Unexplained lump above collarbone

Hi everyone, 

 

I hope this post is okay, I'm not sure what's wrong with me and I don't want to offend those who have been diagnosed but I'm so anxious right now. I'm 20 years old, and I'm at university right now. About 4.5 weeks ago, I found a small lump above my collarbone on the left side. It feels about 1cm and is oval shaped, smooth and I can move it around easily. I noticed it the day after I had a flu jab so just thought it as an effect of that. It hadn't gone away in a week so I phoned the GP and they agreed to phone in three weeks. Three weeks later and it was still there, they ordered some bloods which all came back clear. They've referred me for an ultrasound after examining it - he said it felt like a lymph node and that from feeling it there shouldn't be anything to worry about. I just keep jumping to the worst conclusions and thinking that I have lymphoma, because I've had really bad fatigue for the past few months. I had glandular fever in summer 2019, and I'm so scared that it could have caused lymphoma. So sorry for the ramble, I just don't know what else it could be apart from that. 

Parents
  • Hello

     

    i have this exact same thing came up 29th October day after flu jab and it's still there!!!!!

    is yours?

     

    Many Thanks

  • Hi, 

    Tagging onto this coversation, almost releived to hear other people going through the same thing. 

    I had my covid vaccine (nhs radiographer) but a week or so after I found a small lump above my collarbone, it wss painless and I only found it because I poke around alot (the job makes me worry more than it should). Anyway i spoke to my gp and she called me in and had a feel and did a full blood count, testing inflammatory markers and all sorts. I even asked a consultant I work with to check it. ANYWAY  All came back perfectly normal, which is supposed to be a releif but its still there and getting alot of random bursts of  pain in my neck and collarbone. 

    The dreaded C word wont leave my brain, the doctor is worried at all. Is it normal for to have lumps? Has anyone had lumps that havent turned out to be ahnormal. 

    I work in cancer care so I know lumps and bumps arent normal... 

    Thank you to anyone who reads this. 

    Xxx

  • Hi all thought I would post a little update as I saw my GP yesterday. I can only feel it at certain times and typically the GP couldn't feel it. He examined my neck and both sides of collarbone amd said it's promising if he can't feel it. He thinks it a sign of it going down but has ordered blood tests anyway which I can't have for 2 weeks. My anxiety is awful as my mother in law in hospital really unwell with pancreatic cancer.  Walking back to the car I could feel the lymph node again. ‍♀️

  • Mine pops up if I raise my arm in a certain way. It's hiding behind the collarbone (and there's a smaller one behind the other collarbone). I was given the all clear after blood test and ultrasound scan. So please try not to worry unless the swollen node puts on a growth spurt....Mine is/are still the same size as before (small ballbearing or small dried bean size) after 8 weeks so far.

    Just had my second jab this morning. Will see if it happens again....

  • Hi Linda,

    Did yours continually shrink over the 5 weeks or did it stay the same then suddenly resolve itself in the last week or days?

    Thanks

  • Hi, I'm new to the forum having joined whilst freaking out about some breast symptoms and a raised node above my collarbone.

    I have breast symptoms the same side so naturally I have convinced myself of the worst and am terrified.

    My glimmer of hope is my covid vaccines, both of which were administered on the same side. My last one 6 weeks ago.

    The lymph node I can feel is about the size of a small pea, it's not    visible, and I can only feel it with my head turned in the opposite direction. It's not painful, but after prodding it a thousand times a day over the last 2 weeks, it kind of aches.

    Dr Google has been cruel, and I regret searching up my symptoms as it has led me to tears on multiple occasions.

    H x

  • 5 weeks in & mine is still there BUT clearly smaller than when I noticed it.

    It has gone from being prob same size as fingertip & quite rubbery, to about 1/2 to 2/3 of that & more fleshy. 

    When I found it end of Apr I had a stiff neck, massaged it & was WTF!!!! a clear lump.

    I now still have one but I think if I was checked again at GP I would have to pointout where it is. That really should speak volumes. I could see it in early May, especially if I got neck at certain angle (which obviously I did every 5 mins....). Now I can only feel it.

