Hello

i have this exact same thing came up 29th October day after flu jab and it's still there!!!!!

is yours?

Many Thanks

Hi, 

Tagging onto this coversation, almost releived to hear other people going through the same thing. 

I had my covid vaccine (nhs radiographer) but a week or so after I found a small lump above my collarbone, it wss painless and I only found it because I poke around alot (the job makes me worry more than it should). Anyway i spoke to my gp and she called me in and had a feel and did a full blood count, testing inflammatory markers and all sorts. I even asked a consultant I work with to check it. ANYWAY  All came back perfectly normal, which is supposed to be a releif but its still there and getting alot of random bursts of  pain in my neck and collarbone. 

The dreaded C word wont leave my brain, the doctor is worried at all. Is it normal for to have lumps? Has anyone had lumps that havent turned out to be ahnormal. 

I work in cancer care so I know lumps and bumps arent normal... 

Thank you to anyone who reads this. 

Xxx

Hi

I had my Covid vaccine (Astra Zeneca) two weeks ago. Two days later I felt an enlarged and slightly sore lymph node just above my collarbone on the right. After initially panicking ( I was diagnosed with breast cancer 7 years ago and am now in remission ) I put it down to  the vaccine which I had in my right arm. Two weeks later it is stil8 l there though, not changed in size - at least I don't think so!! - but no longer  painful. It seems to change size depending on how I feel it if that makes sense!! It's moveable  and slightly rubbery and apart from that I have no other symptoms and feel really well. I'm now feeling so worried though ( having foolishly googled superclavicular node!) and spend most of the day prodding it and imagining the very worst outcome. I have also read quite a few reports from the US about swollen lymph nodes post vaccine so am hoping that this is the case. I've now convinced myself that maybe it was there all along but seems a coincidence that I noticed it just after the jab. I plan to contact my go if it doesn't go down in a week - it's just the thought of re living what I went through 7 years ago that terrifies me and I've found myself in tears a lot today. It's sort of reassuring to hear that others have had the same experience - just hope we all have a good outcome. It's the not knowing that's so scary!! 

It sounds like yours is very similar to mine (I agree it seems to depend on how I feel/ time of day or position I am in). It is really scary isn't it finding any kind of lump and must be very worrying when you have been through breast cancer before. I am also doing a lot of worrying and Googling and poking! I have also gone through times of convincing myself maybe it was always there and I didn't notice but wishful thinking I think. My dad had lymphoma 2 years ago and so I think that's why it has made me so anxious. 

I have also read american reports and I saw a new article last week of case studies of patients who had ultrasound and/ or biopsies of their lymph nodes and had had benign results that were linked to their covid vaccine. Really wish there was more information in this country. 

Not sure what tomorrow's ultrasound scan will bring? Sleep might be lacking tonight. 

X 

Will be thinking of you tomorrow. I think we have probably been reading all the same articles! I do wonder if there are lots of similar cases out there which just haven't been reported? It does seem such a coincidence that we noticed the lump within days of having the vaccine - well that"s what I keep telling myself! It makes it so hard to concentrate on anything else doesn't it. 

Do hope you manage to get some sleep. x

Hi all, I too have a lump on collarbone and  my collarbone has been sore since  I noticed this lump in November. I'm awaiting blood test results  so will see how that goes. I've two lumps in my neck but also have  ear infection so that's  clearing up with antibiotics. Best of luck for tomorrow x

Hi!

So wanted to make sure I shared reassuring news. The two lymph nodes in my neck just above my collarbone were assessed as normal today. They are both about 5mm (even though touch one feels nearer to a cm and the other feels smaller). They have normal features. The sonographer and the consultant said they probably enlarged up due to the vaccine enough for me to feel them. I saw them on he screen looking normal. Now to try and settle my anxiety that I've been living with for 6 weeks! Hope this is reassuring. 

That's great news and thank you so much for sharing it with us. Interesting that they confirmed that the vaccine can have that effect - I bet we are not the only ones panicking. I wondered if it is worth reporting it on The Coronavirus Yellow Card scheme? - they ask you to register any side effects to the vaccines. Hope you feel more relaxed now and are able to enjoy the rest of the day! I will get my node checked if it doesn't go down in a few weeks but definitely feel better about it after hearing your news. x

Hi,

Yeah the sonographer said he had the same side effect too. I reported it to the yellow card scheme when it happened but might report that they are still enlarged 6 weeks plus. X 

That's great they turned out to be ok.

My gp called so my bloods show low b12 so I've to discuss with her tomorrow. Not sure if that would cause enlarged lymph nodes.

Take care

Ruby

Hi Over_thinker,

You and everyone in this thread has put my mind at ease slightly, I had my C-19 vaccine (Pfizer) a week and a half ago and now have a swollen supraclavicular lymph node (left side, same as the shot).

I hadn't put two and two together so went to my GP, I have a blood test today and urgent referral in the next 2 weeks - they seemed genuinely worried. I'm trying to rationalise things as I know left collarbone lymph nodes are not good places for swelling. 

Fingers crossed to all in this thread! Will keep an eye on updates and will update myself!

Hi

Yes - scary times! I'm feeling a bit less anxious than I was too, realising I'm not alone - I also read a report from the US yesterday that specifically mentioned collar bone lymph nodes swelling as a result of the vaccine as well as axillary nodes. I think we will all become experts on supraclavicular nodes at this rate - I didn't realise they existed before now!! Do hope your blood tests are ok - and keep us posted! Did your gp consider a link to the vaccine?

