Hi Jo

Do not work Fridays but helped with our 'Black Friday' set up as it began on Thursday lol.  Of course I will be in on Monday for the 'reversal' of the set up.  High Street certainly buzzing with lots of people but thankfully apart from some liquid gifts I am all sorted apart from writing cards .Working in retail means I don't fancy shopping after 5+ hrs on my feet!!  Do hopefully  have a day trip to Bath Christmas Market in a week's time (for the pure enjoyment of retail therapy!!) with my friend from work.

Dietician (we saw one way back when hubby had chemo) bascically is recommending different protein shakes for hubby to try but may be giving me a call as well.  Following my frustrating blub air is clear indoors and hubby has been trying to eat a little (and more often) when he is awake. I cannot ask for more bless him - we both have things to learn from this journey and feel sure that will be ongoing and I may well have to give myself some serious talkings to along the way but we are in it together which is the most important factor at present.

Thanks for your continued support - it all means a lot especially when those who use this community forum are going through enough themselves.  Have a good weekend and hope Paddy does not run you (your partner) ragged.  Take care, sending hugs  Jules x

Morning Brian

Hope all theappointments go well for Mrs B. Seems that everyone is 'managing appointments' as we approach the Christmas season and try keeping up to date with everything.  Had a very frustrating day yesterday as spent all day indoors waiting for palliative care nurse who was a 'no show'.  Tried his phone only to have a recorded message say if we left a message after 2 pm it would be following day before he caught up.  It was an appointment made by him as a routine follow up before he 'moved on' to pastures new so am not impressed.  Will see if he rings hubby today or we will have to contact his hospital support worker to see if there is someone taking over hubby's case notes.  Luckily we have appointment with GPnext week and before then district nurse for dressings and he also has to go for blood tests, hopefully today if he is up to it.  Yesterday he slept a fair bit again and this seems to come in waves.  He also did not fancy dinner so snacked on cake, shake and chocolate coins (I always buy too many!!!). 

The plus side to being at home all day was that I finished Christmas gift wrapping  so no time wasted!

Good news that its so far so good for the garage roof - long may it continue.  No rain here or frost this morning though a bit breezy when I popped outside to fill bird feeders.  Hubby's siblings are due to move next Tuesday so they will be hoping the wind drops otherwise they could be stuck as the ferry would not  be able to run (they had a couple cancelled during the summer months due to bad weather so must be on tenterhooks).

Had a phone call from Mum's care home yesterday as she has eye appointment today and they were checking we were ok for them to send her by cab with a carer.  This worked well the last time and its only just down the road from the home so that will be fine. She also had  examination from GP yesterday as had a few bowel issues but nothing untoward found so they will monitor. Still no response from Soc. Serv. despite written letter over 10 days ago and though I like to think the best of people am beginning to think they could do with brushing up their manners.  With Christmas season fast approaching I will 'build a case' and take it to our local MP in the New Year but really wish I did not have the added stress at the moment (I also know that hubby is 'worried for me' having to deal with this too as he told his GP about it).

Well had best turn my thoughts to housework before leaving and putting on my 'work head'.  Hope you and Mrs B have a peaceful day and 'carry on rambling' - it keeps my thread 'chatty' and I welcome your imput and kind words.  Sending hugs  Jules x

Good morning Jules,

Sorry to hear about "No Show" nurse. Very frustrating when they dont turn up. They should at least let you know. Same applies to the S/S brigade for you have enough to deal with without having to keep chasing them up. Brother in law and sister in law came to visit us last Saturday. He only has two more chemo sessions and then he is finnished and he has to wait to find out what if any difference it has made. Mrs B is feeling a little more at ease concerning him so pleased about this as she does understandably get stressed.

Hope appointmant with GP goes well and that hubby's sore heals up soon. Sorry to hear the home had to call doctor for your mother but glad nothing bad to worry about.

Yesterday we had five sparrows all sitting on our nieghbours fence. I managed to take a photo of them through the window but could only get three of them (Photo attached)

Well had better get on with my story writting as havent done any for the past few days.

Take care Jules, Hugs returned, Brian[[]]

Hi Jules,

Glad you and Hubby had good nights out on Friday despite still not getting that win.  I have faith that it will happen as law of averages says it has to happen ---- eventually!  Your fish and chips reminds me of my Mum as she loves to have me bring some round for our tea when I go to Wales for a visit.  I have spoken to her more than usual this week as she has been pretty ill and hardly able to walk because of dizzyness.  It turns out she has Vertigo and has to keep herself as still as possible and take tablets until it passes which has no particular time limit although she says she feels quite a bit better today.  My sister has helped her with making her food and doing some chores around the house which has pleased me considering their volatile relationship.