    I'm telling myself "this is a fckin Cancer board mate". I'm on here fretting because there is a lump that, if I want to go looking for it, I can feel. And with some logic behind it - found after vaccine, same side etc.

    I'll stay on here to share info as I feel connected to you lot & this was a huge help when I was in a bad place with it. Exchanging notes on this is super useful and reassuring.

    Here's hoping all resolved in a few weeks, OR if for some reason they don't & they hang about doing not very much, that we can all find peace with it & move on.

  • Hi Jerry

    It stayed up for about 3 weeks  and then started to reduce in size until by about week 6 I couldn't feel it at all. It took a while and I've read reports of some people still having enlarged nodes for up to 8 weeks.

    When it first came up 4 days, after the Jab it was quite big and felt like a double lump. 

    Regards

    Linda 

    I'm due for the second jab in early June and plan to have it in the other arm to see if the same thing happens on the other side. Hopefully not next time. 

    Will keep everyone posted. 

     

  • Had my second jab on Saturday and the bigger of my two swollen lymph nodes has doubled in size (now feels like a kidney bean rather than a small dried pea). I can feel the one on the other collarbone is bigger, too. This would seem to confirm that the nodes are responding to the jabs.

    When I had the jab I mentioned the nodes, and the doctor giving the jab said that the response could be due to me having had the lymph nodes removed in one armpit along with breast surgery for breast cancer 5½ years ago.


    I was given the all-clear regarding sinister causes of lymph node swelling 7 weeks after the first vaccination, also following a clear blood test, by the ultrasound scan person, and so I feel I can't go back to the doctor to ask for more tests and scans unless it continues getting bigger over the coming weeks.

     

    I would be interested to hear if this happens to other people on the forum. All the best, everyone!

     

     

  • It sounds to me like it's resolving itself like it did with me. It takes time in some people. It's a worrying thing to find. I was anxious too. There so seem to be alot of reports of this happening after the various jabs now the more that people are vaccinated. Its the body's immune system kicking in. Its funny how it happens in some people but not others.

    Regards

    Linda 

  • Thanks for your reply Linda, very helpful.

    I am just past three weeks and it does feel like it has started to go down. I will see over the next few weeks if that continues slowly.

    Regards

    Jerry

  • Thanks to everyone who is sharing on this chat!

    I had my Covid moderna shot on Friday so 5 days ago and just now felt a lump in my collarbone. It's the size of a pea and hard and moves slightly.

    I am going to call the GP tomorrow to see if I can get any support and will wait to see if it gets any bigger. It is frightening but I feel a bit better knowing I'm not the only one and some of you all have positive news regarding it.

    Please share more positive news when you get it to help my anxiety and sending my best wishes to you all!

Reply
  • Thanks to everyone who is sharing on this chat!

    I had my Covid moderna shot on Friday so 5 days ago and just now felt a lump in my collarbone. It's the size of a pea and hard and moves slightly.

    I am going to call the GP tomorrow to see if I can get any support and will wait to see if it gets any bigger. It is frightening but I feel a bit better knowing I'm not the only one and some of you all have positive news regarding it.

    Please share more positive news when you get it to help my anxiety and sending my best wishes to you all!

Children
  • Just keep off google mate. I can save you the bother & say you'll stress yourself to bits.

    Just remember Google etc work on trying to find you the best hits from the most impactful (and therefore as it sees it...useful) sources. For lumps etc that means horror stories & frankly worded medical sites. But remember it is selecting FOR that.

    I'm guessing by fact you found us lot you are digging, as we all were. But be reassured this lump business seems not uncommon.

    I'm 5 weeks in. Def shrinking but also def still there if I go rummaging. Ultrasound on 12th June non urgent case. Bloods fine.

  • Hi everyone, first post!

