Coming off Tamoxifen due to Hysterectomy

Hi, 

I've been on Tamoxifen for 9.5 years since i was 44 in Dec 2012 and been told to come off it as I have to have a hysterectomy. I have to have the hysterectomy because of Tamoxifen. I have had 5 hysteroscopies over these years to remove polyps caused by tamoxifen. This time however i have a condition called Atypical Endometrial Hyperplasia which if left untreated would turn cancerous. I'm very anxious about having a total abdominal hysterectomy and coming back off tamoxifen also. I'm scared what my mental state will be like and what my body will look like, I'm already feeling very tearful and hotter than ever. Plus I'm scared coming off tamoxifen that my breast cancer will come back..

Anyone else had anything similar...?

Thanks, Jenn. 

Parents
  • Hi I have been on tamoxifen for 2 years now but few weeks ago had a period (which stopped as soon as I took tamoxifen 2 yrs ago) so I have just been for a scan and they said there might be a polyp. I gave to go to gynaecology next Thursday for more tests. It just feels like it's never ending.

  • Hello and thank you for posting.

    As other forum users have said, tamoxifen can cause polyps. They are very rarely anything to be concerned about and can be easily dealt with.

    Here is an information leaflet on polyps from a London Hospital Trust, your Hospital Trust may also produce one.

    And here from the UK cervical charity Jos trust.

    Waiting for appointments and more information can be difficult. If you can, in the meantime, try and not search for answers online as this could cause you increased anxiety. 

    Take care and hopefully you will know more soon.

    Sarah.

Reply
  • Hello and thank you for posting.

    As other forum users have said, tamoxifen can cause polyps. They are very rarely anything to be concerned about and can be easily dealt with.

    Here is an information leaflet on polyps from a London Hospital Trust, your Hospital Trust may also produce one.

    And here from the UK cervical charity Jos trust.

    Waiting for appointments and more information can be difficult. If you can, in the meantime, try and not search for answers online as this could cause you increased anxiety. 

    Take care and hopefully you will know more soon.

    Sarah.

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