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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

Parents
  • Good morning, Jules, Sorry to read in a post to Brian that you missed the appointment with the dietician. Did they leave any information leaflets for you and your hubby - they're not as good as a face to face, but most of the NHS literature I've been given about various aspects of care, have been fairly comprehensive. They have also had contact numbers on them so would you be able to get in touch with the dietary team? (Not sure about patient confidentiality!) I'm not surprised you had a tearful outburst. But as Brian says, it's nature's safety valve. You do an amazing job, Jules! Both in your real world and this virtual one! I hope you have a good weekend. The weather doesn't look too promising, so maybe stay in with that thriller of yours (and a well deserved 'naughty' treat!) Hugs to you, Jo xx p.s. Are you working today? If so, hope you're braced for Black Friday! Take care, xxxx
  • Hi Jo

    Do not work Fridays but helped with our 'Black Friday' set up as it began on Thursday lol.  Of course I will be in on Monday for the 'reversal' of the set up.  High Street certainly buzzing with lots of people but thankfully apart from some liquid gifts I am all sorted apart from writing cards .Working in retail means I don't fancy shopping after 5+ hrs on my feet!!  Do hopefully  have a day trip to Bath Christmas Market in a week's time (for the pure enjoyment of retail therapy!!) with my friend from work.

    Dietician (we saw one way back when hubby had chemo) bascically is recommending different protein shakes for hubby to try but may be giving me a call as well.  Following my frustrating blub air is clear indoors and hubby has been trying to eat a little (and more often) when he is awake. I cannot ask for more bless him - we both have things to learn from this journey and feel sure that will be ongoing and I may well have to give myself some serious talkings to along the way but we are in it together which is the most important factor at present.

    Thanks for your continued support - it all means a lot especially when those who use this community forum are going through enough themselves.  Have a good weekend and hope Paddy does not run you (your partner) ragged.  Take care, sending hugs  Jules x

  • Hi Jules,

    Glad you and Hubby had good nights out on Friday despite still not getting that win.  I have faith that it will happen as law of averages says it has to happen ---- eventually!  Your fish and chips reminds me of my Mum as she loves to have me bring some round for our tea when I go to Wales for a visit.  I have spoken to her more than usual this week as she has been pretty ill and hardly able to walk because of dizzyness.  It turns out she has Vertigo and has to keep herself as still as possible and take tablets until it passes which has no particular time limit although she says she feels quite a bit better today.  My sister has helped her with making her food and doing some chores around the house which has pleased me considering their volatile relationship.

    Work is still completely mad right now with a waterless swimming pool to contend with on top of everything else.  The floor of the pool is being raised which will take a month in total and cost around £30,000 to complete and an extra £60,000 or so in lost revenue.  All in the name of our two friends Health and Safety.

    Not much more to report here so I will say best of luck to you both with Hubbys blood test and appointment next week.

    Take care.

    Garf. xx

  • Hi Brian

    Love the 'birdies' photo. We have seen an increase in visitors to the feeders with the colder mornings (despite stalking cats!).

    It was good to read that your brother in law is coming to the end of his treatment, coping well and it will be everything crossed to some improvement to his condition. Despite what my hubby went through during his short stint on chemo I will be forever grateful for the extra time it has given us all and I can really relate to how Mrs B must  be feeling right now.

    Hubby's palliative nurse phoned yesterday (in response to my answerphone message) and said he had been too busy to come but has rearranged for next Tuesday so hopefully I will be  back from visiting Mum.  Hoping hubby can get to do 'bloods' today but has to wait in for dressings nurse first.  Never a dull moment!! Its definitely the 'sore place' that is causing him the  most discomfort at the moment only really relieved when he is horizontal though it has not got any worse.  His skin is so thin  that its proving harder to heal but they are doing their best for him and call regularly and are trying different dressings too.

    Well my chatting has once again moved time along and I must get ready for work (breakfast prepared for hubby so hope he manages it when he finishes dozing (he was up earlier than me today probably because he slept a lot yesterday).

