Hi Levante, hope your ok. It's very overwhelming and mentally exhausting. I found writing a diary each night helped me. I would jot down everything that had happened during the day including my thoughts and feelings and just how Dad was doing in general. I hope you dont mind me asking what your situation is as for me, this was my 67 year old Dad however I've come to realise this type of leukemia is common in children which I didnt realise until recently.
Ah ok bless your Dad.My son was diagnosed in April 2024. My son is 19 he will be 20 in November this year.He was off work one week with what we though was an influenza,like s bad fly.Temperature cough and generally unwell.Towards the end of the week he started feeling dizzy. and his gear beat was racing.My husband his dad took him to urgent care on the Saturday to get him antibiotics as we thiugh he had pneumonia or something as he was coughing with bringing up flem too The urgent care said that his heart his pulse was racing and that his dizziness and blurred vision,there was no antibiotics for these symptoms. They said go to a and e to get blood work done.Honestly soon as hy husband and him got to a and e they soon detected the blood work was hay wire.then severe anemia and then they saw leukemic cells..my life had been a roller coaster ever since.This is a beast of a disease x
My son was diagnosed with ALL when he was 6. He’s now 38 ; has served in Afghanistan as an Infantry Officer and is happily married with a 2 year old son. it was such a shock when he was diagnosed and back then there were 3 different treatments and so we found ourselves hoping that his type of treatment was the right one. Thankfully it was and he went into remission very quickly. It’s still a very difficult time to think about but the support and dedication of the oncologists and nurses was brilliant. Medication is so much more advanced now . I wish your granddaughter every good wish and hope she also goes into remission soon. It took our son ten years to get the all clear but he did live a normal life in between treatments.
He was initially diagnosed with mumps but he wasn’t getting better. Very lethargic and vomiting a lot. He went from a lively little boy to one that slept all day. It took a bone marrow biopsy to determine what it was. I spoke to a lot of parents then who all said the same thing . Parents know instinctively when their child is really poorly . always available to chat xxxx
