Coming off Tamoxifen due to Hysterectomy

Hi, 

I've been on Tamoxifen for 9.5 years since i was 44 in Dec 2012 and been told to come off it as I have to have a hysterectomy. I have to have the hysterectomy because of Tamoxifen. I have had 5 hysteroscopies over these years to remove polyps caused by tamoxifen. This time however i have a condition called Atypical Endometrial Hyperplasia which if left untreated would turn cancerous. I'm very anxious about having a total abdominal hysterectomy and coming back off tamoxifen also. I'm scared what my mental state will be like and what my body will look like, I'm already feeling very tearful and hotter than ever. Plus I'm scared coming off tamoxifen that my breast cancer will come back..

Anyone else had anything similar...?

Thanks, Jenn. 

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  • Hi I have been on tamoxifen for 2 years now but few weeks ago had a period (which stopped as soon as I took tamoxifen 2 yrs ago) so I have just been for a scan and they said there might be a polyp. I gave to go to gynaecology next Thursday for more tests. It just feels like it's never ending.

  • Hi there

    Please try not to worry about this, it is a very common thing when on Tamoxifen and even if you're not. The tamoxifen does cause a thickening in the lining of the womb where polyps can grow. If you do have one it's best to get it removed with a hysteroscopy which takes about 2omins. While it is a little uncomfortable it's best to get this done and it's always good that the doctors are keeping an eye on you so please try not to worry. I was through it many times so anytime you have period pains or spotting but no period keep getting yourself checked out.

    Please let me know how you get on. Sending positive understanding vibes. 

    Jenn x

  • Thank you for the reply its very helpful. The hospital always seem pretty quick with appointments especially since having the cancer so I never feel fobbed off. It's good to hear that someone else has had the same problem and to be able to get advice from. I hope you are doing well.  Take care x

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