Coming off Tamoxifen due to Hysterectomy

Hi, 

I've been on Tamoxifen for 9.5 years since i was 44 in Dec 2012 and been told to come off it as I have to have a hysterectomy. I have to have the hysterectomy because of Tamoxifen. I have had 5 hysteroscopies over these years to remove polyps caused by tamoxifen. This time however i have a condition called Atypical Endometrial Hyperplasia which if left untreated would turn cancerous. I'm very anxious about having a total abdominal hysterectomy and coming back off tamoxifen also. I'm scared what my mental state will be like and what my body will look like, I'm already feeling very tearful and hotter than ever. Plus I'm scared coming off tamoxifen that my breast cancer will come back..

Anyone else had anything similar...?

Thanks, Jenn. 

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  • Hi Jenn

    like yourself I had breast cancer and was on tamoxifen and I had an total abdominal hysterectomy five weeks ago.  I started letrosol the week after the operation, the operation is a big operation but I’m healing well and apart from menopausal symptoms I’m ok,  I’m going to ask the consultant what help I can have with these as they don’t like people who have had breast cancer to have hrt, hope your operation goes well.  From Claire 

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  • Hi Jenn

    like yourself I had breast cancer and was on tamoxifen and I had an total abdominal hysterectomy five weeks ago.  I started letrosol the week after the operation, the operation is a big operation but I’m healing well and apart from menopausal symptoms I’m ok,  I’m going to ask the consultant what help I can have with these as they don’t like people who have had breast cancer to have hrt, hope your operation goes well.  From Claire 

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