Anyone under 30?

Hello guys my names Sophie. I’m 23 and got diagnosed with Bowel cancer just before my 22, was given the all clear and then rediagnosed before my 23. Gone through chemo, immunotherapy, radiotherapy, four surgeries, sepsis, shingles and a stroke and have had a full hysterectomy, my rectum, part of my bowel, bladder, and tailbone removed and the some of the nerves to my left leg cut. Now have two permanent stomas and along with not being able to walk properly, I will be disabled for the rest of my life. In the space of 6 months lost the only 2 friends I made on the cancer ward, I'm really lonely. I just want someone I can relate too and let's be honest that's hard to find when your my age. Sorry for the long paragraph but thanks if you have taken the time to read x

  • Hi Sophie, my name is Jodie. I got diagnosed with breast cancer age 24 and I've just recently turned 27, so just a little older than you. You've been through quite a journey, and I feel the same as you, not really anything to relate to when you're in your twenties. A little about me, I started with chemo, had a seizure after my first session, a cavernoma was discovered on my brain, after chemo then had a double mastectomy, then radiotherapy, every 4 weeks I have an injection to keep me in medical menopause as my tumour was estrogen positive and every six months I have a bone infusion as treatment I'm having can cause osteoporosis. It's super hard, and I feel incredibly alone. I'm tired, and it's hard knowing that no one around me will ever truly understand x

  • Jesus you've been through abit of a journey as well! And your so right that no one understands, it is an extremely lonely existence. After loosing the girls I wish I could just have someone to vent to, even if they don't understand it people try and they just shouldn't! They have no idea! X

  • I know this might not mean anything as obviously you don't know me at all, but I think there's a message thing in here? Feel free to vent to me, I lost a lot of my friends through this, I know what it's like to need to vent x 

  • Hello Sophie

    I’m much older than you but have had a total pelvic exenteration for a different cancer and live with 2 permanent stomas. I “met” a young girl in the same position as yourself with bowel cancer which recurred via a colostomy group on Facebook and we had our surgeries 3 days apart. She is a great advocate about bowel cancer in young people and posts a lot on social media about her story and treatment. I’m sure she would be someone you would like to know and she’s lovely! If you’d like me to let you know who she is, please feel free to send me a friend request and I will message you her details privately. It might be helpful for you to be in touch with someone who will know exactly what you are going through. I’m so sorry you have so much to deal with when you are so young. x

  • That would be amazing thank u! X

  • That would be great thanks, I just sent u a friend request x

  • Thanks Sophie-I have messaged you. x

  • Hello Sophie, I'm a little older (31) but I've been finding it hard to find people of a similar age too! When I've posted on some other forums the ones who've ended up contacting me have been the sons and daughters of people with cancer. 
     

    Reading what you've been through... all I can say is wow. I thought I'd had it rough, you must be a very strong person to have gone through all of that and come out the other side! 
     

    My situation is a little different so I definitely relate to you with the various treatments and chemo and all that. But not the ops. So I've had cystic fibrosis all of my life, dealing with that pretty well got on some new drugs last year which were a game changer for my lungs and got them upto a level close to a normal persons anyways this year April I got diagnosed with pancreatic cancer. Bang world upside down. Stage 4. Told me they can't operate as it's spread to stomach lining and won't improve prognosis and I'll only get palliative chemo. Greeeeat. 
     

    not gonna go into full vent mode here but yeah. That's   it pretty much. I know it's fairly different to yourself but it's rare to talk to others who are under 40! 
     

    James

  • God I'm so sorry about what your going through, if you ever want to vent feel free to message x