Call the helpline 0808 800 4040 to talk to a nurse. Good luck. 

Hello bone cancer patient

I declined your request but are more than happy to chat on open forum. Hope you are keeping well.

Ed

Hello navaraman

Im glad the nurses are looking after you well. Maggies has a very good reputation sadly my nearest is over 100 miles away. At our hospital we are assigned a Mcmillan nurse who can offer support or put us in touch with other agencies and provide advice if we need it. 

Ed

That sounds good to Ed we got sppointment on tueday to see what help I can get money wise maybe rent rebate and council tax rebate etc . Cant get pension credit though becsuse our private pensions and state pensions put us over amounts . Still hopefully will get help have a good weekend and stay out midday sun especially tomorrow and Monday 

Hi Navaraman

Hope you can get some financial support sorted out, we pay taxes and NI all our lives so that we have some insurance if our circumstances change. I'm in a similar situation that I paid into a pension fund for 45 years and also have savings so not eligible. However I consider myself fortunate to be in a position where living with cancer is not also compounded with money worries. Looking like a hot week ahead and planning a trip to the coast for the cooler air, a swim, fish and chips and a beer or two. While my other half is looking forward to a cream tea. Drink plenty keep cool avoid midday sun UV is 7 this week or sunburn in 30 minutes.

Ed 

Hi Ed I know what you mean work all you life and get no help . Some people sit on their back sides dont work and get everything . Still I will keep out of sun today and keep hydrated as well enjoy seaside etc 

Hi Lee

Good for you to post about still living a good life with incurable cancer, it gives hope to the many people that will read this. With modern treatments our quality of life can be much improved and extended even though we all live with some form of incapacity. Keep cool, drink plenty avoid midday sun. Big hug

Ed

Cheers bud going to meet a few of my old school mates this morning we try and do it on a regular bases . Gosh its hot already got a kneck fan which helps plus a tall tower fan and also one in bedroom keep cutains drawn in bedroom as well plenty of fluids as well 

Its great to have kept in touch with your old school mates all these years and to still be meeting up. I still see a few of mine intermittently as we live a long way from each other and are no longer in prime health. I'm possibly the lucky one with cancer. While mates have dementia, COPD and on oxygen, heart problems and liver disease. Still we have all had very good lives, lived to the full and will be returned to our maker in very used condition. Have a great day and a good laugh.

Ed

Hi Farmer Ed how you doing in this heatwave . I just wondered if you may help my skin has just started getting dry and flakey . I moisturise in morning after shower 

Hi Navaraman

Good to see you still about on the forum and survived the heatwave. Went out with friends last night for a pint. And on the way home wished Id brought a jumper the air was welcome fresh and cool. Is your dry skin caused by your medication. I get a very itchy rash with dry skin. I stopped using soap which dries out the skin  and take a cool bath  with E45 emmolient oil. It does get you clean. Then use E45 or Balneum anti itch cream. If it gets really bad I use a steroid cream sparingly. Also I make sure to drink plenty water. I still have the rash but its much less irritatating and Im not shedding dust everywhere. Hope you are doing OK and getting away for trips when you can. I did get down to the coast where it was a little cooler and had a swim. It was too hot though to fancy fish and chips. 

Ed

Good you eere able yo get out and about. Saw my 2 grandsons yesterdsy Harry the four year old has sussed I am not well . He adked twice yestersay are you still ill grandad are you going to die . Bless him  . And oliver who is 4 months old is taking evrything in now . They both great 

Good you eere able yo get out and about. Saw my 2 grandsons yesterdsy Harry the four year old has sussed I am not well . He adked twice yestersay are you still ill grandad are you going to die . Bless him  . And oliver who is 4 months old is taking evrything in now . They both great 

Wonderful to get to see your granchildren. Mine are the one thing that brings the greatest joy to my heart. Regular photos keep us updated and always bring a smile to my face. Due to make a visit soon to see them but its a five hour trip to get there so only go every 3 months. Hope you day goes well.

Ed

Cheers mate we are lucky my son and family only 20mins away and so is my daughter and husband . My son has two boys and daughter doesnt have kids . Hope you have a good day 

Cheers hope you sre able to see yours soon . They keep me going through cancer and my son and daughter and of course my wife and my few old school friends do as well bloody hard though especailly yedterday the after effects of the chemo upset stomach etc yuk 

On 8 of july I am seeing doctor for assessment also to get a form SR1 to send it to dwp to claim what I can in benifits 

Hi Navaraman the SR1 form is online and the doctor sends it straight to DWP.  If you claim PIP you automatically get higher rate of the care component and put in support group if you claim New Style ESA.  Good luck for next Wednesday.

Yes thanks 

As I retired we will see what happens I already get the middle rate of pip and nothing else . I am a left foot amputee as a result of a motor bike smash . The dwp wouldnt give me the highest rate because they ssad I am not disabled enough its pathetic my old nrighbours grandson gets everything because he suffers from axniety and cant possibly work lazy git he works on cars for people cash in hand though crazy he hasnt worked since he left school he is about 28 now lazy *** he is a good lier 

Hi lee 

Hope all is well with you and keeping cancer and pain at bay.

Ed

Hi Navaraman

I hope that you are able to receive some financial help to make your life a little easier. The cost for living with cancer is substantial, there are lots of outgoings for things to keep you comfortable and medicines and treatments not available on the NHS. Then transport cost for the numerous visits to hospital and decent food to tempt eating with a suppressed appetite.  It does seem unfair that people like you who have worked hard all their lives struggle to get help when they really need it. Perhaps tick the anxiety box, you would not be lying, Im sure everyone with cancer suffers with anxiety. 

Ed