Unexplained lump above collarbone

Hi everyone, 

 

I hope this post is okay, I'm not sure what's wrong with me and I don't want to offend those who have been diagnosed but I'm so anxious right now. I'm 20 years old, and I'm at university right now. About 4.5 weeks ago, I found a small lump above my collarbone on the left side. It feels about 1cm and is oval shaped, smooth and I can move it around easily. I noticed it the day after I had a flu jab so just thought it as an effect of that. It hadn't gone away in a week so I phoned the GP and they agreed to phone in three weeks. Three weeks later and it was still there, they ordered some bloods which all came back clear. They've referred me for an ultrasound after examining it - he said it felt like a lymph node and that from feeling it there shouldn't be anything to worry about. I just keep jumping to the worst conclusions and thinking that I have lymphoma, because I've had really bad fatigue for the past few months. I had glandular fever in summer 2019, and I'm so scared that it could have caused lymphoma. So sorry for the ramble, I just don't know what else it could be apart from that. 

Parents
  • Hello

     

    i have this exact same thing came up 29th October day after flu jab and it's still there!!!!!

    is yours?

     

    Many Thanks

  • Hi, 

    Tagging onto this coversation, almost releived to hear other people going through the same thing. 

    I had my covid vaccine (nhs radiographer) but a week or so after I found a small lump above my collarbone, it wss painless and I only found it because I poke around alot (the job makes me worry more than it should). Anyway i spoke to my gp and she called me in and had a feel and did a full blood count, testing inflammatory markers and all sorts. I even asked a consultant I work with to check it. ANYWAY  All came back perfectly normal, which is supposed to be a releif but its still there and getting alot of random bursts of  pain in my neck and collarbone. 

    The dreaded C word wont leave my brain, the doctor is worried at all. Is it normal for to have lumps? Has anyone had lumps that havent turned out to be ahnormal. 

    I work in cancer care so I know lumps and bumps arent normal... 

    Thank you to anyone who reads this. 

    Xxx

  • Hi,

    I have two enlarged lymph nodes under my arm/armpit, after two biopsies I'm still no nearer on finding out what is causing them, however I wanted to post an update in case it helps anyone.

    I don't really know if mine started before or after the covid jab, however I'm now 14 weeks passed the first jab, when I mentioned this to the breast clinic they said it's entirely possible to have lymph nodes enlarged for this amount of time following something like that and they are seeing more and more people coming in with them following the vaccine & they are even showing up as take up on pet scans.

    Of course when your in the middle of it all and having a history of two cancers one of which was in the lymph nodes it does nothing to calm my panic, I think I might be more reassured if I knew for sure they had popped up after the jab. 
     

    Just thought I'd post for anyone who has longer term node swellings. Hope everyone is coping ok. 

     

  • This is very reassuring, thank you :-)

  • Mine is very similar to everyone else on here - 4 days after first Pfizer noticed a little tenderness and swelling, couple of days later it's about marble sized and movable but rubbery. Have appointment to see gp tomorrow - she was fairly confident it will be either in relation to the vaccine (same side) or a bit of a tummy bug going around my family, but wanted to have a feel for herself for my peace of mind.

    In itself it has triggered my post natal anxiety - I have two kids aged 11 months and 3 years, after the first one I had bad health anxiety which I had managed to stay calm about until now. Now I am looking at my kids imagining them growing up without me and nearly bursting into tears. Obviously I am very hopeful the lump will be nothing, hoping I can keep it all in perspective too! This thread has helped immensely in helping me feel calm in all your shared experiences, which really do make sense! 

    My only other symptom is being very thirsty - but I'm also breastfeeding a hungry 11 month who isn't keen on eating much solid food, so this isn't the first time I've got dry lips and thirsty recently. 

  • Hi, thanks for the reply! So have you had you biopsy results? Bless you I bet you have been panicked but at least they don't think it's anything and just related to the vaccine! 
     

    hopefully they go down someday I do have a review in 3 months, I have had covid in 2020 and felt really unwell the day after my vaccine and I've read this can cause a stronger immune repsonse? So maybe it's linked. Hopefully they settle for us all! 

  • Dear Melaniejo

    Just read your post. Hope all is going OK for you. This group has been very reassuring regarding our swollen lymph nodes following the covid jabs. Mine took 5 weeks to resolve and was very worrying.

    I hope you get on OK with your tests and will keep my fingers crossed for you that all is OK. As someone who suffers from terrible health anxiety I can really relate to what you are going through. Please keep us informed of how you get on.

