Dad passed away 3 weeks after being diagnosed

Hi,

My dad passed away on sunday following his disgnosis of gastric cancer 3 weeks ago. The cancer had spread to his liver and a number of other places by the time of diagnosis. Dad had always been known as the healthy one so it became a huge shock that he had cancer and that it had spread so much. We knew he wasn't well and he had severe back pain and was losing weight. Worst case scenario we thought it might be cancer of the spine and if that was the case it may be treatable, unfortunately this was not the case. He was still in good spirits and his aim was to come home and die in the comfort of his own home. He had refused treatment as the effects of the treatment were not worth extending his life by approximately 6 months or so. This was his choice and we supported that. The doctor did not give us an approximation of how long dad had left but he did say that the cancer was at an advanced stage. When Dad found out that he had cancer i witnessed him cry for the first time in my 33 years, this upset me a lot and it still does to this day. He always said he wasn't afraid of dieing but to see him cry told me otherwise. 2.5 weeks later we finally got my dad home, which we were happy with. The second day of him being back home, he began to be delirious and aggitated due to the pain. He was then put on a syringe driver. I didn't expect the syringe driver to sedate him so heavily so that he was unable to talk, eat or drink. The day before he had the driver fitted, he was sitting in his chair, chatting, laughing and being his normal self. From being like this to being technically paralised has effected me greatly. Euthensia is illegal in this country but by witnessing the effects of the driver, to me, it looks it's a slow inhumane way for my dad to see his last days. He ultimately died of dehydration which upsets me greatly as i watched him dehydrate and there was nothing i could do about it. I really wish there was a drug that could kill the pain but allow the patient to eat, drink and talk at the same time. I really hope this is something that is being worked on as i wouldn't wish anyone to witness what i witnessed. I stayed with him for 2 days and 2 nights before i broke as i could no longer mentally cope with seeing my dad slowly die, especially after seeing him upbeat 2 days prior to this. I said my final goodbye to him on saturday evening and he was making noises as if he could hear me, i really hope he could. I'd like to know other peoples thoughts on syringe drivers and the effects they have on the patients and their loved ones. To me, it begs the question as to whether euthanasia is a more humane way to die? Also, i'd be interested to hear about how people cope with the death of a loved one such as a father figure. I miss my dad so much already, he was my idol.

  • Hi Richard 

    Really good to hear from you. I was wondering how you were getting on. 

    So....since you were last here, I see there have been a few developments....you got through Christmas, learned about your friend losing a parent and scattered your Dad’s ashes. 

    I must say....my eyes filled with tears as I read your post. “I miss that man”....x 

    Glad to hear Christmas Day was a good one....it’s funny but my first Christmas without Mum was the same....I dreaded it for weeks but when it came it was actually quite a good day. I enjoyed it. Being surrounded by happy people helped you and so maybe you can do this regularly x 

    How did you feel about scattering your Dad’s ashes? I went to my Mum’s grave over Christmas....it does feel nice to be there, knowing she’s at peace in a place that she loves (very small village we grew up in, in a beautiful area and church yard). Your Dad enjoyed fishing then? Did you ever join him? I’ve never tried it myself but imagine I wouldn’t be much good at it! I bet it felt good to put him at rest in the place he wanted to be xx 

    Totally understand why you went under again after hearing the news of your friend losing their parent :( it is  upsetting when that happens...I struggled with how unpredictable grief was....one minute perfectly fine...the next with my coat over my head on the train so no one could see me crying! My experience is....this will settle down....you are getting stronger every day....getting upset isn’t a setback....these moments are a really important part of the process...x 

    Well it has been nice to see you here and I hope you come back soon to let us know how you’re getting on. 