Work is still completely mad right now with a waterless swimming pool to contend with on top of everything else.  The floor of the pool is being raised which will take a month in total and cost around £30,000 to complete and an extra £60,000 or so in lost revenue.  All in the name of our two friends Health and Safety.

Not much more to report here so I will say best of luck to you both with Hubbys blood test and appointment next week.

Take care.

Garf. xx

Hi Brian

Love the 'birdies' photo. We have seen an increase in visitors to the feeders with the colder mornings (despite stalking cats!).

It was good to read that your brother in law is coming to the end of his treatment, coping well and it will be everything crossed to some improvement to his condition. Despite what my hubby went through during his short stint on chemo I will be forever grateful for the extra time it has given us all and I can really relate to how Mrs B must  be feeling right now.

Hubby's palliative nurse phoned yesterday (in response to my answerphone message) and said he had been too busy to come but has rearranged for next Tuesday so hopefully I will be  back from visiting Mum.  Hoping hubby can get to do 'bloods' today but has to wait in for dressings nurse first.  Never a dull moment!! Its definitely the 'sore place' that is causing him the  most discomfort at the moment only really relieved when he is horizontal though it has not got any worse.  His skin is so thin  that its proving harder to heal but they are doing their best for him and call regularly and are trying different dressings too.

Well my chatting has once again moved time along and I must get ready for work (breakfast prepared for hubby so hope he manages it when he finishes dozing (he was up earlier than me today probably because he slept a lot yesterday).

Sending peaceful thoughts.  Jules x

Morning Jules,

I dont think you'll be doing much outside today if the weather here is anything to go by. My barometer has dropped way back since yesterday. A couple of weeks ago I gave one of my wood club member some friction polish as I dont use it and yesterday there was a knock on my door. He has given me a box load of exoctic / unusual homegrown timbers so will have to find something special to use them on.

We had a punch and judy performer at our wood club. The lady carves the figures while the husband is the performer. Took a lot of our member back to our chilhood. My son has some days of his holiday left so is finishing work today until the 5th of January.

While your hubby is sleeing so much, poor Mrs B has had several bad nights in a row and had very little sleep last night. I know this is something you mentioned you have problems with too. Garage is still nice and dry so it looks like sucess at long last. Came up with another idea for a short story last night while in bed. It's funny, I tend to do my best thinking late at night, with ideas for both stories and my woodturning. I suppose it's because there is no distractions like the TV.

I hope you dont have to go shopping today or if you do I hope hubby feels well enought to take you. I do hope hubby's sore improves soon for this must be very painful for him. Our elderly neighbour had a suspected cancerous growth removed from her should several weeks ago but is only now starting to heal up. She says her skin is very thing and some of the dressing hace caused problems as a result.

Take care Jules, I hope you have a peaceful weekend and are able to get to relax at some stage. Sending best wishes and kind thoughts, Brian

Hi Garf

Feel for your Mum as vertigo very unpleasant sensation.  Dad used to take tablets for it and wait for effects to pass and then would be much calmer about it all.  Mum also takes a 'balance' tablet due to irregularity within her ears - both ailments were diagnosed many years ago but the medication certainly helped to contro.  Am sure she really appreciates you staying in touch regularly - its not easy when you live so far away.  My friend from work is in Hay on Wye this weekend doing the pre-Christmas catch up with mother in law and her own Dad - both in their eighties and still living independently (her Dad is the local Dial a Ride driver too).

Hubby drove to get his blood test done yesterday and was  pretty tired on his return as he also picked up his 'pharmacy shopping' on the way back.  The pharmacist carried everything to the car and I unloaded it this end.  We are storing two different nutricious shakes (the newest one has been put on the menu by his dietician (smaller but packed with more goodness)) though  he is still finding difficult to get any enthusiasm for eating/drinking (and no doubt fed up with my reminders but its the only role I have other than to offer love and care).

We now have district nurse and palliative care coming on same day (Tuesday) and I had a chat with district nurse - she rang whilst hubby was out to change appointment time and explained that different 'pressure relief options' had  been offered but been declined by hubby.  They are concerned as this is not helping to get 'ulcer sore' healing and this is what is making hubby feel extra low (which he has admitted to!)  We are hoping that over a few days for him to think about a 'pressure relief mattress' (he can have this downstairs) he will agree (they told me it will be here within 48hrs of his saying yes).  In the meantime I am encouraging him to spend more time laying on the sofa.

