Dad passed away 3 weeks after being diagnosed

Hi,

My dad passed away on sunday following his disgnosis of gastric cancer 3 weeks ago. The cancer had spread to his liver and a number of other places by the time of diagnosis. Dad had always been known as the healthy one so it became a huge shock that he had cancer and that it had spread so much. We knew he wasn't well and he had severe back pain and was losing weight. Worst case scenario we thought it might be cancer of the spine and if that was the case it may be treatable, unfortunately this was not the case. He was still in good spirits and his aim was to come home and die in the comfort of his own home. He had refused treatment as the effects of the treatment were not worth extending his life by approximately 6 months or so. This was his choice and we supported that. The doctor did not give us an approximation of how long dad had left but he did say that the cancer was at an advanced stage. When Dad found out that he had cancer i witnessed him cry for the first time in my 33 years, this upset me a lot and it still does to this day. He always said he wasn't afraid of dieing but to see him cry told me otherwise. 2.5 weeks later we finally got my dad home, which we were happy with. The second day of him being back home, he began to be delirious and aggitated due to the pain. He was then put on a syringe driver. I didn't expect the syringe driver to sedate him so heavily so that he was unable to talk, eat or drink. The day before he had the driver fitted, he was sitting in his chair, chatting, laughing and being his normal self. From being like this to being technically paralised has effected me greatly. Euthensia is illegal in this country but by witnessing the effects of the driver, to me, it looks it's a slow inhumane way for my dad to see his last days. He ultimately died of dehydration which upsets me greatly as i watched him dehydrate and there was nothing i could do about it. I really wish there was a drug that could kill the pain but allow the patient to eat, drink and talk at the same time. I really hope this is something that is being worked on as i wouldn't wish anyone to witness what i witnessed. I stayed with him for 2 days and 2 nights before i broke as i could no longer mentally cope with seeing my dad slowly die, especially after seeing him upbeat 2 days prior to this. I said my final goodbye to him on saturday evening and he was making noises as if he could hear me, i really hope he could. I'd like to know other peoples thoughts on syringe drivers and the effects they have on the patients and their loved ones. To me, it begs the question as to whether euthanasia is a more humane way to die? Also, i'd be interested to hear about how people cope with the death of a loved one such as a father figure. I miss my dad so much already, he was my idol.

Parents
  • Hello

    My lovely Mum was diagnosed with Stage 4 Pancreatic cancer on 2nd Jan 2018 and died on 31st Jan 2018, so very quick and very agressive. Mum had very few signs and symptoms other than indigestion like symptoms and back pain.  Mum wanted to die at home and we nursed Mum at home with the help of   McMillan and family GP. Mum was fitted with Syringe driver on the 19th Jan to which her response was " I can see this is going to be a bind"...Mum was very practical and felt the driver was an inconvenience but it was essential in managing the pain and also terminal agitation and anti- sickness. . Mum was still talking 48 hours before she passed, it was only really the last day that Mum was uncommunicative.  Mum did stop eating and drinking around 21st Jan which was the day she lost her ability to walk which was the final blow to Mum as she was a walker and could not accept that she could not walk to the bathroom!  It was such a painful experience watching our Mum fade away but we could not save her..only try to make her comfortable and we beleive the driver helped us on this journey.  

     

  • Hi [@Jenlou]‍ [@Bonnie70]‍ [@starcatone]‍ It's the early hours of christmas morning and i'm unable to sleep so i thought i'd come on here as it helps me to express myself.

    Dad's funeral was on the 6th of December and during the funeral and up until now, i have been surprisingly strong. Tonight it feels like it has hit me as hard as ever, i used to go and see him every christmas morning and it was just me and him, we'd have a chat toghether about life, he'd have a whisky and i'd have a beer. People around me have been brilliant but no-one can understand the feeling of losing a parent unless you have been through it yourself, it turns your life upside down. It really hits home when i have worries, i just want him to be here to talk to and he was a very straight down the line and wise man and when he advised me on life situations, it struck a chord and his words helped me a lot. I just wish he was still here to talk to. The line 'i'd give anyhting to have my father back' didn't truley resonate with me until i lost him, now i'd give up everything to talk to him one last time. I'm supposed to be have Christmas dinner with family & in-laws tomorrow (not from my Dads side) and i just feel like i want to be on my own all day as putting on a brave face infront of people just doesn't feel right. I'll be brave for Dad as that's what he would have insisted on me doing, family was everything to him.

