hear us next to him as I held my dads hand. I just kept saying how much we loved him and played some music so he could hear it and relax as much as possible despite being heavily sedated and pain relief to make him feel comfortable through pain. It was then breatheing became shallow and deeper. It’s hard to watch, but just hold his hand and stroke his forehead and talk to him so he knows your there. It’s much comfort for the person to know a relative is there beside them. With pain relief and controlled sedation in the last days is something that’s given days before they pass my love. Don’t be alarmed, he will be unaware of much pain or distress. He will just breath in longer in at first then slowly out again, during these moments he may get a rattle, just sounds like if he is actually got bit phlegm sitting in his throat , but he won’t feel this at all my love. He will gently then slip away peacefully. ️ Hope I trued to explain it in away it hasn’t upset you . God bless, take care , keep strong.xxxx

  • Thank you to all the lovely replies, my dad passed away yesterday evening.

    I thought I would update incase anyone searches in the future. he had the rattle noise for 60 hour in the end, it has been a traumatic 2 weeks and the last 60 hours of his life were so distressing to watch. But he passed with myself and my mum holding his hand.

     

    today I just feel disbelieve, I don't feel sad or anything, it's like my brain won't let me comprehend all that we have been through. I hope this is normal? I just feel like I should be distraught today and not just carrying on as normal

  • So sorry for your loss Emeliekate and it's so sad that his last hours were so distressing. Sincere condolences on behalf of the Cancer Chat team. 

    We are thinking of you and your family during this difficult time. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Hello Emeliekate. I'm sorry to hear that your dear father has passed. My dad too passed from lung cancer despite not having been a smoker. He was one month away from turning 79 years old. He was bedridden for the last 60 days of his life (30 in the hospital and 30 at home). My dad had the "death rattle" while in the hospital which was very disturbing. I cried at his bedside feeling helpless and praying to switch places with him. I have read that while the rattle sound is very disturbing, it is not uncomfortable to the patient. Also, the fact that you're not feeling distraught right now is normal for you (as it was for me too immediately after my dad's passing). The reason I was not distraught right after was because we had a LONG 17 weeks of fighting his illness (from diagnosis to death). We were both tired and defeated. I had prayed to Lord "if you're not going to heal him, please take him". So when the Lord took him, I was more relieved that my dad was no longer suffering. This might explain why you are not distraught at this time either. In my experience, little time had passed before I felt my dad's absence. It was the worst pain I had ever felt in my life. My 17 year old brother was murdered yet my dad's passing was even more painful. For about the first year after my dad's passing, I wanted to die but I had my mom and nephews to live for. After some time and having a lot of support from friends, family and strangers, I no longer wanted to die or isolate myself. It's been 3 and a half years and while it's still not easy, I tend to remember our fond memories as opposed to his ill days. I hope that you too find strength and courage to continue your dad's legacy, and make him proud as he will continue to love and protect you.

  • Hello, yesterday, my beautiful mum passed away; she had a very bad irregular heartbeat, which we believe was down to anxiety;, we asked for anxiety medication, and we couldn’t get it. We waited an hour for the doctor, and the heart rate went over 200 beats. She wasn’t ready to die, but there was a buildup of fluid. It sounded like her lungs; they did not give her any diuretics then we were told the only solution was to provide end-of-life care; they took all the monitors off, and then for five or six hours, we had my mum with the loudest, death rattle, or struggling to breathe and live   you could hear 59 meters away , it sounded to me like she wanted to live, we were not given the option for her to live and she took her last breaths after six hours of what seemed like fighting to live. I’m devastated. I don’t know what to think or what to do; I feel like the medical profession just wants to kill off older adults. My mum had a tiny tumour, but she had a lung collapse, and they refused to treat it with diuretics. They said she was too weak for any treatment, even though need to release the pressure of the fluid would not have harmed her, t feel like my mum was killed and that we were party to it by allowing end-of-life treatment. I don’t know what to do or what to think. my mum was 80, but she was full of the life she wanted to live, and I don’t think she was given a chance. Has anyone else had this experience of neglect and pain