Hi I am also on the anxious 'waiting' list, I had a bronscophy yesterday and have to wait for biopsies to come back.

The wait is the worst, once we know what we have to deal with we can start to sort our heads out.

The hardest for me is I like to speak openly to air my feelings unfortunately my husband doesn't like to talk about it and I feel so alone until I know the outcome and can tell my daughter. - she will talk to me.

stay strong..........

st

Hi, How are you doing today? 
It is difficult sharing how you actually feel isn't it. When my husband asks how I'm feeling I want to pretend I'm fine to save him worry. I'm working hard to not do that. 
Have you heard about any outcome yet? We've decided not to tell our families until we have some definite news. My appointment to discuss my CT scan has been moved forward to tomorrow. Now I wish it was still next week to just have a bit more time before I have to face reality. 
Sending you positive vibes :)

I am waiting for mid afternoon today - I hope by the end of today I will have something more definitive to work with.  We’ll be seeing our son and daughter tomorrow - it’s the bit I’m dreading most.

I don’t think anyone other than someone who has in this position could ever imagine how we feel and it is too hard to try and explain.

stay strong and fingers crossed for you

Thinking of you and rooting for you. Xx

Thinking of you and rooting for you. Xx

Well the biopsies etc could not identify anything. Doctors not seen any similar case so now trying 6 weeks strong antibiotics to try and kill the bacteria. Then another ct scan.  So really have just lengthened my waiting time.

hope you have more luck. X

How frustrating for you to stay in limbo.

Wishing you an enjoyable time with your son and daughter tomorrow.