    I hope you all have a peaceful Christmas day, remembering the good times with all the loved ones that are no longer with us. It's good to speak to people who have been in a similar situation and i'm sure you can all relate to the feelings i'm going through.

    Take care,

    Richard 

  • Hello Richard; just thought I would drop in and say hello.  I had been following your conversations with others here and was pleased you were getting some help.  This must be a very hard day for you; good on you for going to spend the day with family.  I am sure it won't be easy but whatever you do today it is going to be difficult - but it is good  you have family who care for you even if you are not really feeling up to it.   Not sure who will be able to get to post on this forum today so am just saying "Hi".  Annie

  • Hi Richard 

    so sorry I wasn’t around when you posted. 

    How are you feeling today? Did you manage to get through Christmas Day with your family and in laws? 

    Putting on a brave face is very difficult...I wonder if it’s worth considering not doing that...even if just for a bit. You’ve been through a terrible time and are grieving....so not being ok is completely acceptable. 

    I know you say your Dad would have wanted you to put on a brave face but...you describe him as a very wise and straight talking kind of guy (I love those kind of people!) - perhaps, being so wise and knowledgeable...he may have told you to go easy on yourself and not put pressure on yourself to pretend everything’s ok when it’s not xx 

    The way you describe your Christmas morning with your Dad really touched my heart xx There will come a time when you can remember that without it being so painful....wow.....what a gorgeous Christmas memory you have been left with xx that really is very special. 

    Well...only a few more days of December to go and then things will settle down again after the silly season. 

    I hope you’re doing OK. Please do come back here whenever you need a chat xx 

  • Hi [@Annieliz]‍ [@starcatone]‍ 

    I really appreciate your responses, thank you.

    Christmas day was strange but it wasn't sad. I was surrounded by a lot of happy people who helped me, It only really hits me when i stop and think about him. i am getting stronger by the day but i do have my moments. 

    Today, someone i know lost his mother, he has already lost his father and he is only my age (34). It bought it all back for me. Grief is so strange, one minute i'm getting on with life with a smile on my face and then all of a sudden it hits me. It was my birthday on Monday and soon as it struck midnight i instantly thought of Dad. I just still can't really believe he's not here. It so raw, i can picture him vivdly now sitting in his chair chatting to me. I miss that man. 

    We scattered his ashes on saturday at his favourite fishing spot on saturday and that was a special moment as that's where he wanted to be. 

    I hope you all had a lovely christmas. I'm also here if you guys need to let off some steam.

    Thank you

  • Hi Richard 

    Really good to hear from you. I was wondering how you were getting on. 

    So....since you were last here, I see there have been a few developments....you got through Christmas, learned about your friend losing a parent and scattered your Dad’s ashes. 

    I must say....my eyes filled with tears as I read your post. “I miss that man”....x 

    Glad to hear Christmas Day was a good one....it’s funny but my first Christmas without Mum was the same....I dreaded it for weeks but when it came it was actually quite a good day. I enjoyed it. Being surrounded by happy people helped you and so maybe you can do this regularly x 

    How did you feel about scattering your Dad’s ashes? I went to my Mum’s grave over Christmas....it does feel nice to be there, knowing she’s at peace in a place that she loves (very small village we grew up in, in a beautiful area and church yard). Your Dad enjoyed fishing then? Did you ever join him? I’ve never tried it myself but imagine I wouldn’t be much good at it! I bet it felt good to put him at rest in the place he wanted to be xx 

    Totally understand why you went under again after hearing the news of your friend losing their parent :( it is  upsetting when that happens...I struggled with how unpredictable grief was....one minute perfectly fine...the next with my coat over my head on the train so no one could see me crying! My experience is....this will settle down....you are getting stronger every day....getting upset isn’t a setback....these moments are a really important part of the process...x 

    Well it has been nice to see you here and I hope you come back soon to let us know how you’re getting on. 

