Stage 4 Prostate cancer - any positive stories welcome

Hi all,

Am new to this and unsure where to even start. Husband has had a stage 4 cancer diagnosis. Gleason score of 8, MRI suggested spread to some lymph nodes and bone scan initially clear. Subsequent PET scan has revealed a suspected spot in his lower spine. Feeling utterly terrified after some initial googling on survival rates. He has begun hormone therapy and will have chemo. Has anyone been through similar and defied the odds? Any advice on where to find clinical trials? Am grateful that it only seems to be in one small area of bone and hoping this means it can be stopped in it’s tracks? He is in general good health and not feeling unwell. 

 

Thank you so much for reading,

Fran

 

 

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  • Hi francesca, I was diagnosed prostate cancer Feb 2016 it had spread to lymph nodes, spine, ribs, pelvis and a lung, stage 4 gleason 8 psa 1581, t3b I can't remember other letters and numbers,, I'm uncurable, I'm on permanent hormone therapy and cemotheropy when needed I'm living a normal life,, apart from getting older aches and panes,, hope this helps,... Billy

    P.s as I said I'm not curable we just live together an uninvited guest, 

  • Hi Billy,

     

    Thank you so much for replying, this is very reassuring. How did you find the chemo, were you on docetaxel? How have the hormones been? Did you have radiation therapy? I like your idea of likening it to living with an uninvited guest, it makes it seem less frightening somehow. I'm looking forward to the first round of chemo being over and hoping we can go on holiday.

     

    Best wishes,

     

    Fran

  • Yes I had docetaxel I was supposed to have 10 sessions but they cut it to 6 as I was having problems with side effects,, with hormone therapy I've put on two stone and have to have meds to help with hot flushes otherwise I'm sweating day and night continuously, apart from that not bad,,.. The trouble with my cemo was I've got other medical condition, and nead permanent meds or I go into a coma which is what happened cemo stop meds working right,, oops, hope you get things sorted, best wishes.. Billy 

  • Hi Billy, I've added you as a friend as would love to send you a private message to discuss some more. Hope you are really well, best wishes, Fran x

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