  Am keeping everything crossed for Tuesday - have a busy day.  Eldest grandson  has his Nativity so I am babysitting for an hr or so in order that our daughter can go and watch (little ones not able to attend this year).  Then we will dash to care home to visit Mum and then I  need to get back home to be here for nurses' visit.  This is so I can have training for how to dress hubby's back as we should be at our son's over Christmas and will miss one nurses' visit.

Like yourself work is very busy now but I am not taking on increased hours (normally offer to help out a bit more at this time of year) as feel my place is at home as  much as possible (hubby does not want me to give up altogether and has consented to community nurses calling (according to his 'yellow folder'!).

Well have nattered enough and tonight, as my friend has a weekend away, I am treating our daughter to a bingo night out (providing her husband can get away from work in time).

Hope you taking care of yourself and finding the odd hour to relax with Mrs G.  Hugs   Jules x

Hi Kathy

Glad you  had a lovely time with kids/grandkids and no long before you can go back and be with them over the festive season.  I am sure this will be an emotional time for you all and being together as a family will be good for you all.  I am definitely sure you will never be an imposition (naughty girl for thinking as much) as I know how  much our daughter enjoys extra pair of hands!

If you see my response to Garf (long term mutual forum buddy) you can see what is going on with hubby and his situation.  His district nurses are being great in trying to help (he is turning out to be more stubborn than I could ever have imagined ha ha) and it will be an interesting group get together (palliative and GP team me and hubby) next Tuesday, followed by GP appointment late on Thursday (so I can get home from work in time to go too!) when we will have blood results and see what the next course of action may be.  Hubby slept in till past 11 today and has managed cereal as usual for his brunch.  Can only hope that he will feel able to make the most of the extra nutritional shakes we now have at home.  I feel I have to prompt him (I care too much not to) even though I am not sure if I am doing the right thing as there is not much of a response.  Suppose its natural to feel useless in current situation but not sure how else I should be reacting and just trying to do right thing for him.  Onwards and upwards eh!

Hope you have a relaxing weekend back home (bet pet and garden glad to have you there!) and I am now off to  make my lunch.  Take care and sending hugs. Jules x

Hi Brian

Its lovely that as Wood Club members you benefit from each other's thoughtfulness in swapping (this must be the grown up version of 'school swaps'.  I am sure you will come up with something wonderful to make the most of the different woods.  Your 'night thinking cap' is working overtime.

Do hope Mrs B gets a better night's sleep soon as its really draining after a succession of poor nights.  My 'flushes' have died down a little and my nights, though short (I have  never been one to sleep much more than 5/6 hrs, just like my Mum!) are a little less disturbed.  If I do wake that's when I think too  much!  Enough said.

Have updated hubby's situation in response to Garf so will  not repeat myself other than to say am keeping everything crossed that between his care team/GP/me and family we can keep him well enough to stay out of hospital (managed it so far on his journey through cancer). Its the back sore that has dragged him down understandably but am hopeful that we can talk him round as to accepting help offered.  He managed to get his bloods done at local hospital (drove himself too) even though district nurses will come in if asked.  Can fully understand he is trying to maintain some independence but is so much weaker with the weight loss  hitting hard.

When you posted I was just walking back from the launderette and the rain had stopped and now its brightened up quite a bit.  Garden still far too wet to be doing anything in other than to make sure bird feeders stocked up (their table/feeders probably resemble someone's nut storage area but I have daffodil bulbs shooting!!!!!!!! and its pretty mild today.  As the weather forecast says fine and frosty start tomorrow plan to do the weekly shop early (will be back before hubby surfaces).  I am helping out friends by looking after their 11 yr old for a couple of hours tomorrow evening so they can have pre-Christmas meal with their friends around here (moved out to Bucks last year) and then have a lazy day planned for Sunday.  The in-laws move should begin  on Tuesday so hope the ferry will be running otherwise they will face logistical nightmare with removal vans (both professional and brother in laws) in limbo. As yet we have still not got their new address so hope they keep their phones switched on!

Well have munched my way through lunch and  hubby is dozing having eaten his brunch so better go and do a bit of housework (could do with a gang of elves!).  Take care and hope you Mrs B and your neighbour have a peaceful and troublefree weekend.  Regards  Jules x