    Take care

    Star xx 

  • Hello again; glad you got through the Christmas period even though it must have been difficult for you at times.  I am an angler and can appreciate that a favourite fishing spot is a nice place to have ashes scattered.  Just wanted to say hello again and hope you will continue to post - if of course you want to - while you go through this difficult time.  Annie

  • Hi Star.

    Thanks once again for your response. I'm overwhelmed by the responses. Sorry i haven't replied sooner, life's so busy at the moment, Dad always told me to slow down :).

    I'm glad you had a good christmas, people say it can be a difficult time after losing a loved one, but i think it should be an ocassion to celebrate the past memories of Christmas day with you family.

    Scattering Dad's ashe felt like a special moment, a peaceful moment. I pictured him smiling as it was what he wanted. Oh he was an avid fisherman, and a brilliant one at that. I spent a large part of my youth fishing with Dad, my attention turned to playing football as i got older but i still like the idea of going fishing now as it's very peaceful. We're arranging to go fishing with my brother and Dad's brothers in the summer in memory of Dad, that will be nice.

    The low moments are easing off now and i've signed up to the Birmingham Triathlon to raise money for tthe local hospice that looked after Dad and do great work providing care for the terminally ill. So i'm fully focused on training for that

    I totally relate to your unpredicatble grief. Small things trigger it. I'm getting stronger now.

    Thank you once again for your support, it means a lot

    Take Care

    Rich

Reply
  • Hi Star.

    Thanks once again for your response. I'm overwhelmed by the responses. Sorry i haven't replied sooner, life's so busy at the moment, Dad always told me to slow down :).

    I'm glad you had a good christmas, people say it can be a difficult time after losing a loved one, but i think it should be an ocassion to celebrate the past memories of Christmas day with you family.

    Scattering Dad's ashe felt like a special moment, a peaceful moment. I pictured him smiling as it was what he wanted. Oh he was an avid fisherman, and a brilliant one at that. I spent a large part of my youth fishing with Dad, my attention turned to playing football as i got older but i still like the idea of going fishing now as it's very peaceful. We're arranging to go fishing with my brother and Dad's brothers in the summer in memory of Dad, that will be nice.

    The low moments are easing off now and i've signed up to the Birmingham Triathlon to raise money for tthe local hospice that looked after Dad and do great work providing care for the terminally ill. So i'm fully focused on training for that

    I totally relate to your unpredicatble grief. Small things trigger it. I'm getting stronger now.

    Thank you once again for your support, it means a lot

    Take Care

    Rich

Children
  • Hi Rich 

    Really good to hear from you. I know the feeling re: life being too busy - hope you are finding the time to relax and have some space/you time :D

    Well, how is everything going and how have you been feeling lately? I note you’ve been feeling stronger - that is excellent. Time really is a great healer...and I was the same as you in that I found the low moments wore off gradually over the weeks and it wasn’t long before normal life resumed. It’s awful for life to continue without our loved ones...but at least we have some memories to take with us.

    And you sound like you have some lovely ones...fishing with your Dad. It’s such a nice idea for you and your brother and Uncles to honour your Dad by going fishing together. Do you take the fish home if you catch them or do you throw them back in? :D  I see an old fisherman out on my lunch break often (I live and work next to a quayside) and he likes to take his fish home to his wife <3 

    Goodness...a triathalon! Wow. Well I think that is a great idea. How is the training going?! I must say, to suffer such a loss and to go on to raise money to help others is just amazing. I think it’s good to have something to focus on...something to look forward to after a loss. The last thing I trained for was over two years ago now (tough mudder!)....now I am feeling inspired to go try something else! (Maybe not a triathalon though.....can’t imagine what you have to go through to train for that!) :D

    Well I wish you well with everything in your life - you are doing great. 

    Take good care and hope to hear from you again soon 

    S x x 

  • Hey [@starcatone]‍ !