    So glad I found this chat after some terrifying googling!  37 yr old female, had COVID vaccine on 18th May (Moderna, 1st jab) very next day happened to notice a lump above collar bone on left side.  Left it for a week and visited GP Weds 26th May - she confirmed it is a swollen lymph node and reassured me she didn't think it was serious, however, she asked the nurse to do bloods there and then and referred me for US which I'm waiting for a date for (she said it would be within 2 weeks).  Bloods all came back normal, lump is around the size of a butter bean, movable, was tender but not anymore.  Doctor dismissed any links to COVID vaccine (I asked if it could be that having read about possible side effect online).  Like everyone I have myself worried sick, have an almost 3 year old and just keep imagining the worst but I'm reassured to read similar stories (with positive outcomes) on here.  Just willing the US date to come through, suffer with anxiety and I can't focus on anything else!

  • Hello

    I am the same. Mine was tender, not anymore. It has reduced but still there, just above my collarbone. I am post vaccine 5 weeks.

    My GP dismissed it too and said the vaccine wouldn't cause it, it was the puncture of the skin BUT I think that is because it isn't considered as a side effect here like it is elsewhere. It is all too coincidental but of course any bump should be checked.

    I have my ultrasound tomorrow so hoping I can let people know all is OK.

     

    x

  • Great that you have your ultrasound tomorrow, hope it brings some reassurance for you!  Let us know how you get on. 

     

    I am being told by family and friends that I'm being silly, but you can't help but wonder! 

     

    Now I have found this post with similar experiences I have promised myself no more googling and I need to try not to prod it as often and just keep an eye on it.

     

    I noticed it literally the day after my vaccine, had it 9.30am on the Tues and noticed it afternoon of the Weds - not to say it wasn't there longer but surely I would have noticed it as I wasn't purposely looking I just touched my neck while sitting at my desk at work and felt it!

     

    Seems to be a lot of people with same experience after vaccine, it makes sense and hopefully we will all get peace of mind soon!

     

    Wonder if you get any answers straight away from your US or if you have to wait.

     

    X

  • I did get an opinion straight away at the ultrasound scan.

     

    R

  • Hi

    Hope you are well

    hows your lymph nodes now?

    mine are still the same, don't sen to be going down very quickly at all, they are still mobile and I only check them weekly now as I just want them to go!!

    xx

  • Same here!

    It's a long time since my first jab on 19th March! Certainly the node on the vaccination side is the same as before. It did seem bigger after the second jab, and so it might have reverted to its previous size...not quite sure, and mostly trying to be patient. I need to go back to weekly checking, as it is now more like daily.

    xx

  • How's the one on the other side, mine still the same it was never as big as the vaccine side 

    I went for the nhs scan as the private one doesn't send results to the gp and she said she couldn't see anything on the vaccine side and wouldn't scan the other side 

     

  • I had the AZ vaccine 4 weeks ago today and only just noticed a lump in my collarbone, I remembered seeing this post a few days ago, so thought I would come and give it a read and it has been really good to hear all that has been said and the mainly positive results for people although some still waiting.

    I did just want to add something about a swollen lymph node I have had for years in my neck - It happened about 12 years ago when I was having lots of viruses and illnesses, within the space of just a few months I just went from one virus to the next and my immune system took a real beating and the lymph node just never went down after that, it has been fully checked out and nothing to worry about just something I live with. Most of the time I am aware that it is there and can cause a bit of pain, but you just get used to it, but when I am ill then it does become even larger and more painful as of course it is reacting to an illness, I used to poke and prod it a lot but all these years on it's just part of the furniture. 

    I wouldn't say it was natural for a lymph node to stay up that long, I've never really looked into it. I just think that everyone is so different and our bodies react so differently to things.

    I noticed also that some people were saying that certain vitamins were low, I end up being giving folic acid on a 3 month prescription at least once a year and get the B12 injection every 3 months and have been prescribed Vit D for years now, I wonder how much of a link there is to these vitamin deficiencies to how well we recover from illnesses as I know I take a long time.

    I really hope that there are no bad news hits from the people here that have reported these symptoms.

  • Hello Kay-D

    It's funny that you talk about the B12 injection. I am also on an injection every 3 months and I had my injection yesterday and I feel like it has changed overnight and my lymph node has got smaller. I've had it for 5 weeks!

    Thanks

    Nat