I'm probably over thinking things again, they seem sure my issues are due to infection, which could have been caused by the Prinary Billiary Cholongitis they diagnosed me as having, autoimmune disease, where my body thinks my liver bile ducts are foreign objects so attack them.
Glad you have pain relief. And they have taken lots of biopsies so hopefully they will be able to diagnose you fully soon. More wondering and waiting for you again. But you did the procedure so well done,sounds like you were really brave. I hope your be able to sleep ok tonight xx
I was first pleased the consultant didnt think it was cancer. She went through my history up to now, also did a examination of my upper body. There was alot to cover, so she told me the name of the immune disease and told me not to google it and would talk about it when had next outpatient appt and said would be under her for life. I got bus home, googled it and it said it can be controlled and delayed by a medication, which if doesant work there is another med they can use, and if neither work I may one day need a liver transplant!
I had a fibroscan in clinic and it showed i had no cirrhosis and a soft liver, so that is good.
I made a friend on facebok who actually lives 2 streets away, who has the same condition, so she has been able to give some info. Its apparently fairly rare with only 9000 people in the uk having it.
Yes, im still worried about the 2cm liver mass, hoping its hadn't got bigger when have mri in nov. Let me know how your phone consultation goes tuesday. I wont get my results from gp blood tests till a week on Tuesday, be interesting to see if theres any clue to the fatigue.
Have a nice rest of the weekend, though its cloudy and cold here, rubbish summer lol.
I hope when you have your next scan that the liver mass hasn't grown and that your medication for your autoimmune liver disease is working. Please let me know how it goes in Nov.
I know of your condition but didn't realise it was so rare. Fatigue is a part of what you have. Life style changes may help to reduce that. Especially if you are fatigued towards the end of your day.
I hope you don't mind the suggestion...
The sun is trying to shine here. Yesterday was marvellous. After my proceedure, I came home and sat/rested in the garden for over 2hours. The doze did me good
I agree this summer has been rubbish with a tease here and there!
I am armed with my questions for Tuesday. I will let you know how it goes.
It's a fatigue that just comes over me, I'm not sure I can do much about it.
The sun still hasn't come out in Oxfordshire, still cloudy. Nice you had a good doze after your appt.
Yes hope so thank you, seems ages until nov. My next clinic appt is a week before xmas, so I expect the roads will be really busy with shoppers!: meant to be in 3 months time since my last one, but it will be 4 and a half months, but I suppose these hospital clinics are busy and is a face to face appt too. The consultant lady was really nice so that's good.
Hope your having a nice sunday, my partner working to 6.30 so have a dinner then, he is off tomo.
I found my.consultant had already answered most of my questions. I was sat in the clinic with a notepad and pen lol.
