Hi francesca, I was diagnosed prostate cancer Feb 2016 it had spread to lymph nodes, spine, ribs, pelvis and a lung, stage 4 gleason 8 psa 1581, t3b I can't remember other letters and numbers,, I'm uncurable, I'm on permanent hormone therapy and cemotheropy when needed I'm living a normal life,, apart from getting older aches and panes,, hope this helps,... Billy

P.s as I said I'm not curable we just live together an uninvited guest, 

Hi Billy,

Thank you so much for replying, this is very reassuring. How did you find the chemo, were you on docetaxel? How have the hormones been? Did you have radiation therapy? I like your idea of likening it to living with an uninvited guest, it makes it seem less frightening somehow. I'm looking forward to the first round of chemo being over and hoping we can go on holiday.

Best wishes,

Fran

Yes I had docetaxel I was supposed to have 10 sessions but they cut it to 6 as I was having problems with side effects,, with hormone therapy I've put on two stone and have to have meds to help with hot flushes otherwise I'm sweating day and night continuously, apart from that not bad,,.. The trouble with my cemo was I've got other medical condition, and nead permanent meds or I go into a coma which is what happened cemo stop meds working right,, oops, hope you get things sorted, best wishes.. Billy 

Hi Billy, I've added you as a friend as would love to send you a private message to discuss some more. Hope you are really well, best wishes, Fran x

Hi  Francesca...just  read  your  post  of 17th. SEPT 2019  and   wonder  if  I  may  text  you  as  in  similiar  situation  with  my  husband  who  was  recently  diagnosed  with  advanced  form  of  Prostatr  cancer  but  like  your  post  only  1  spot  on  bone  identified  on  bone  scan.would  appreciate  a  chat  via  text  with  you.

Cara20

Ann

Hi Ann,

Sorry to hear of your husband's diagnosis, it must be a frightening and overwhelming time and my heart goes out to you. I'm over the moon to say my husband has done remarkably well, 6 rounds of chemo and a stint of radiation later, he is stable and on 3 monthly Zoladex injections to keep everything under control, has a blood test every 3 months and a scan every year to keep an eye on things. His quality of life hasn't changed and he feels very well. Prostate cancer is thankfully one of the more treatable cancers and can be managed and kept under control. Feel free to send me a private message on here if you would like to discuss further.

Best wishes,

Fran x

Hi  Fran.  Thank  you  very  much  for  such  a  speedy  reply...really  appreciated it  very  much.  I   am  so  pleased  that  your  husband  is  so  well  and  getting  on  with  life..very  reassuring.   . Yes  I would  like  to  message  your  privately as  have a  few  more  questions  but  dont  know  how  to do  it!!. 

Best  wishes

ANNX

Hi Ann I've got advanced prostate cancer gone to lymph nodes spine ribs pelvis and a lung , diagnosed Feb 2016  , still here and kicking , getting usto living with my univited guest . My PSA was 1581 Gleason 8 , stage 4 T3B N1 M1B .

if i can help please reply , remember im not medically trained just experience .

Billy

Hi Ann I've got advanced prostate cancer gone to lymph nodes spine ribs pelvis and a lung , diagnosed Feb 2016  , still here and kicking , getting usto living with my univited guest . My PSA was 1581 Gleason 8 , stage 4 T3B N1 M1B .

if i can help please reply , remember im not medically trained just experience .

Billy