    Best regards 

    Lindax

     

  • Hi all thought I would post a little update as I saw my GP yesterday. I can only feel it at certain times and typically the GP couldn't feel it. He examined my neck and both sides of collarbone amd said it's promising if he can't feel it. He thinks it a sign of it going down but has ordered blood tests anyway which I can't have for 2 weeks. My anxiety is awful as my mother in law in hospital really unwell with pancreatic cancer.  Walking back to the car I could feel the lymph node again. ‍♀️

  • Mine pops up if I raise my arm in a certain way. It's hiding behind the collarbone (and there's a smaller one behind the other collarbone). I was given the all clear after blood test and ultrasound scan. So please try not to worry unless the swollen node puts on a growth spurt....Mine is/are still the same size as before (small ballbearing or small dried bean size) after 8 weeks so far.

    Just had my second jab this morning. Will see if it happens again....

  • Hi Linda,

    Did yours continually shrink over the 5 weeks or did it stay the same then suddenly resolve itself in the last week or days?

    Thanks

  • Hi, I'm new to the forum having joined whilst freaking out about some breast symptoms and a raised node above my collarbone.

    I have breast symptoms the same side so naturally I have convinced myself of the worst and am terrified.

    My glimmer of hope is my covid vaccines, both of which were administered on the same side. My last one 6 weeks ago.

    The lymph node I can feel is about the size of a small pea, it's not    visible, and I can only feel it with my head turned in the opposite direction. It's not painful, but after prodding it a thousand times a day over the last 2 weeks, it kind of aches.

    Dr Google has been cruel, and I regret searching up my symptoms as it has led me to tears on multiple occasions.

    H x

  • 5 weeks in & mine is still there BUT clearly smaller than when I noticed it.

    It has gone from being prob same size as fingertip & quite rubbery, to about 1/2 to 2/3 of that & more fleshy. 

    When I found it end of Apr I had a stiff neck, massaged it & was WTF!!!! a clear lump.

    I now still have one but I think if I was checked again at GP I would have to pointout where it is. That really should speak volumes. I could see it in early May, especially if I got neck at certain angle (which obviously I did every 5 mins....). Now I can only feel it.

    I'm telling myself "this is a fckin Cancer board mate". I'm on here fretting because there is a lump that, if I want to go looking for it, I can feel. And with some logic behind it - found after vaccine, same side etc.

    I'll stay on here to share info as I feel connected to you lot & this was a huge help when I was in a bad place with it. Exchanging notes on this is super useful and reassuring.

    Here's hoping all resolved in a few weeks, OR if for some reason they don't & they hang about doing not very much, that we can all find peace with it & move on.

Reply
  • 5 weeks in & mine is still there BUT clearly smaller than when I noticed it.

    It has gone from being prob same size as fingertip & quite rubbery, to about 1/2 to 2/3 of that & more fleshy. 

    When I found it end of Apr I had a stiff neck, massaged it & was WTF!!!! a clear lump.

    I now still have one but I think if I was checked again at GP I would have to pointout where it is. That really should speak volumes. I could see it in early May, especially if I got neck at certain angle (which obviously I did every 5 mins....). Now I can only feel it.

    I'm telling myself "this is a fckin Cancer board mate". I'm on here fretting because there is a lump that, if I want to go looking for it, I can feel. And with some logic behind it - found after vaccine, same side etc.

    I'll stay on here to share info as I feel connected to you lot & this was a huge help when I was in a bad place with it. Exchanging notes on this is super useful and reassuring.

    Here's hoping all resolved in a few weeks, OR if for some reason they don't & they hang about doing not very much, that we can all find peace with it & move on.

Children
  • Had my second jab on Saturday and the bigger of my two swollen lymph nodes has doubled in size (now feels like a kidney bean rather than a small dried pea). I can feel the one on the other collarbone is bigger, too. This would seem to confirm that the nodes are responding to the jabs.

    When I had the jab I mentioned the nodes, and the doctor giving the jab said that the response could be due to me having had the lymph nodes removed in one armpit along with breast surgery for breast cancer 5½ years ago.


    I was given the all-clear regarding sinister causes of lymph node swelling 7 weeks after the first vaccination, also following a clear blood test, by the ultrasound scan person, and so I feel I can't go back to the doctor to ask for more tests and scans unless it continues getting bigger over the coming weeks.

     

    I would be interested to hear if this happens to other people on the forum. All the best, everyone!