My dad has got terminal pancreatic cancer

My dad was diagnosed in February with incurable pancreatic cancer it has spread to his liver. I live near my mum & dad and my one sibling my brother lives 140 miles away. I have a really tough job 2 kids and a mega busy life and am finding it hard to support my mum. She is struggling to deal with my dads deteriorating psychological state. His symptoms are that he has got a very swollen abdomen which is uncomfortable. He is on Oxycodone slow release tablets 15mg twice a day. He is having palliative chemotherapy. My dad is 73 and my mum is 70. They have run their own business for 40 years and still work now. My husband has recently taken over the business so that is taking the strain off my parents. I am dreading what is to come, the deterioration. It's heartbreaking. What are your experiences of this dreadful disease? 

Parents
  • My husband is starting this same chemo next week. Fingers crossed after hearing about your Mum. Thank you x

  • How is everyone doing?  My gorgeous sister was diagnosed with Pancreatic cancer on 10th Feb.  I still can't believe it.  We thought she had a virus and would come home with antibiotics.  It's metastasized to her liver with multiple tumours and so prognosis isn't good.  She's started on chemotherapy today but is starting to show the early signs of jaundice so I find myself bursting into tears still fairly regularly.  She's 53.  

    Sending love to everyone here 

    xxx

  • I am so very sorry to hear this, my mum passed away 17th December aged 58 this this awful disease,  she'd only been diagnosed in the October,  things quickly went down hill and the week before she was due to start chemo she was  very jaundice and had a high temp, she was rused into hospital where we were told the cancer had spread every where and we had weeks left with her, the jaundice was getting worse due to a blockage that could not be operated on as she was so poorly she wouldn't of survived if they had fitted a stent. Pancreatic cancer is just awful it took my mum so quickly.  Sending lots of love and strength through this difficult time. Please message if you need a chat. Xx

Reply
  • I am so very sorry to hear this, my mum passed away 17th December aged 58 this this awful disease,  she'd only been diagnosed in the October,  things quickly went down hill and the week before she was due to start chemo she was  very jaundice and had a high temp, she was rused into hospital where we were told the cancer had spread every where and we had weeks left with her, the jaundice was getting worse due to a blockage that could not be operated on as she was so poorly she wouldn't of survived if they had fitted a stent. Pancreatic cancer is just awful it took my mum so quickly.  Sending lots of love and strength through this difficult time. Please message if you need a chat. Xx

Children
  • I'm so sorry to hear about your mum.  Gosh this disease is truly dreadful and I feel so utterly helpless.  

    Thanks for your message - it's really appreciated xx

  • Really sorry to hear about your Mum. It is such a dreadful disease - they call it the silent one as you don't know you have it.  It is just so unfair isn't it. My husband had so many things he planned to do and now is too late.  You just never know.  One chap he did some work for had it years ago and it was picked up on a random blood test and gotten rid of straight away at early stages. I so wish we had that. 

    You also message if you want to chat. x

  • Thanks for your reply, my mum was first diagnosed 2018, she got taken into hospital after a month of back and tummy pain but by now the pain was unbearable and she was jaundice after a scan they discovered a tumour on the head of the pancreas this was may she had a stent fitted and they did biopsys a couple of times which came back non cancerous they discussed with her surgery because it was acting like cancer they said, she had the whipple procedure end sept (dont know why it took them so long so fit her in) surgery was 10 hours long she had half her liver out and apart from her losing a lot of blood it went as planned they tested the tumour once removed and was cancer,  she started chemo December after she recovered from surgery that was for 6 months and told that it was just a precaution as her treatment for cancer was the surgery. Chemo finished last May she rang the bell and was given the all clear, June she had a scan to check she was clear they said there was no recurrence but something on her liver had showed up and they wanted to scan her again they did and again it was flagged up with there words red flag, mum was in a lot of pain from when her chemo finished and was back and forth to the doctors every week they fobbed her off with codine and xrays for arthritis then eventually September they gave her morphine and said she was constipated and that what the pain was,  October she couldn't cope with the pain any longer and got rushed into hospital where the next day she was diagnosed stage 4 terminal we were heartbroken and angry that the doctor's and consultant's didn't do more for her when she'd gone to them so many times,  she was due to start chemo a month later in the November her and my dad renewed there vows after 42 years of marriage the day after she got so poorly and took back into hospital where we were told there was nothing they could do she had only weeks  left, we grived from then on, she got discharged on the 16th November and she passed away 17th December at home peacefully with all her family there.

    So sorry to hear your husband is poorly , have hope sending prayers your way. 

    Xx

  • Thank you.  Yes our NHS Hosptial is absolutely appalling. My husband's treatment was dreadful.  The amount of mistakes made, misdiagnosis, incorrect medication. Staff not liaising with each other about what they were doing.  I was told by an actual Oncologist  he was terminal one day then the next day someone else had looked at the scan and they had got it wrong. Then a junior doctor told me it was on his bowels and he had got it wrong.  It just went on and on. Unfortunately we are now at the beginnning of the end but where I work I have Private Medical Insurance so we used that and he has been treated in Birmingham.  The difference money makes for treatment and human behavious is amazing but unfortunately even they aren't miracle workers.

  •  I’m really sorry to hear you lost your mum. I just lost my dad to pancreatic cancer 31st January. Like yourselves dad went hospital with abdominal pains with fluid build up around his stomach (which was Ascites) with weight loss and was sent home with diagnosis “constipation”. He came home suffered another 2 weeks and had to call an ambulance which finally lead to him being admitted they done tests and scans which took 3 weeks and was diagnosed with end stages of pancreatic cancer. He died 2 weeks later. 

    None of us expected it to turn out like this not even my dad. I really miss him. My mum and dad had been married for 51 years they were soul mates. My dad was my everything. 

    I know you know how I feel as you are going through the same. You feel robbed and angry. 

    I hope you have support around you. Sending you a big hug 

    char xx