My Dad has advanced prostate cancer, metastatized to bone

Hello, 

I've come here because I'm not sure where else to go. I've just found out in the past week that my Dad has prostate cancer, which has metasised to his pubic bone. His PSA levels were extrremely high, 164, and his Gleason score is 10. He's 72, but you wouldn't think it. He is so fit and healthy and he only went to the doctors in the first place because he had a pain in his leg, which we now know is because it spread to his bone. I am an only child, I'm 26, I live near my parents and have been staying over since we find out. 

My Dad is mostly postive, he has started his hormone therapy and in July he will have 6 rounds of chemo. They can manage but they can't cure. They said it's really agressive cancer, but they can keep him going, but for how long? I can't bear to watch my Dad go through this pain, he's the kindest, sweetest most generous man. And my Mum, my Dad is my mums world, she just keeps asking me "how are we going to cope" - she's imagining herself all alone in this home they built together, and to be honest, so am I. I am trying to be strong and resume normality but this has changed everything. I thought my Dad would live to see me get married, go far in my career. I want him to be there, to watch me grow. I don't want him to leave Mum all alone. I don't have any siblings to share this with - my friends are supportive and my boyfriend too but, I just feel so hopeless. Would be reassured to hear of anyone else in the same boat.

Thank you

Parents
  • Hi you could say I'm in the same boat. Scores are a bit different when found my psa was1500 gleason 8 grade 4 lt had gone from prostate to lymph nodes, bones (pelvis, spine and ribs) and a lung. That was 2016 Feb, as your dad I have hormone therapy, cemotheropy 6 sessions I'm on hormones for life my psa January this year 0.8 it's been lower is rising slowly specialist wants to wait till gets to 20 then more kemo to take it down again. Remember I've been over 3 years now I've been fine. Good luck with your dads treatment.

    Billy

    P.s I've still got C in prostate nodes and bones. 

  • Hiya ...

     

    My dad he's been having hormone therapy every 3 months for nearly 3 years now but suddenly psa is rising again and unbearable pain on his left arm that stops him from doing anything! 

     

    Do you have any advice please?

     

    I appreciate your time!

     

    Leila 

Reply Children
  • Hi 

    My husband is 54 and was diagnosed in March 2020 with advanced prostate cancer, he has been on hormone therapy since May 2020 last year and is just having radiotherapy, 20 sessions. I get worried because he is young, not sure what the future holds. If you can give me any advice about what I can expect,  I would really appreciate it. 

    Thanks

  • Hi sorry for not replying sooner, been busy with my wife and her Altzimers and Parkinson's, she's had a few bad months,alot better now just looking through forum and noticed your post.

    Hopefully oncologist should blood test check and possibly change hormone therapy for something stronger,as has happened to me.

    His arm I'm afraid I don't know, but definitely get in touch with oncologist or at least doctor ,.

    Hope things are sorted now but if not please get things moving .

    Good luck with your father.

    Sorry again about missing post.

    Billy

  • Hi Billy 

    Hope you and your wife are OK. No worries I understand.

    Thank you so much for making time to reply. 

     

    Best wishes 

     

     

    Leila