Call the helpline 0808 800 4040 to talk to a nurse. Good luck. 

Hello bone cancer patient

I declined your request but are more than happy to chat on open forum. Hope you are keeping well.

Ed

Hi Navaraman,  sounds like you are more at the hospital than at home.  Sometimes it feels like that.  You are lucky you have a Maggies close by that you can go to.  We don't have one near here because I believe that they are fantastic support and help.  Glad your immunotherapy is going well.

Lee x

Shame you have nit got a maggies near you because they are brilliant . They help you alot give you advice plus they make a good coffee as well . We are going to see them on Tuesday afternoon to see if I can get any help finicially as my cancer is terminal . And yes I am at hospital more than at home . Seems 3 appoitments a week is par for the norm . Still if it holds those bloody tumors at bay its worth it 

Hi Navaraman, the benefit system can be complicated, good that you are getting help.  I worked for the DWP for 22 years and still find the system complicated.  I have incurable cancer too but still have a good life.

Lee x

Cheers why they make it so hard is to put people off I am sure . Crazy though 

Hello navaraman

Im glad the nurses are looking after you well. Maggies has a very good reputation sadly my nearest is over 100 miles away. At our hospital we are assigned a Mcmillan nurse who can offer support or put us in touch with other agencies and provide advice if we need it. 

Ed

That sounds good to Ed we got sppointment on tueday to see what help I can get money wise maybe rent rebate and council tax rebate etc . Cant get pension credit though becsuse our private pensions and state pensions put us over amounts . Still hopefully will get help have a good weekend and stay out midday sun especially tomorrow and Monday 

Hi Navaraman

Hope you can get some financial support sorted out, we pay taxes and NI all our lives so that we have some insurance if our circumstances change. I'm in a similar situation that I paid into a pension fund for 45 years and also have savings so not eligible. However I consider myself fortunate to be in a position where living with cancer is not also compounded with money worries. Looking like a hot week ahead and planning a trip to the coast for the cooler air, a swim, fish and chips and a beer or two. While my other half is looking forward to a cream tea. Drink plenty keep cool avoid midday sun UV is 7 this week or sunburn in 30 minutes.

Ed 

Hi Ed I know what you mean work all you life and get no help . Some people sit on their back sides dont work and get everything . Still I will keep out of sun today and keep hydrated as well enjoy seaside etc 

Hi Lee

Good for you to post about still living a good life with incurable cancer, it gives hope to the many people that will read this. With modern treatments our quality of life can be much improved and extended even though we all live with some form of incapacity. Keep cool, drink plenty avoid midday sun. Big hug

Ed

Cheers bud going to meet a few of my old school mates this morning we try and do it on a regular bases . Gosh its hot already got a kneck fan which helps plus a tall tower fan and also one in bedroom keep cutains drawn in bedroom as well plenty of fluids as well 

Cheers bud going to meet a few of my old school mates this morning we try and do it on a regular bases . Gosh its hot already got a kneck fan which helps plus a tall tower fan and also one in bedroom keep cutains drawn in bedroom as well plenty of fluids as well 

Its great to have kept in touch with your old school mates all these years and to still be meeting up. I still see a few of mine intermittently as we live a long way from each other and are no longer in prime health. I'm possibly the lucky one with cancer. While mates have dementia, COPD and on oxygen, heart problems and liver disease. Still we have all had very good lives, lived to the full and will be returned to our maker in very used condition. Have a great day and a good laugh.

Ed