Unexplained lump above collarbone

Hi everyone, 

 

I hope this post is okay, I'm not sure what's wrong with me and I don't want to offend those who have been diagnosed but I'm so anxious right now. I'm 20 years old, and I'm at university right now. About 4.5 weeks ago, I found a small lump above my collarbone on the left side. It feels about 1cm and is oval shaped, smooth and I can move it around easily. I noticed it the day after I had a flu jab so just thought it as an effect of that. It hadn't gone away in a week so I phoned the GP and they agreed to phone in three weeks. Three weeks later and it was still there, they ordered some bloods which all came back clear. They've referred me for an ultrasound after examining it - he said it felt like a lymph node and that from feeling it there shouldn't be anything to worry about. I just keep jumping to the worst conclusions and thinking that I have lymphoma, because I've had really bad fatigue for the past few months. I had glandular fever in summer 2019, and I'm so scared that it could have caused lymphoma. So sorry for the ramble, I just don't know what else it could be apart from that. 

Parents
  • Hello

     

    i have this exact same thing came up 29th October day after flu jab and it's still there!!!!!

    is yours?

     

    Many Thanks

  • Hi, 

    Tagging onto this coversation, almost releived to hear other people going through the same thing. 

    I had my covid vaccine (nhs radiographer) but a week or so after I found a small lump above my collarbone, it wss painless and I only found it because I poke around alot (the job makes me worry more than it should). Anyway i spoke to my gp and she called me in and had a feel and did a full blood count, testing inflammatory markers and all sorts. I even asked a consultant I work with to check it. ANYWAY  All came back perfectly normal, which is supposed to be a releif but its still there and getting alot of random bursts of  pain in my neck and collarbone. 

    The dreaded C word wont leave my brain, the doctor is worried at all. Is it normal for to have lumps? Has anyone had lumps that havent turned out to be ahnormal. 

    I work in cancer care so I know lumps and bumps arent normal... 

    Thank you to anyone who reads this. 

    Xxx

  • Anyone else finds theirs goes up and down depending what you do? Do some exercise - back to how it was. 30 mins later you've been sitting down and you think it's gone right down.

    It makes it hard to know if it's actually resolving or not. I have decided not to touch it at all for two weeks and see where I am after that.

  • Yep 100%. Couple of times thought it was on way out & then a while later nah still same.

    I've taken advice & left it well alone.

  • Yes. Mine is exactly the same  - up and down! .(after 12 weeks). I thought it was getting smaller but not too sure now. The size definitely depends on which angle I approach it from.  I'm trying very hard just to forget about it for a while - not easy! I feel reassured that it doesn't  appear to be increasing in size from when I originally found it though and still very moveable. 

  • I flund myself looking for it this morning which probably says something. But I'm sure it'll still be palpable for ages.

    I'm going to report it on yellow card scheme.

  • I do this too. I have also reported on the yellow card scheme as I do think more should be said about this as a potential side effect.

    I noticed a couple of years ago that one side of my collarbone sticks out more than the other and the side where I can feel the lymph node is the side that is pushed back more and I believe if the sides were equal than I migjt not even feel it. 
     

    I can still feel mine and it is moveable too.

    Best wishes to all x

  • Yeah mine is moveable. It's like it's on a string and you can move the line up and down slightly when you push the node like twanging a guitar string and you can almost move it along the string slightly, especially when it seems to be smaller.

    It's the most difficult thing ever to leave alone but I am definitely going to try that for a week or two.

  • Mines still there and moveable couldn't feel it much yesterday so was hoping! I've reported to yellow card scheme too. 

  • I know this thread is a little old but I was just wondering if your soreness has calmed down now?

    I had my moderna covid jab 8 days ago. On Thursday I noticed a small lump above my collarbone which I assume is an inflamed lymph node but yesterday the part where my shoulder joins my arm became incredibly tender and I too noticed a small bump underneath my collarbone area. Did yours go away? 

  • Hey, welcome to the club. I haven't seen a post on here yet where someone says their node has completely gone. We all seem do be ranging from a week to a couple of months.

    Personally mine has been just over two weeks and it seems to be shrinking very slowly overall. 