    Late reply i know, i am learning to find some 'me' time and i'm valuing the importance of it. 

    So in general i have been feeling strong, sometimes i feel guilty about feeling strong but deep down i know Dad never wanted me to be sad and he did tell me to be 'more resillient' during his final days, and that's what i'm doing. The last couple of days i've felt emotional. I had a dream about him still being alive and today i listened to some of his favourite songs and that bought it all back. The emotions seem more controlled these days and i'm able to deal with them better but i haven't got to the stage yet where the happy memories are at the forefront of my mind. The images of him deteoriating are still raw and very vivid. 

    Dad used to take trout home during his younger years but he mostly fished for the fun of it all. He really did love it.

    Training is going good thank you, i've never been so motivated. You know when people talking about an event in their lives that changed their outlook on things forever? i think that's happening to me. I've always liked to keep fit but losing Dad has really made me want to push my boundaries. Tough mudder, is literally TOUGH! Well done! I think setting goals are good and it's healthy for the mind.

    So how are you doing? I hope life is treating you well.

    Rich

  • Hello there, Rich! 

    Great to hear from you! No problem - you can come here whenever you feel like it - it’s always nice to hear from you! 

    I get you when you say you’re feeling strong. This was also my experience and was...surprising to me. I remember being concerned that I was feeling strong after Mum died....I wondered if that was normal, if I should be crying more and started to feel guilty when I saw members of my Thai family (who didn’t see Mum often) in absolute pieces over her passing. I was like...well if they’re like that....why am I not? There must be something amiss here! 

    I now understand that this was completely normal and experienced by many other people who have lost loved ones. Some...like you and I...can respond like this. I worried that it might just all hit me at once - it didn’t. A friend also told me it would all hit me at her funeral which caused a lot of anxiety for me...but that didn’t happen either. 

    And so...please don’t worry about how you’re feeling - just go with it. And...certainly don’t have any guilt - like you say - your Dad wouldn’t want that. There is just no way he would want that. He would want you to be as you are now....and I would bet anything that he is exceptionally proud of you for being so strong and focused. 

    Like you, I also had wobbly moments. To be expected, of course. A dream....a favourite song (even though I’m out of the other end of grief, there is one of her favourite songs I can’t listen to still today...we put it on and danced together once...ouch)....a smell....anything can trigger off the memory and huge feeling of loss. This is all very recent and raw for you. And I know the memories of your Dad as he was deteriorating will be haunting....but my experience is that this very much wears off. I don’t think about my Mum being ill....well, no - a thought pops in to my head occasionally of her deteriorating....but that isn’t like a dagger to the heart like it used to be. Not at all. It causes some reaction...but nowhere near like the early days. 

    It will be like this for you too. You guys will be able to sit together and laugh and smile at the memories of your Dad without it hurting. 

    Hey so pleased your training is going well! Wow - yes I know what you mean about a life changing event that impacts on the way you will live your life forever! It’s really good for grief, exercise. I ran a lot after Mum died and that helped a great deal - really. I remember I had a day where I was angry at her dying (I rarely feel anger and so this was worrying for me). I have never run as well as I did on that day - a fair few miles at a really good pace and felt really good afterwards! 

    So how often are you training and what have you been doing? I went for a lovely walk yesterday - had to take shelter in a ditch the hailstones were so bad! Thankfully, it turned into a lovely day, sun and blue sky down the canal xx 

    Not good weather for fishing here today but a random, lovely thought just popped into my mind that it’s a gorgeous day and your Dad has found a lovely spot by the lake in heaven and is having a right good time too (he’ll throw the fish back in!) 

    take good care - lovely to hear from you - please do come back anytime! xxxxx

     

     

     

  • Hey there!

    How are you doing?

    As always, your post resonates with me. Just to let you know, you were right. The pain is always there but i'm beggining to deal with it better. Thank you for all your advice and kind words.

    Training is going great thank you. Have taken part in my first practice open water swims ready for the event in 4 weeks (16th June, Fathers Day).

    Your walk down the canal sounds great. I like canals, there's something peaceful about them and they contain a lot of history.

    I hope you're doing good :)