    Sending peaceful thoughts.  Jules x

     

  • Hi Jules, not very impressed at your palliative care nurses response mmmmm but let's move on. It is good hubby still wants to and makes the effort to sleep upstairs. It is important that he does as much as he can as long as he can. Good on him. I am sorry to hear his sore is still there and causing discomfort. We used a dressing that stayed on for 7 days and seemed to work . The RDNS nurses were absolutely wonderful over here, cannot speak too highly of them. Had a great time with the kids and kid lets, only 13 days till I head back and spend a week over Christmas with them, then I will reduce my visits to maybe a long weekend once a month. I don't want to intrude too much into their life's although am made most welcome, it's their time as a family, not theirs plus one. Hope work was not too exhausting for you, the shop must be mobbed. Take care, big hugs Kathy xx
  • Morning Jules,

    I dont think you'll be doing much outside today if the weather here is anything to go by. My barometer has dropped way back since yesterday. A couple of weeks ago I gave one of my wood club member some friction polish as I dont use it and yesterday there was a knock on my door. He has given me a box load of exoctic / unusual homegrown timbers so will have to find something special to use them on.

    We had a punch and judy performer at our wood club. The lady carves the figures while the husband is the performer. Took a lot of our member back to our chilhood. My son has some days of his holiday left so is finishing work today until the 5th of January.

    While your hubby is sleeing so much, poor Mrs B has had several bad nights in a row and had very little sleep last night. I know this is something you mentioned you have problems with too. Garage is still nice and dry so it looks like sucess at long last. Came up with another idea for a short story last night while in bed. It's funny, I tend to do my best thinking late at night, with ideas for both stories and my woodturning. I suppose it's because there is no distractions like the TV.

    I hope you dont have to go shopping today or if you do I hope hubby feels well enought to take you. I do hope hubby's sore improves soon for this must be very painful for him. Our elderly neighbour had a suspected cancerous growth removed from her should several weeks ago but is only now starting to heal up. She says her skin is very thing and some of the dressing hace caused problems as a result.

    Take care Jules, I hope you have a peaceful weekend and are able to get to relax at some stage. Sending best wishes and kind thoughts, Brian

     

  • Hi Garf

    Feel for your Mum as vertigo very unpleasant sensation.  Dad used to take tablets for it and wait for effects to pass and then would be much calmer about it all.  Mum also takes a 'balance' tablet due to irregularity within her ears - both ailments were diagnosed many years ago but the medication certainly helped to contro.  Am sure she really appreciates you staying in touch regularly - its not easy when you live so far away.  My friend from work is in Hay on Wye this weekend doing the pre-Christmas catch up with mother in law and her own Dad - both in their eighties and still living independently (her Dad is the local Dial a Ride driver too).

    Hubby drove to get his blood test done yesterday and was  pretty tired on his return as he also picked up his 'pharmacy shopping' on the way back.  The pharmacist carried everything to the car and I unloaded it this end.  We are storing two different nutricious shakes (the newest one has been put on the menu by his dietician (smaller but packed with more goodness)) though  he is still finding difficult to get any enthusiasm for eating/drinking (and no doubt fed up with my reminders but its the only role I have other than to offer love and care).

    We now have district nurse and palliative care coming on same day (Tuesday) and I had a chat with district nurse - she rang whilst hubby was out to change appointment time and explained that different 'pressure relief options' had  been offered but been declined by hubby.  They are concerned as this is not helping to get 'ulcer sore' healing and this is what is making hubby feel extra low (which he has admitted to!)  We are hoping that over a few days for him to think about a 'pressure relief mattress' (he can have this downstairs) he will agree (they told me it will be here within 48hrs of his saying yes).  In the meantime I am encouraging him to spend more time laying on the sofa.

      Am keeping everything crossed for Tuesday - have a busy day.  Eldest grandson  has his Nativity so I am babysitting for an hr or so in order that our daughter can go and watch (little ones not able to attend this year).  Then we will dash to care home to visit Mum and then I  need to get back home to be here for nurses' visit.  This is so I can have training for how to dress hubby's back as we should be at our son's over Christmas and will miss one nurses' visit.

