Hi.

Sorry you've been let down by uncaring helpers,as you say Macmillan spend ages asking for money but not helping people when they need it .

I'm on palative care, have been since Feb 1016, I've asked Macmillan 3times for support but they consider I don't kneed it because im looking after my disabled wife, she has Alzheimer's and Parkinson's so plenty of work for me.

We manage "just" especially when My meds are changed and dont know what im going to be like.

Hope you can get something sorted to help all your family , there is help out there its just finding it .

Hope others can give you some information what you need.

Best wishes.

Billy

Welcome to Cancer Chat OnelessAngel although I'm really sorry to read what has happened and on behalf of everyone who works on the moderation team I would like to offer you our sincerest and heartfelt condolences.

I can't begin to imagine how difficult this must be for you and your children at the moment, especially when you have not received the support you were hoping for, and should have received, at this time.

I know you've received a reply from one of our lovely regulars already but I have no doubt that many other members of our community will pop by when they can to offer their support and advice. 

In the meantime Child Bereavement UK and Grief Encounter are both charities who offer help and support to children and their families that are greiving the loss of a loved one. The latter even has a brand new helpline called Grief Talk that you can contact between the hours of 9a.m - 9p.m if you need/want to talk to someone about what you're going through. Cruse bereavement care provide grief counselling and offer support after the death of someone close as well.

I know it's not much but I really hope the resources I've provided are able to help you and your family on the tough road ahead.

Kind regards,

Steph, Cancer Chat Moderator

Hi [@Jolamine]‍  .

Didn't realize till you said, mind you sometimes I feel rather older than I am but not quite that old sometimes head is up in the clouds lately.

Hope everything is going well with you and lockdown isn't messing you around to much.

Love Billy xxxx

Dear OnelessAngel,

I really get what you're saying. It's so hard for you.

Please don't give up trying to find the help you need. And embrace all and anything you can.

My best friend died in a hospital accident some time ago, leaving two small children (3 and 4) and her husband. It was unbelievably hard for them all. And I had to watch him struggling, it was so hard.

Now, many years later, the family is thriving. Her children will always remember their mum, and they have asked me to fill in bits still. But it took time.

I'm glad you came on here.

Billy is brilliant, and Jolamine... and I'm not too bad either. We're here to listen.

Keep on keeping on. The future may well hold really good stuff for you all. And please ask for help anytime you need it!

Best wishes to you, 

Mary

Xxx

Oh, and, by the way.... Billy is very VERY old! :D

hello 

firstly sorry for your loss, when my step mum and dad were both dianosed with cancer, they had macmillion come round my dad was the most gentle placid man i have ever known and when i asked how the meeting had gone with them he said to me , im not having them in my house again they were condesending and not caring at all they were talking to us like we were 2 old stupid people ( dad was 68 at the time hardly old) ... 

he got in contact with Sue Ryder who then sent someone out who were amazing .. they helped me nurse dad at home for 7 weeks when his wife passed away until my dad passed away, they were only a call away and would be out within the hour if needed or send a nurse out within 30mins.. 

im not sayiong Macmillion are bad but i am saying if your not happy or dont like the nurse/doctor who would be responsible for your care look elsewhere, im so glad my dad went with his gut, my dad left Sue Ryder a gift in his will and ive just completed a 16mile memory walk raising money for them, i know if i called my dads cancer specialist from the hospice now for help or councelling it would be sorted within the week.. 

Lease 

When I was diagnosed with cancer back in march 2020, I was introduced to a Macmillan nurse who they explained would be there to help support me through my cancer journey, it all sounded good, they were going to help sort out the application for extra finances, said they would ring me. Since then I've heard nothing from them, I tryed ringing them once but phone numbers never worked.  I'm sure many others have had good experiences.