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Coming off Tamoxifen due to Hysterectomy

Jennevieve
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Hi, 

I've been on Tamoxifen for 9.5 years since i was 44 in Dec 2012 and been told to come off it as I have to have a hysterectomy. I have to have the hysterectomy because of Tamoxifen. I have had 5 hysteroscopies over these years to remove polyps caused by tamoxifen. This time however i have a condition called Atypical Endometrial Hyperplasia which if left untreated would turn cancerous. I'm very anxious about having a total abdominal hysterectomy and coming back off tamoxifen also. I'm scared what my mental state will be like and what my body will look like, I'm already feeling very tearful and hotter than ever. Plus I'm scared coming off tamoxifen that my breast cancer will come back..

Anyone else had anything similar...?

Thanks, Jenn. 

Parents
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    Hi Jenn

    Did you have hysterectomy?  How are you?

    I am facing same as you.  On tamoxifen 4 yrs now.  I am 45 but have bleeds.  All tests done and biopsy's are all clear thk god.  I am advised hysterectomy if bleeds continue but wondering about ovaries and do they take them?

    Would love to hear an update from you.

    Thks Cheola 

  • in reply to _cheola_

    Hi Cheola and thanks for posting.

    I have replied as the last posting was a year ago, so your post may not be seen.

    I am sorry to learn that you may need to have a hysterectomy. Your gynaecology team will be best able to advise you on whether or not you should have your ovaries removed, as they know your situation. 

    If you have gone through menopause or are near menopause then it may be recommended that the ovaries are removed. You may find it useful to look at the  NHS information on things to consider if a hysterectomy is being recommended.

    You may find it also helpful to post on the 'living with cancer ' section on Cancerchat where you may find that you get more replies from people in a similar situation.

    I hope this helps a little. Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care, all the best

    Jemma

Reply
  • in reply to _cheola_

    Hi Cheola and thanks for posting.

    I have replied as the last posting was a year ago, so your post may not be seen.

    I am sorry to learn that you may need to have a hysterectomy. Your gynaecology team will be best able to advise you on whether or not you should have your ovaries removed, as they know your situation. 

    If you have gone through menopause or are near menopause then it may be recommended that the ovaries are removed. You may find it useful to look at the  NHS information on things to consider if a hysterectomy is being recommended.

    You may find it also helpful to post on the 'living with cancer ' section on Cancerchat where you may find that you get more replies from people in a similar situation.

    I hope this helps a little. Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care, all the best

    Jemma

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