    Like yourself work is very busy now but I am not taking on increased hours (normally offer to help out a bit more at this time of year) as feel my place is at home as  much as possible (hubby does not want me to give up altogether and has consented to community nurses calling (according to his 'yellow folder'!).

    Well have nattered enough and tonight, as my friend has a weekend away, I am treating our daughter to a bingo night out (providing her husband can get away from work in time).

    Hope you taking care of yourself and finding the odd hour to relax with Mrs G.  Hugs   Jules x

  • Hi Kathy

    Glad you  had a lovely time with kids/grandkids and no long before you can go back and be with them over the festive season.  I am sure this will be an emotional time for you all and being together as a family will be good for you all.  I am definitely sure you will never be an imposition (naughty girl for thinking as much) as I know how  much our daughter enjoys extra pair of hands!

    If you see my response to Garf (long term mutual forum buddy) you can see what is going on with hubby and his situation.  His district nurses are being great in trying to help (he is turning out to be more stubborn than I could ever have imagined ha ha) and it will be an interesting group get together (palliative and GP team me and hubby) next Tuesday, followed by GP appointment late on Thursday (so I can get home from work in time to go too!) when we will have blood results and see what the next course of action may be.  Hubby slept in till past 11 today and has managed cereal as usual for his brunch.  Can only hope that he will feel able to make the most of the extra nutritional shakes we now have at home.  I feel I have to prompt him (I care too much not to) even though I am not sure if I am doing the right thing as there is not much of a response.  Suppose its natural to feel useless in current situation but not sure how else I should be reacting and just trying to do right thing for him.  Onwards and upwards eh!

    Hope you have a relaxing weekend back home (bet pet and garden glad to have you there!) and I am now off to  make my lunch.  Take care and sending hugs. Jules x

  • Hi Brian

    Its lovely that as Wood Club members you benefit from each other's thoughtfulness in swapping (this must be the grown up version of 'school swaps'.  I am sure you will come up with something wonderful to make the most of the different woods.  Your 'night thinking cap' is working overtime.

    Do hope Mrs B gets a better night's sleep soon as its really draining after a succession of poor nights.  My 'flushes' have died down a little and my nights, though short (I have  never been one to sleep much more than 5/6 hrs, just like my Mum!) are a little less disturbed.  If I do wake that's when I think too  much!  Enough said.

    Have updated hubby's situation in response to Garf so will  not repeat myself other than to say am keeping everything crossed that between his care team/GP/me and family we can keep him well enough to stay out of hospital (managed it so far on his journey through cancer). Its the back sore that has dragged him down understandably but am hopeful that we can talk him round as to accepting help offered.  He managed to get his bloods done at local hospital (drove himself too) even though district nurses will come in if asked.  Can fully understand he is trying to maintain some independence but is so much weaker with the weight loss  hitting hard.

    When you posted I was just walking back from the launderette and the rain had stopped and now its brightened up quite a bit.  Garden still far too wet to be doing anything in other than to make sure bird feeders stocked up (their table/feeders probably resemble someone's nut storage area but I have daffodil bulbs shooting!!!!!!!! and its pretty mild today.  As the weather forecast says fine and frosty start tomorrow plan to do the weekly shop early (will be back before hubby surfaces).  I am helping out friends by looking after their 11 yr old for a couple of hours tomorrow evening so they can have pre-Christmas meal with their friends around here (moved out to Bucks last year) and then have a lazy day planned for Sunday.  The in-laws move should begin  on Tuesday so hope the ferry will be running otherwise they will face logistical nightmare with removal vans (both professional and brother in laws) in limbo. As yet we have still not got their new address so hope they keep their phones switched on!

