I've just found out my mum's cancer will be terminal.

My mum is only in her early 50's and is the strongest and most selfless person I know. In January she went in for a simple hysterectomy after being assured her bleeding was a result of the menopause and definitely was not cancer.

When they did the surgery, the found a cancerous tumour and removed as much of it as they could. A month or so later, we found out she also had another primary cancer - in her bowel. She had aggressive chemo and immunotherapy and we were told the prognosis was positive although it would be a long road ahead. Fast forward 9 months and my poor mum has had several hospital admissions due to sepsis and immune mediated colitis as a result of the chemo destroying her immune system. A few days ago, we were told she only had a couple of months to live. The next day they told us that perhaps they were wrong and she had much longer. Yesterday they told us they have found shadows in her liver and it was be that the cancer has spread.

I am so confused and broken. The information we are getting keeps changing and I feel so lost and helpless. Up until a few days ago, I knew my mum was really sick but I had hope she would eventually get better. Now I feel like I have to face the reality that it's unlikely she ever will and I don't know how much time I have left with her. She is my best friend and the thought of going on without her seems impossible. I dont know how best to support her. She is quite confused and sometimes agitated at the moment and I don't know how best to help. I'm heart broken. Sorry this is just a long message about how I'm feeling but I'm just so lost right now.

  • Welcome to forum EmmaLou although I'm so sorry to hear about your mum.

    I can't begin to imagine how difficult it must have been to find out her diagnosis is now terminal - even more so when the information you're receiving is constantly changing. One thing I can guarantee you during this time of uncertainty is the support and understanding of the Cancer Chat community, and I'm sure some of our members will stop by soon to offer their support and share their experiences and advice.

    This must be a lot to get your head around so if you'd like to talk any of this through with one of our cancer nurses, you can do so on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. Our nurses are very easy to talk to and will do all they can to answer any questions you may have at this time.

    The NHS and Marie Curie also have some really useful information and guidance on how to cope and care for someone with a terminal illness.

    I know there's nothing I can say or so that can make this any better, but I hope you can take some comfort from knowing that you are not alone and that we are all thinking of you at this very challenging time.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hey I’m so sorry to hear about your mom. Im going through something similar and it’s hard when you can’t get a straight answer from doctors. My mom got her terminal diagnosis in April just after getting her cancer free diagnosis in January and I was so lost for so long and angry at the world. If you ever need someone to chat to I’m here feel free to reach out. Xx

  • I'm so sorry to hear about your mum's diagnosis, it really is heartbreaking. I'm going through something similar, in that my mum has terminal cancer. She had breast cancer (stage 2) back in 2020, and after surgery and 23 rounds of radiotherapy, we thought all was well. Until August this year, when they found shadows on her liver and pelvis. She has metastatic breast cancer (stage 4), and although it is treatable at the moment, it isn't curable. We are all absolutely devastated, and so scared for my mum and what she may have to go through, she is only 51 and I'm worried for my dad (61) and brother (26), as they are both at home with her. Here if you need to chat x

  • I am so sorry for what you're going through. Its such a difficult time and it's made harder when you're unsure of what is happening or when your hope is quickly crushed. Sadly my mum passed  away last week, we ended up with alot less time than we thought. I know how painful and heart breaking this all is so if you ever need to talk, please get in touch . Xx

  • I am so sorry for what you and your family are going through. I know how heart breaking this all is and how confusing it can be. Having your hope crushed when you thought things were going to be okay is so painful. Sadly my mum actually passed away last week, we ended up with alot less time than we thought. I've never known a pain like it. I know how scary this all is though so if you ever need to talk, please get in touch. It's true when people say that it's best to try and make as many memories as you can and make sure nothing is left unsaid. You sound like an amazing daughter. Sending you, your mum and your family love. Xx

  • Hi EmmaLou,

    I have only just come across your posts. I am so sorry to read this latest one and to hear that your mum lost her battle last week. My sincere sympathy to you and your family. I lost my own mum to secondary breast cancer and know just how hard this was for us all.

    I am thinking of you and I am always here if you want to chat.

    Kind regards,

    Jolamine xx

  • Hi Georgiaelanor,

    I am so sorry to hear that you are going through this with your mum. I lost my own mum, when her breast cancer metastasised to her liver, lungs, brain and bones.  Sadly, at that time, secondary cancer was considered untreatable, whereas they can do a little more to help nowadays. I am thinking of you and your family and I am always here if you need a sounding board.

    Kind regards,

    Jolamine xx

  • Thinking of you and sending you hugs xx