How do Carers keep going?

The last 2 years has been incredibly difficult for us as both my parents (whom live with us) have been diagnosed  with cancer.  Having done 2 years of operations and chemo with them ,my husband has been diagnosed with bowel cancer this week.

I'm beyond devastated but also so tired..it feels never ending and I  just don't know how to find the strength to support him. My mum starts chemo again on Monday and we are waiting for my husbands treatment plan...how do I do this? I work full time and am the family's main breadwinner. 

Anyone out there able to share how they get through the utter exhaustion?

  • Well - that sounds overwhelming. Not surprised you are asking for help. I have not had your experience, but I would say you have to find a way to get some time off from being carer-in-chief for the whole family, to do something for you, that's not cancer related. Do you run or swim? Are there people you can ask to be sitters for half an hour while you go out to a café with a friend? I have found caring for someone with cancer makes life very short term, but it's good to look up and see you have a half hour off planned, just for you, in a day or two's time, just so that each stage does not feel endless. Wishing you strength!

  • Thank you for taking the time to reply . Covid has certainly made the sitters idea impossible as my only brother lives over the border in England, but maybe going forward, that might be a possibility we live in a very friendly village.
    The real issue though is just lack of time...I work full time and get up at 6 - sort our animals and start work at 0730.then take my daughter to school before working through until 5 (unless we have hospital appointments or phone consutations- on those days my working hours are then extended to make up the time - most days I work after the evening meal for at least an hour or 2) when I then cook for everyone. Walking the dog gets me physically out of the house and I have very supportive friends who phone and zoom but I havent left the house to go out for something not hospital related since May 2019. By the time I have cleaned up after dinner, walked the dog, made up my work hours  and had a bath I am falling exhausted into bed- its like an emotionally draining ground hog day.
    Weekends are taken up with laundry and household chores.
    My daughter helps where she can -  but she is off to Uni in Sept and the weight of it all is just overwhelming.
    I know this reads as a long negative whinge but  I seem to have hit a mental block - my husband's diagnosis has really hit me for six.
    I feel like I just need a mental recharge but cant seem to find it anywhere.
     

  • Hi have you been in touch with Macmillan or Marie curie.

    ,One of them should be able to help ease your workload even if it is only now and again.

    Or carers coming so many times a day to get out of bed, wash or shower and meals and back into bed at night,if neaded.

    I'm a carer for my wife she has Alzheimer's and Parkinson's plus other problems.so its 24/7as well,if you can get in touch with (CARERS FIRST) you might get money off some things so it's easier and less stressful.

    Hope you can get something sorted soon.

    Take care.

    Billy

  • Thanks Billy,

    At the moment its not so much physical care - both Mum and Dad are able to do that for thems elves and my usband hasnt started his treatment yet. The current burden is more meotional - I am doing 3 sets of appointments/chemo appointments/consultations and also all the ringing round to organise blood tests/pic line flushes etc ; on top of a full time job and running a household of 5 which contains 3 sick adults.

    I was managing OK until my husbands diagnosis - its a mental thing I think- I just suddenly feel utterly over whelmed and emotionally barren - my mental get up and go has got up and gone!
    I obviously want to be there for my husband but sitting in the same office listening to the same team for the 3rd time I just want to put my head down and cry- it feels like I have used up all of my emotion and there is nothing left.
    I need to get back up and running as my husband needs me but there's just nothing left.

  • There is definitely practical help out there and it's worth asking for - just to get a gap of time where you can start to process things in your own head. (I know the feeling of willing children to sign up for after school clubs at the same time so I could have 30mins down time between work and picking them up - and that's without any cancer treatments going on.) 

    Someone else suggested contacting Macmillan. Other services vary by area, but it is key to contact your own GP and get yourself registered as carer for everyone else. They can signpost you to local services that will give you space to talk, or respite time. There are caring for carers services in my part of the country, including social prescribing, and your GP is the route in.

    Hope you find some space, so you can be there for your husband.