    Well have munched my way through lunch and  hubby is dozing having eaten his brunch so better go and do a bit of housework (could do with a gang of elves!).  Take care and hope you Mrs B and your neighbour have a peaceful and troublefree weekend.  Regards  Jules x

     

  • Hi Jules, thank u for your response, always lovely to get your messages. Pressure relieving mattresses are good, not so effective if used with kylies but after hubby had sore which healed eventually had no more thank goodness. Yes Xmas will be a time to be surrounded by love and family. Have been known to feel guilty to be enjoying spending time with kid lets when think hubby would have so much enjoyed it also but know there is no reason for me to feel like that. Not much fun being a nagging wife but it's what we have to do because we care. All we can do is our best with what life throws at us. I am sure hubby appreciates all you do and if roles were reversed he would be doing it for you. Mother in law still in hosp after hip replacement 2 weeks ago, has been moved to hospital closer to home, but doctor hasn't visited for a week now which I think this is disgraceful as she has questions.she is 88 but alert. She seems a bit depressed, would love to have a heart to heart with her and tell her how much her boy loved her but would end up a blubbering mess. Haven't had that conversation as yet maybe I should send her a letter instead. She has really gone downhill since hubby passed and giving us great concern for her wellbeing, has spoken to her hubby of going into a nursing home instead of going back home. She can get out of chair and get to loo ok, would be able to shower with assistance so don't know why she is still in hospital, normally after hip replacement as soon as you are mobile the hospitals chuck you out . She is on some heavy duty sleeping tablets which give her hallucinations overnight so does not give her a restful nights rest poor love. Pets enjoying me being home and garden looking good, picking cucumbers as plentiful and giving to neighbours as don't want to waste. So busy at the moment don't know when I had time to work!!ok Jules, heading off to bed soon, will be thinking of you next Tues Kathy, Xx
  • Hi Jules,

    By now you will hopefully be playing bingo with your daughter who is bound to bring you that bit of extra luck for a win. I will think about you on your busy day on Tuesday especially learning to dress hubbys back and visiting your Mum.  My Mum is a lot better now and she hoped to still go Christmas shopping today but I don't know yet if she was well enough as I have not long got home from work and visiting Pat who I used to work for.

    I am in for what should be a fully relaxing day tomorrow as Mrs G is off on a girls trip to London.  I am taking her to the train station for 8am and she won't be back until around 11pm so I will be home alone all day and evening.  I will have to try not to get myself into trouble!:p  She is then supposed to be going to Brighton for the full Christmas shop with the same crowd on Sunday but I have a sneaking suspicion they will be too tired for it so I may still be on "donkey duty" this year after all.>:)

    I was very pleased to see that McLaren had finally come to their senses and given Jenson a two year deal to stay with them. He is said to have taken a pay cut to stay and so will now be paid a measly eight million a year. Shame for him eh!;)  He is still my favourite and am thrilled he is staying around for another couple of years.

    Not much else to report here so I will sign off and just send hugs and best wishes your way.

    Garf. xx

  • Hi Jules, Will be thinking of you both tomorrow at the appointment. Hope all goes well for you. I do understand what you are going through , not much comfort though. I hope you are keeping up your strength and eating as best you can, your well being is very important also. Can dribble on about what's happening here but it's of small importance. Sending you big mobs of hugs, Kathy xx
Reply
  • Hi Jules, Will be thinking of you both tomorrow at the appointment. Hope all goes well for you. I do understand what you are going through , not much comfort though. I hope you are keeping up your strength and eating as best you can, your well being is very important also. Can dribble on about what's happening here but it's of small importance. Sending you big mobs of hugs, Kathy xx
Children
  • Hi Kathy,

    Thanks for your messages and support which are appreciated (though I wish it was not from first hand knowledge).  If you browse the reply to Garf above you will see where we are at (saves me repeating  myself ha ha).

    It was somewhat of a relief to know I am doing all the right things (apart from nagging him to eat when he does not really want it) and have been given lots of reassurance that they are at the end on the telephone anytime I need to talk to them.  We are very lucky to have excellent local services which I can reach by bus though hubby still not interested in support of 'club' run by local hospice as prefers his own company. No doubt he will 'get it in the ear again' when he has GP appointment on Thursday afternoon - fingers being kept crossed that this may be the last 'check up' prior to Christmas.

    Hope you are keeping well and will be thinking of you as am sure you are having your own emotional struggles whilst being so kind as to respond to 'like folk' on the forum.  As to my eating okay, this is my comfort (could probably do with cutting out naughty snacks though) which will no doubt come back to haunt me when I get on the scales (have avoided cholesterol check up as sure it will have gone up again  - oops).  Chat again soon.  Sending hugs  Jules x