Hiya ...

My dad he's been having hormone therapy every 3 months for nearly 3 years now but suddenly psa is rising again and unbearable pain on his left arm that stops him from doing anything! 

Do you have any advice please?

I appreciate your time!

Leila 

Exactly the same as me, i'm 27 and im stuggling to come to terms with his diagnosis :neutral:

Hi 

My husband is 54 and was diagnosed in March 2020 with advanced prostate cancer, he has been on hormone therapy since May 2020 last year and is just having radiotherapy, 20 sessions. I get worried because he is young, not sure what the future holds. If you can give me any advice about what I can expect,  I would really appreciate it. 

Thanks

I'm the same only me ... my dads psa was 12000 the 2000 now bk to 5500. He has had two units of blood 

He has had a palates transfusion along side blood .as he is severely anaemic very low 

They send him home with a respect form .

They haven't told me anything apart form take him home 

He is covered in blood spots all over his hands arms due to the cannula been removed.  The blood leaked in to his hand and its very swolen.  I don't know what to expect I suffer with autism and anxiety no one has told me anything 

Hi Billy 

Hope you and your wife are OK. No worries I understand.

Thank you so much for making time to reply. 

Best wishes 

Leila 

I am 73 and was told in 2015 I had prostrate cancer which as spead to my bone my psa was 965 I have hormone injections and I had come in 2015 my psa is less than 2 so at the moment I OK I hope  thing go the same way as me

That's good news David73, fingers crossed it keeps going well for you. Good to see there are positive stories to give us all that bit of extra hope!

I seem to have a similar story to many others on here - Dad diagnosed around the height of the Covid lockdowns when his usual routine suddenly stopped. He was fit and healthy in his late 70's until the dreaded C diagnosis. Other than the treatment days, he gets little to no support and sadly I'm a 2 hour drive away and struggle to be there for him regularly.

Metastised from prostate to bone in the legs and a now a tumour at the base of his spine. He's been having regular hormone injections (now doing his own at home), chemo and needs to go for radiotherapy on the spine tumour in a couple of weeks. He tries to keep positive, but has good days and bad as you'd expect.

The worst part for me is not knowing. I don't know whether my dad has been given a proper prognosis or if it's bad news and he isn't telling me. I just get snippets of info on the odd occasion I can get him to talk about it. I guess its his cancer though, so I need to respect his wishes if thats the case.

Darren.

I'm so sorry to hear about your dad. My dad is in the same situation, diagnosed a few years ago after pain in his hip, prostate cancer had metasized to his hip, leg and now spine. I completely understand your fears, I feel the same. I'm so scared of losing him and not having him around for those moments. He has had chemo, radiotherapy, now just hormone therapy to keep things stable. He lives abroad so it has been especially difficult not being able to see him through COVID-19. I hope you and your family are okay and hope your dad is doing okay. 

The NHS system keeps blaming covid. Covid will have killed far more people  through lack of treatment and diagnosis. Just had a pals response to my late step father who was being treated for bladder cancer. Many irregularities in their findings with notes and info I have. Last April my step father was supposed to have a resection to remove a recurrent tumour at grade 3 non muscle invasive . After 7 failed spinal anesthesia injections they put him to sleep and only did a biopsy of the tumour which would have been the same as his first diagnosis in 2019. Something went very wrong with this operation. My father told me it was a disaster. The surgeon who did the biopsy was certainly not as well trained as his first surgeon. In June 2021 I took my step father to A&E as he was complaining on back pain and sickness with some constipation. They had left the tumour in situ. In these two months following a mri scan he was told alone he had widespread metastatic disease on his spine. I have the mri scans and would love it if somebody medically trained would give a second opinion. Taking hime to A&E was probably the worst decision of my life I feel so guilty. Needless to say they offered him little hope slapping a dnr notice on him which we knew nothing about until his death. He was prescribed a cocktail  of medicines enough to kill of anybody inc morphine which he never really needed and refused to take. He was placed in a ward with no social distancing with other very ill patients. Aventually he was moved to a rehab centre where he was given a room of his own but went down hill from here on. He caught pneumonia on his hospital stay and died on 16th July from DVT and Pulmonary Embolism. The pals report stated he was given a drug to prevent that but I  found no mention of that drug in his medical notes. There only goal along with useless social services was to discharge him home with a hospital bed in lounge with a mo lift and 2 carers twice a day . They expected my 86 year old mother to cope with this when she had been so dependent on my father. The only positive thing was this nightmare never happened. The NHS really have written off frail patients over the last few years and I am sure I am not alone here with people who have suffered similar. I may now take my complaints to the parliamentary ombudsman as neglect of surgury and hospital care can not be allowed just because someone has a serious of life limiting illness. My father walked in to A&E and after 6 weeks in NHS care was unable to look after himself or get out of bed without mechanical assistance. 3 x Mri scans showed no interval changes on his spine and were only given to him on admission to A&E. It is my belief failure to perform the turbt caused his cancer to spread.