Dad passed away 3 weeks after being diagnosed

Hi,

My dad passed away on sunday following his disgnosis of gastric cancer 3 weeks ago. The cancer had spread to his liver and a number of other places by the time of diagnosis. Dad had always been known as the healthy one so it became a huge shock that he had cancer and that it had spread so much. We knew he wasn't well and he had severe back pain and was losing weight. Worst case scenario we thought it might be cancer of the spine and if that was the case it may be treatable, unfortunately this was not the case. He was still in good spirits and his aim was to come home and die in the comfort of his own home. He had refused treatment as the effects of the treatment were not worth extending his life by approximately 6 months or so. This was his choice and we supported that. The doctor did not give us an approximation of how long dad had left but he did say that the cancer was at an advanced stage. When Dad found out that he had cancer i witnessed him cry for the first time in my 33 years, this upset me a lot and it still does to this day. He always said he wasn't afraid of dieing but to see him cry told me otherwise. 2.5 weeks later we finally got my dad home, which we were happy with. The second day of him being back home, he began to be delirious and aggitated due to the pain. He was then put on a syringe driver. I didn't expect the syringe driver to sedate him so heavily so that he was unable to talk, eat or drink. The day before he had the driver fitted, he was sitting in his chair, chatting, laughing and being his normal self. From being like this to being technically paralised has effected me greatly. Euthensia is illegal in this country but by witnessing the effects of the driver, to me, it looks it's a slow inhumane way for my dad to see his last days. He ultimately died of dehydration which upsets me greatly as i watched him dehydrate and there was nothing i could do about it. I really wish there was a drug that could kill the pain but allow the patient to eat, drink and talk at the same time. I really hope this is something that is being worked on as i wouldn't wish anyone to witness what i witnessed. I stayed with him for 2 days and 2 nights before i broke as i could no longer mentally cope with seeing my dad slowly die, especially after seeing him upbeat 2 days prior to this. I said my final goodbye to him on saturday evening and he was making noises as if he could hear me, i really hope he could. I'd like to know other peoples thoughts on syringe drivers and the effects they have on the patients and their loved ones. To me, it begs the question as to whether euthanasia is a more humane way to die? Also, i'd be interested to hear about how people cope with the death of a loved one such as a father figure. I miss my dad so much already, he was my idol.

Parents
  • Hi Richard. I’m really sorry you have lost your father. It is a horrible pain to lose a parent. I lost my mother last May, and it’s the worst thing I have ever been through.

    I also have mixed feelings about the syringe driver. It’s very difficult for us to see our parents go from being a person who is awake, able to communicate, eat, drink, etc. to being unconscious until death. 

    I know intellectually that doctors put patients on it so that they don’t feel pain. But in my mothers case, she wasn’t actually in pain. She had lung cancer and COPD. I’ve read that opiates are used to treat lung conditions for various reasons.

    During her final week of life, I saw signs that she might get a bit better. I thought we had weeks or months left with her. I had hopes of having her transferred from the hospital to a proper palliative care center where she could have the best quality of life that was possible. The best food, good company, music, sunlight. Everything. But the doctors said she wasn’t well enough to be transferred! Apparently they don’t have insurance to cover the transport of people in that condition. I don’t know. 

    So instead I had to go and see her in the hospital, where due to constant cuts in funding, she got the bare minimum of treatment.  They started sedating her more and more. Each time they said she would still be able to talk to me. But once the needle went in, she was out. Usually for the entire day. 

    Then they said they were going to put her on the syringe driver. For the pain, apparently. The pain she didn’t have. She never woke up. She was on the driver for two days. That’s it. I never got to say good bye. I honestly didn’t know she would be gone so fast. 

    Euthanasia is legal in Canada. My mother was eligible. The doctors told her about it, and she wanted it done. However, apparently it's quite a long process that takes at least two weeks. Lot's of meetings with doctors, nurses, family etc. It kind of feels like doctors just give them more opiates to make the death happen a little quicker. That's how it seemed to me. 

     

  • Hello there, 

    Your story has really struck a chord with me as a lot of what you and your mother went through is near identical to what we went through. My dad had gastric cancer and the treatment from the NHS throughout the process was sub-standard, but i suppose that conversation is for another day. My father paid National Insurance for all of his working life so the standard of treatment he got was deveststing to be totally honest. He was such a strong independant man before he went into hospital and to see him deteriorate like that was heart breaking.

    Yes, the syringe driver was given to him as he was in a lot of pain, but not constant pain. I'm still pretty certain that with the right medication, his life could have been prolonged. It's no good us dwelling on it i suppose as it doesn't help us. It just hurts that Dad went into hospital thinking he had a kidney infection and just a few weeks later he was gone. I really don't think he was ready to go. 

    Your last paragraph i also totally agree with. To be brutally honest, i think they put him on the syringe to speed up the process. But what do i know i suppose?

    All in all, it's happened now and theres nothing i can do to change that. All i can do is to honour my Dad by continuing to do him proud and move forward with me life.

    I hope you are doing ok and it has really helped me coming on here and relating to people like yourself.

    Thank you

Reply
  • Hello there, 

    Your story has really struck a chord with me as a lot of what you and your mother went through is near identical to what we went through. My dad had gastric cancer and the treatment from the NHS throughout the process was sub-standard, but i suppose that conversation is for another day. My father paid National Insurance for all of his working life so the standard of treatment he got was deveststing to be totally honest. He was such a strong independant man before he went into hospital and to see him deteriorate like that was heart breaking.

    Yes, the syringe driver was given to him as he was in a lot of pain, but not constant pain. I'm still pretty certain that with the right medication, his life could have been prolonged. It's no good us dwelling on it i suppose as it doesn't help us. It just hurts that Dad went into hospital thinking he had a kidney infection and just a few weeks later he was gone. I really don't think he was ready to go. 

    Your last paragraph i also totally agree with. To be brutally honest, i think they put him on the syringe to speed up the process. But what do i know i suppose?

    All in all, it's happened now and theres nothing i can do to change that. All i can do is to honour my Dad by continuing to do him proud and move forward with me life.

    I hope you are doing ok and it has really helped me coming on here and relating to people like yourself.

    Thank you

Children
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