Hi, just read your post, my mum was diagnosed with terminal pancreatic cancer Wednesday night this is secondary as they found a tumour may last year she then had the whipple surgery end sept then 6 months chemo which finished in may this year, she almost straight away from june started getting pain in her stomach she described as labour pain she was back and forth to the doctors being treated for constipation!! Then an xray to check for arthritis then back to constipation again!! To her finally giving up and ringing 999 this week to be told its returned with a vengeance and is now terminal,  were an extremely close family and shes the best of the best  were heartbroken and angry that its happening I also have children who adore there nanny and are going to be devastated but at the moment they dont no as there her wishes, shes currently waiting to come home tonight or tomorrow untill we no if shes eligible for treatment and what that will be.  Were being robbed of our amazing mum at so young and it makes me so angry.

How's your mum doing now?

So sorry to hear of your loss of your dad losing anyone is heartbreaking but a parent is absolutely devastating.

Sending love xx

I am in the same position stories sound the same except it's my dad , told today no treatment will help . It's so hard especially this time of year to keep things normal for he children? How is your mum ?

I lost my dad a few weeks ago. He had been poorly for around 8 weeks before he died and we never got around to diagnosis. He actually died of an internal bleed due to a burst stomach ulcer resulting from a helicobacter pylori infection. However, he also had undiagnosed pancreatic cancer. There were massive delays with tests, diagnosis and treatment. Part of me feels very let down.

The other part of me feels relieved my dad didn't know he was really poorly even though his symptoms were severe. He had been told he had helicobacter pylori and gallstones, so he himself didn't know the seriousness of his condition. Knowing dad, he wouldn't have wanted to go through chemo or cancer treatment but I feel cheated that he never got that choice. 

Dad died a painful, excruciating death which we were all  and continue to be traumatised by. He kept telling the doctors he was in pain and he was prescribed paracetamol. All of the signs of him having pancreatic cancer were there, he was vomiting, lost weight, severely jaundice, in pain, developed a rash, had pale, smelly stools and tested positive for helicobacter pylori. He attended walk in centres and gp surgery no less than 14 times in 8 weeks. We even had the ambulance out to him on one occasion.

Dad would not let me or mum argue against the doctors insisting the doctors must be right and we were needlessly worrying.

Dad was 68. He leaves behind my mum, my sister, me and 3 grandchildren with another one on the way. We are all totally devestated and saddened. He was a major influence in our family and very much loved by us all. I am incensed and disgusted by the lack of care he received. The coroner has encouraged me to complain to the NHS, there will be an inquest as to the circumstances of what happened. 

what chemo were they on out of interest??

My husband has been told his liver now has patches on it so the chemo for the pancreas hasn't worked so no chance of operation but your post about your mum has given me hope of longer than we thought.  

My husband is starting this same chemo next week. Fingers crossed after hearing about your Mum. Thank you x

How is everyone doing?  My gorgeous sister was diagnosed with Pancreatic cancer on 10th Feb.  I still can't believe it.  We thought she had a virus and would come home with antibiotics.  It's metastasized to her liver with multiple tumours and so prognosis isn't good.  She's started on chemotherapy today but is starting to show the early signs of jaundice so I find myself bursting into tears still fairly regularly.  She's 53.  

Sending love to everyone here 

xxx

I am so very sorry to hear this, my mum passed away 17th December aged 58 this this awful disease,  she'd only been diagnosed in the October,  things quickly went down hill and the week before she was due to start chemo she was  very jaundice and had a high temp, she was rused into hospital where we were told the cancer had spread every where and we had weeks left with her, the jaundice was getting worse due to a blockage that could not be operated on as she was so poorly she wouldn't of survived if they had fitted a stent. Pancreatic cancer is just awful it took my mum so quickly.  Sending lots of love and strength through this difficult time. Please message if you need a chat. Xx

Hi 

So so sorry to hear about your sister.  It is a dreadful disease , my husband is 58 and now not good as not responded to chemo - it made him ill. He had no signs at all until last May and then overnight something was wrong. Not diagnosed until July where it had progressed rapidly.  Jaundice was completely fixed with my husband last September. They put a stent in to clear the tubes and he hasn't had jaundice since. I cry all the time - I have no answers for that unfortunately. I hope she responds to chemo well. Lots and lots of people do and you have to have hope.  I know my case isn't a good example but you must keep hoping. 

xxx