Best of luck to all

Hi

Yes - scary times! I'm feeling a bit less anxious than I was too, realising I'm not alone - I also read a report from the US yesterday that specifically mentioned collar bone lymph nodes swelling as a result of the vaccine as well as axillary nodes. I think we will all become experts on supraclavicular nodes at this rate - I didn't realise they existed before now!! Do hope your blood tests are ok - and keep us posted! Did your gp consider a link to the vaccine?

Best of luck to all

Thanks to everyone who is sharing on this chat!

I had my Covid moderna shot on Friday so 5 days ago and just now felt a lump in my collarbone. It's the size of a pea and hard and moves slightly.

I am going to call the GP tomorrow to see if I can get any support and will wait to see if it gets any bigger. It is frightening but I feel a bit better knowing I'm not the only one and some of you all have positive news regarding it.

Please share more positive news when you get it to help my anxiety and sending my best wishes to you all!

Just keep off google mate. I can save you the bother & say you'll stress yourself to bits.

Just remember Google etc work on trying to find you the best hits from the most impactful (and therefore as it sees it...useful) sources. For lumps etc that means horror stories & frankly worded medical sites. But remember it is selecting FOR that.

I'm guessing by fact you found us lot you are digging, as we all were. But be reassured this lump business seems not uncommon.

I'm 5 weeks in. Def shrinking but also def still there if I go rummaging. Ultrasound on 12th June non urgent case. Bloods fine.

Hi everyone, first post!

So glad I found this chat after some terrifying googling!  37 yr old female, had COVID vaccine on 18th May (Moderna, 1st jab) very next day happened to notice a lump above collar bone on left side.  Left it for a week and visited GP Weds 26th May - she confirmed it is a swollen lymph node and reassured me she didn't think it was serious, however, she asked the nurse to do bloods there and then and referred me for US which I'm waiting for a date for (she said it would be within 2 weeks).  Bloods all came back normal, lump is around the size of a butter bean, movable, was tender but not anymore.  Doctor dismissed any links to COVID vaccine (I asked if it could be that having read about possible side effect online).  Like everyone I have myself worried sick, have an almost 3 year old and just keep imagining the worst but I'm reassured to read similar stories (with positive outcomes) on here.  Just willing the US date to come through, suffer with anxiety and I can't focus on anything else!

Hello

I am the same. Mine was tender, not anymore. It has reduced but still there, just above my collarbone. I am post vaccine 5 weeks.

My GP dismissed it too and said the vaccine wouldn't cause it, it was the puncture of the skin BUT I think that is because it isn't considered as a side effect here like it is elsewhere. It is all too coincidental but of course any bump should be checked.

I have my ultrasound tomorrow so hoping I can let people know all is OK.

x

Great that you have your ultrasound tomorrow, hope it brings some reassurance for you!  Let us know how you get on. 

I am being told by family and friends that I'm being silly, but you can't help but wonder! 

Now I have found this post with similar experiences I have promised myself no more googling and I need to try not to prod it as often and just keep an eye on it.

I noticed it literally the day after my vaccine, had it 9.30am on the Tues and noticed it afternoon of the Weds - not to say it wasn't there longer but surely I would have noticed it as I wasn't purposely looking I just touched my neck while sitting at my desk at work and felt it!

Seems to be a lot of people with same experience after vaccine, it makes sense and hopefully we will all get peace of mind soon!

Wonder if you get any answers straight away from your US or if you have to wait.

X

I did get an opinion straight away at the ultrasound scan.

R

Hi

Hope you are well

hows your lymph nodes now?

mine are still the same, don't sen to be going down very quickly at all, they are still mobile and I only check them weekly now as I just want them to go!!

xx

Same here!

It's a long time since my first jab on 19th March! Certainly the node on the vaccination side is the same as before. It did seem bigger after the second jab, and so it might have reverted to its previous size...not quite sure, and mostly trying to be patient. I need to go back to weekly checking, as it is now more like daily.

xx

How's the one on the other side, mine still the same it was never as big as the vaccine side 

I went for the nhs scan as the private one doesn't send results to the gp and she said she couldn't see anything on the vaccine side and wouldn't scan the other side 

I had the AZ vaccine 4 weeks ago today and only just noticed a lump in my collarbone, I remembered seeing this post a few days ago, so thought I would come and give it a read and it has been really good to hear all that has been said and the mainly positive results for people although some still waiting.

I did just want to add something about a swollen lymph node I have had for years in my neck - It happened about 12 years ago when I was having lots of viruses and illnesses, within the space of just a few months I just went from one virus to the next and my immune system took a real beating and the lymph node just never went down after that, it has been fully checked out and nothing to worry about just something I live with. Most of the time I am aware that it is there and can cause a bit of pain, but you just get used to it, but when I am ill then it does become even larger and more painful as of course it is reacting to an illness, I used to poke and prod it a lot but all these years on it's just part of the furniture. 

I wouldn't say it was natural for a lymph node to stay up that long, I've never really looked into it. I just think that everyone is so different and our bodies react so differently to things.

I noticed also that some people were saying that certain vitamins were low, I end up being giving folic acid on a 3 month prescription at least once a year and get the B12 injection every 3 months and have been prescribed Vit D for years now, I wonder how much of a link there is to these vitamin deficiencies to how well we recover from illnesses as I know I take a long time.

I really hope that there are no bad news hits from the people here that have reported these symptoms.