How do Carers keep going?

The last 2 years has been incredibly difficult for us as both my parents (whom live with us) have been diagnosed  with cancer.  Having done 2 years of operations and chemo with them ,my husband has been diagnosed with bowel cancer this week.

I'm beyond devastated but also so tired..it feels never ending and I  just don't know how to find the strength to support him. My mum starts chemo again on Monday and we are waiting for my husbands treatment plan...how do I do this? I work full time and am the family's main breadwinner. 

Anyone out there able to share how they get through the utter exhaustion?

Parents
  • Well - that sounds overwhelming. Not surprised you are asking for help. I have not had your experience, but I would say you have to find a way to get some time off from being carer-in-chief for the whole family, to do something for you, that's not cancer related. Do you run or swim? Are there people you can ask to be sitters for half an hour while you go out to a café with a friend? I have found caring for someone with cancer makes life very short term, but it's good to look up and see you have a half hour off planned, just for you, in a day or two's time, just so that each stage does not feel endless. Wishing you strength!

  • Thank you for taking the time to reply . Covid has certainly made the sitters idea impossible as my only brother lives over the border in England, but maybe going forward, that might be a possibility we live in a very friendly village.
    The real issue though is just lack of time...I work full time and get up at 6 - sort our animals and start work at 0730.then take my daughter to school before working through until 5 (unless we have hospital appointments or phone consutations- on those days my working hours are then extended to make up the time - most days I work after the evening meal for at least an hour or 2) when I then cook for everyone. Walking the dog gets me physically out of the house and I have very supportive friends who phone and zoom but I havent left the house to go out for something not hospital related since May 2019. By the time I have cleaned up after dinner, walked the dog, made up my work hours  and had a bath I am falling exhausted into bed- its like an emotionally draining ground hog day.
    Weekends are taken up with laundry and household chores.
    My daughter helps where she can -  but she is off to Uni in Sept and the weight of it all is just overwhelming.
    I know this reads as a long negative whinge but  I seem to have hit a mental block - my husband's diagnosis has really hit me for six.
    I feel like I just need a mental recharge but cant seem to find it anywhere.
     

Reply
  • Thank you for taking the time to reply . Covid has certainly made the sitters idea impossible as my only brother lives over the border in England, but maybe going forward, that might be a possibility we live in a very friendly village.
    The real issue though is just lack of time...I work full time and get up at 6 - sort our animals and start work at 0730.then take my daughter to school before working through until 5 (unless we have hospital appointments or phone consutations- on those days my working hours are then extended to make up the time - most days I work after the evening meal for at least an hour or 2) when I then cook for everyone. Walking the dog gets me physically out of the house and I have very supportive friends who phone and zoom but I havent left the house to go out for something not hospital related since May 2019. By the time I have cleaned up after dinner, walked the dog, made up my work hours  and had a bath I am falling exhausted into bed- its like an emotionally draining ground hog day.
    Weekends are taken up with laundry and household chores.
    My daughter helps where she can -  but she is off to Uni in Sept and the weight of it all is just overwhelming.
    I know this reads as a long negative whinge but  I seem to have hit a mental block - my husband's diagnosis has really hit me for six.
    I feel like I just need a mental recharge but cant seem to find it anywhere.
     

Children
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