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Continuing the journey

Hi All

Decided to drop the 'month' from the title of this thread as time moves so quickly and the date becomes irrevelant so quickly.

Hubby and I both feeling pretty drained today but not because of his illness. However it is something that has made both us further stressed and 'outside our control'.  Prepare yourselves for a rant or look away now.

Having put in a long work day yesterday (both of us). I switched on my mobile on leaving work to find a message from the social worker for Mum (regular readers of my thread will know what we have been going through recently).  The upshott of this message was that the Social Services panel have decided that they can offer Mum a place at a sheltered housing complex but not the most local one. The call was to advise me of the panel's decision and to tell me that a visit will be arranged this week, preferably by Wednesday, for Mum to be taken to visit the flat and be told about the package of care and how it will work. They require a decision from Mrs K (this is how my mother is addressed in the follow up e-mail!!) by Friday otherwise the placement will be offered to another service provider!  Unfortunately this means Mum has little choice but to move further away (closest sheltered housing has no vacancy and they are  not willing to help fund where she has spent the last 9 months 'settling in').  The guilt I feel at being unable to cope with this is overwhelming, my hubby is very supportive and angry in equal parts and I am dreading the days ahead.  I am unable to take leave and my negative feelings towards her social worker would not work in Mum's favour as she needs to go on the visit with an open mind and the care home staff state she is quite able to make her own mind up.  If she agrees I will be unable to visit as regularly (my problem not theirs of course) but apparently the social worker will accompany her and I have asked to be kept informed.

Even typing this is making me sad/angry/frustrated and emotionally/physically drained.  I was due to visit Mum today but this is on hold until I have spoken to the care home this morning. Hubby says I should leave it till later in the week when we know what is going on and I suspect he is right (bearing in mind my physical upset involves many 'loo' visits (enough said!!)).

Sorry for all the negativity but just needed to get it out and try and get  myself together before I start on the phone calls.

Hope everyone has a good day.  Regards Julesxx

  • Hi again Jules,

    Just wanted to say that I hope all goes well with your grandson at A&E.  Bad nosebleeds can be very frightening and somehow seem to affect little ones as they grow (mine used to get them), but wise to get checked out following a knock.  Please let us know how he is and hope the rest of your weekend will be peaceful as you remember your friend with fondness.  Hope x

  • Hi Jules

    So sorry to hear about your friend passing but as you say at least you had the chance of a final goodbye.

    Sorry I have not responded sooner but was in hopsital.  Went on Tuesday for the usual and they were not very happy.  Sent me home on the basis I would good back next day for a further blood test.  This came back to say I might have an infection.  After the on call doctor saying I could go home with oral antibitoics my own consultant returned to the hospital after a meeting and said no I had to be admitted.  After some messing about I finally got admitted on to a Medical Assessment Ward (no other beds) and was finally transferred very late on Thursday to the Cancer Ward. Have felt absolutely fine all the time but Consultant said there was obviously something because the infection marker was up and I was already on the normal antibiotics. He wanted me to stay until Monday but we agreed that I could come home today and go back the hospital twice later on today and three times tomorrow for the final doses of IV antibtiotics. 

    It is so annoying because I had finished the full chemo and expected things to just get better and better.  That said it might have been because I have been doing a lot more recently. 

    Do hope you Mum and hubby are well.

    Gill

  • Morning Jules,

    So sorry to read of the passing of your long term friend.

    Am glad it was peaceful and you managed that last visit.

    You will miss her and as you say passing her home on the way to work will be strange from now on.

    However you can look back and be thankful for such a wonderful and long friendship that you had. It was clearly special.

    I am sure she appreciated you as you have her.

    Sorry to hear of your grandsons knock and nose bleed, hope you hear all is well soon.

    And yes your othergrandson Zack is about 7 months, ava will be 8 months next Tuesday. Where does the time go???

    My daughter keeps asking me that.

    Look after yourself jules,

    Speak soon

    hugs

    Annabel. xx

  • Hi Gill

    So sorry to hear you have been 'going through the mill' and do hope the treatment you are now receiving will knock the infection on the head. Its obviously for the best that you were admiited,assessed and treated and hope  you will be looking after yourself at home - no naughty extra bits of housework.  Expect you are finding it very frustrating after things were going so will but hopefully a 'little blip' and then back on the full recovery route (albeit at a slower pace perhaps).