    Take care

    Star xx 

  • Hi x

     

    Just had to comment my dad was diagnosed 28th December with osphegus cancer we got him home 31st as meeting with consultants was not taking place till today 

    The past week he has detiorated so bad can't keep anything down so sick up until 21sy December my dad was still going to work and everything 

    Anyway today we were told a feeding tube will try to be inserted to get him well enough to try 20 radiation only to ease the back pain and tumour then he will be brought home to try make him comfortable 

    Tonight he had driver put in on hospital even tho no one has says I know it's coming to the end I watched my gran pass away for over 2weeks when driver was put in this was only a year ago.

    I feel the driver does do something 

    I feel lost confused to how he has detiorated this last week xx

    Feel free to add and message me x

  • Hello again; glad you got through the Christmas period even though it must have been difficult for you at times.  I am an angler and can appreciate that a favourite fishing spot is a nice place to have ashes scattered.  Just wanted to say hello again and hope you will continue to post - if of course you want to - while you go through this difficult time.  Annie

  • Hi Richard. I’m really sorry you have lost your father. It is a horrible pain to lose a parent. I lost my mother last May, and it’s the worst thing I have ever been through.

    I also have mixed feelings about the syringe driver. It’s very difficult for us to see our parents go from being a person who is awake, able to communicate, eat, drink, etc. to being unconscious until death. 

    I know intellectually that doctors put patients on it so that they don’t feel pain. But in my mothers case, she wasn’t actually in pain. She had lung cancer and COPD. I’ve read that opiates are used to treat lung conditions for various reasons.

    During her final week of life, I saw signs that she might get a bit better. I thought we had weeks or months left with her. I had hopes of having her transferred from the hospital to a proper palliative care center where she could have the best quality of life that was possible. The best food, good company, music, sunlight. Everything. But the doctors said she wasn’t well enough to be transferred! Apparently they don’t have insurance to cover the transport of people in that condition. I don’t know. 

    So instead I had to go and see her in the hospital, where due to constant cuts in funding, she got the bare minimum of treatment.  They started sedating her more and more. Each time they said she would still be able to talk to me. But once the needle went in, she was out. Usually for the entire day. 

    Then they said they were going to put her on the syringe driver. For the pain, apparently. The pain she didn’t have. She never woke up. She was on the driver for two days. That’s it. I never got to say good bye. I honestly didn’t know she would be gone so fast. 

    Euthanasia is legal in Canada. My mother was eligible. The doctors told her about it, and she wanted it done. However, apparently it's quite a long process that takes at least two weeks. Lot's of meetings with doctors, nurses, family etc. It kind of feels like doctors just give them more opiates to make the death happen a little quicker. That's how it seemed to me. 

     

  • Hi, my mum died 1 week after her diagnosis of melanoma which had spread to her liver and various other places, (amazingly similar?!), and also I think that euthanasia is way more humane than slowly letting a cancer patient die in immense pain and discomfort. And like you, I found it so hard to sit with her on her last day, when prior to this she was upbeat and happy, our parent's symptoms were also eerily similar. Now, I try not to dwell on the fact that she isn't here physically or that I couldn't help her because all it does is make me upset, over the weeks that pass you will learn to what extent you are comfortable speaking about the raw truth of what has happened, and you will find the people you are entirely comfortable with discussing that with. Generally, I tend to talk about her like she is still here, if a topic vaguely related to her comes up, I find myself saying "oh mum was saying" or "mum explained" and that's what makes me happy, remembering her positively, what a beautiful person she was and how lovely she was to others. However other times it's SO normal to cry and cry and that's ok because you've lost someone who was the centre of your life, over time you will find a balance and the key here is time. I don't want to give a morbid outlook on the rest of your life but truth be told I don't think anyone ever fully heals from something like this, but now you have a choice, to let it make you or break you, improve on yourself and take lead from your dad. It's okay to grieve but it is just as okay to live your life better than you did before, with better values.

    i hope this helps,

    Lily xx

  • Hi Star.

    Thanks once again for your response. I'm overwhelmed by the responses. Sorry i haven't replied sooner, life's so busy at the moment, Dad always told me to slow down :).

    I'm glad you had a good christmas, people say it can be a difficult time after losing a loved one, but i think it should be an ocassion to celebrate the past memories of Christmas day with you family.

    Scattering Dad's ashe felt like a special moment, a peaceful moment. I pictured him smiling as it was what he wanted. Oh he was an avid fisherman, and a brilliant one at that. I spent a large part of my youth fishing with Dad, my attention turned to playing football as i got older but i still like the idea of going fishing now as it's very peaceful. We're arranging to go fishing with my brother and Dad's brothers in the summer in memory of Dad, that will be nice.

    The low moments are easing off now and i've signed up to the Birmingham Triathlon to raise money for tthe local hospice that looked after Dad and do great work providing care for the terminally ill. So i'm fully focused on training for that

    I totally relate to your unpredicatble grief. Small things trigger it. I'm getting stronger now.

    Thank you once again for your support, it means a lot

    Take Care

    Rich

  • Hi Lauren,

    I've sent you a friend request in order to message you. I can fully relate to what you are going through. It's still raw but i can say one thing. Talking to people helped me a lot and you're not alone.

  • Hi Annie!

    Thanks for your response. Yes, fishing was his true love. Being an angler yourself, i'm sure you can understand the love for the sport. He's at rest and happy now, and knowing that makes me happy and content. Losing my father has changed me forever, but i'll learn from it and become a better person. Thank you again for you thoughts.

    Rich

  • Hello there, 

    Your story has really struck a chord with me as a lot of what you and your mother went through is near identical to what we went through. My dad had gastric cancer and the treatment from the NHS throughout the process was sub-standard, but i suppose that conversation is for another day. My father paid National Insurance for all of his working life so the standard of treatment he got was deveststing to be totally honest. He was such a strong independant man before he went into hospital and to see him deteriorate like that was heart breaking.

    Yes, the syringe driver was given to him as he was in a lot of pain, but not constant pain. I'm still pretty certain that with the right medication, his life could have been prolonged. It's no good us dwelling on it i suppose as it doesn't help us. It just hurts that Dad went into hospital thinking he had a kidney infection and just a few weeks later he was gone. I really don't think he was ready to go. 

    Your last paragraph i also totally agree with. To be brutally honest, i think they put him on the syringe to speed up the process. But what do i know i suppose?

    All in all, it's happened now and theres nothing i can do to change that. All i can do is to honour my Dad by continuing to do him proud and move forward with me life.

    I hope you are doing ok and it has really helped me coming on here and relating to people like yourself.

    Thank you

  • Hi Rich 

    Really good to hear from you. I know the feeling re: life being too busy - hope you are finding the time to relax and have some space/you time :D

    Well, how is everything going and how have you been feeling lately? I note you’ve been feeling stronger - that is excellent. Time really is a great healer...and I was the same as you in that I found the low moments wore off gradually over the weeks and it wasn’t long before normal life resumed. It’s awful for life to continue without our loved ones...but at least we have some memories to take with us.

    And you sound like you have some lovely ones...fishing with your Dad. It’s such a nice idea for you and your brother and Uncles to honour your Dad by going fishing together. Do you take the fish home if you catch them or do you throw them back in? :D  I see an old fisherman out on my lunch break often (I live and work next to a quayside) and he likes to take his fish home to his wife <3 

    Goodness...a triathalon! Wow. Well I think that is a great idea. How is the training going?! I must say, to suffer such a loss and to go on to raise money to help others is just amazing. I think it’s good to have something to focus on...something to look forward to after a loss. The last thing I trained for was over two years ago now (tough mudder!)....now I am feeling inspired to go try something else! (Maybe not a triathalon though.....can’t imagine what you have to go through to train for that!) :D

    Well I wish you well with everything in your life - you are doing great. 

    Take good care and hope to hear from you again soon 

    S x x