    Hubby had a nice social night out last night and is plodding on.  Mum is much the same.  I spoke this morning to her younger sister (84) and they really are 'chalk and cheese' but was so good to have a bright voice on the phone interested in life in general - lifted my spirits I can tell you.

    Thanks for your kind words and do hope you will be feeling a lot better soon.  Sending hugs Jules x

  • Thanks Annabel and responding to everyone in one go (again!) - Grandson has been given ok - no broken bones but going to have one helluva bruise and they have to keep him quiet and a close eye as usual after a bang.  On their way back home . Think the adults were more on edge as daughter says he is taking it all in his stride and am sure they will have their work cut out keeping him still.

    Lovely and sunny here now and if the showers stay away (last one a couple of hours ago) I will try and mow the lawn.  Cleaning has come into its own as feel the need to keep occupied. Hubby has slept most of the morning away and my friend's death has caused a lot of emotion within our own family - a natural knock on effect I think.  Had hoped to keep the 'Brianitus' at bay but feeling the need of some comforting food and 'raw carrots in the fridge' just not that appealing.  My 'bingo buddy' started the ball rolling yesterday evening with a large glass of white wine (and there was I expecting a cuppa tea!!).

    Hope everyone has a good weekend.  Your ongoing support,especially as you all have your own worries, so much appreciated.  Jules xx

  • Hi Jules

    The really annoying thing was that I felt fine all the time.  It was only the blood results and that my temperature was high (38.1) that indicated there might be something,  Just got really bored in hospital as no mobile signal - tried texting husband and daughter and then had to go wandering round the ward and holding the phone out of the window in the hope of getting a signal.  Worked a couple of times but after that nothing at all.  Just sat and read most of the time.  Thank god for kindle.

    Gill

  • Hello Jules I am so sorry for the loss of your friend  my thoughts are with you and her family at this sad time x Susananne

  • Thanks Susananne, your kind words are much appreciated.

    Hope your son and girlfriend enjoyed their night out at the cinema and you got plenty of opportune cuddles with James.  Wishing you a good weekend.Hugs.Jules x

  • Hi Gill

    Hope return visits to the hospital today have gone okay.  Can 'read' the frustration in your posts but good that they picked it up and were able to act quickly which hopefully will nip the infection in the bud.  Nothing more annoying than being out of contact when you so much feel the need for a comforting voice on the end of the line.  Does make you wonder how we ever managed before the introduction of the 'net' and mobiles and sometimes had to be patient for days (we did not even have a home landline for years!!) and in my teenage years (okay that was  in ancient times) my then boyfriend - now hubby) used to walk the family dog to the 'red box' at the end of his road to contact me once a week!!  Okay so now I am feeling my age!!

    Hope the rest of your weekend passes peacefully and the drugs do the trick.  Jules xx

  • Hi Jules,

    It's dry here but not very warm so have put off going out to do some more woodturning. More owls on the production line but this lot will be the mark two versions and will have the wooden eyed in them and I have also figured out a way to carve their beaks quite quickly.

    I spoke to my sister in Canada last night and she told me dad is very weak. Hi tires very easily and still has the infection in his hip which they have to keep draining. She is pretty sure he wont be coming home and that she doesn't think he has long left. I now have a phone number to call him but have to phone after 7.45  p.m. their time and as we are 7 hours in front will mean a late night call but it may be my last chance to talk to him.

    How are you feeling today? As I was saying to Garf on another thread, emotions are a powerful force and until thing happens, either good or bad,  we tend to underate the affect they have on us and how they make us feel and how they affect our moods. It's good how some people come into our lives and bring happiness to us and how they tend to enrich our lives. The problem is they leave a big hole in our live when they pass. Glad your grandson was okay and is feeling better today and hope that the bruise is not that bad.

    Brianitus is not causing me a problem today, but only because I have run out of nuts to munch. That is a national disaster and something I will rectify shortly. I love the good sense of humour you exhibit on here Jules on your posts. Sorry you cant get out into the garden today or read your book out there today.

    At our exhibition last weekend, there is a book I have written about someone called Vestar who is a Viking warrior. This woman asked me who Vestar was and when I told her, her husband said "We are from Scandinavia. I thought I recognised him, he is one of my ancestors".

    Anyway, take care Jules, sending best wishes to you and all your family, big hugs, Brian.