    Ours are all above collar bone as far as I can tell but there are lymph nodes all over your body. If you are at all concerned it might be worth speaking to your doctor for some reassurance.

  • I'm 3 weeks in & seeing VERY slow shrinkage. I could definietly see it 2 weeks back as a small bump in skin an inch above collarbone but can only feel it now.

    Definietly movable - feels like a very small butter bean. Feels different depending how I touch it, so staying clear of it.

    But 3 weeks in seems to be sinking into the flesh around it a bit more & just going on gut feel it is shrinking. I have a non urgent ultrasound on the way but god knows when that'll be & hopefully I won't need it.

    @ Mzee - Moderna here as well. Had a really stiff shoulder & only felt lump when I was massaging area.

Reply
  • I'm 3 weeks in & seeing VERY slow shrinkage. I could definietly see it 2 weeks back as a small bump in skin an inch above collarbone but can only feel it now.

    Definietly movable - feels like a very small butter bean. Feels different depending how I touch it, so staying clear of it.

    But 3 weeks in seems to be sinking into the flesh around it a bit more & just going on gut feel it is shrinking. I have a non urgent ultrasound on the way but god knows when that'll be & hopefully I won't need it.

    @ Mzee - Moderna here as well. Had a really stiff shoulder & only felt lump when I was massaging area.

Children
  • Hello, I am same!

    I used to be able to see it in the mirror when moving my shoulders back but now I can't.  I am also having to sometimes search for it too which is a good sign.

    I also think that not touching it makes a real difference and I know it is hard to leave alone especially when you want to check and see if it has gone down but it is a vicious circle.

    I have an ultrasound booked for 01 June

    x

  • Sorry for the long post.

    Had GP appointment 1/4/21 because of a lump I found above my collar bone (after having 2nd pfizer vac). They said its a swollen right supraclavicular lymph node but wanted me to try antibiotics and have bloods done before sending me for a scan. Got home and rang for bloods appointment but couldn't get me in for 2 weeks. then had a voicemail from gp asking me to go back that day for further examination with her and another gp. They did bloods, breast, tummy and rectal examination. They referred me for a chest xray and ultra sound scan. 

    Bloods came back clear apart from a folate deficiency for which I'm now taking folic acid. I had ultra sound which confirmed a lymph node, chest xray was clear. GP then referred me to ENT, had telephone consultation but he didn't feel the need for head and neck CT.

    My GP is concerned because of bone and muscle pain and 2 ½ stone weight loss in 12 months without trying. 

    GP has done further blood tests and has referred me to something called ACE pathway (The ACE pathway is in place for those who require urgent investigations of non-specific or vague symptoms because of the possibility of cancer or another serious illness. All the investigations are carried out as soon as possible without the need for admission to hospital) 

    I've seen my most recent blood tests online and can see that one test - Serum total 25-hydroxy vitamin D level is very low.  I have a follow up appointment with GP on Thursday so may start treatment for Vit D deficiency, then to await the ACE referral.

    I am still hopeful that it is a result of vaccine and the other things are just incidental findings but I have to say my GP has been excellent.

    P.S lump is still there but has definitely halved in size.

    Fingers crossed for everyone. 

  • Dear Melaniejo

    Just read your post. Hope all is going OK for you. This group has been very reassuring regarding our swollen lymph nodes following the covid jabs. Mine took 5 weeks to resolve and was very worrying.

    I hope you get on OK with your tests and will keep my fingers crossed for you that all is OK. As someone who suffers from terrible health anxiety I can really relate to what you are going through. Please keep us informed of how you get on.

    Best regards 

    Lindax

     

  • Hi all thought I would post a little update as I saw my GP yesterday. I can only feel it at certain times and typically the GP couldn't feel it. He examined my neck and both sides of collarbone amd said it's promising if he can't feel it. He thinks it a sign of it going down but has ordered blood tests anyway which I can't have for 2 weeks. My anxiety is awful as my mother in law in hospital really unwell with pancreatic cancer.  Walking back to the car I could feel the lymph node again. ‍♀️

  • Mine pops up if I raise my arm in a certain way. It's hiding behind the collarbone (and there's a smaller one behind the other collarbone). I was given the all clear after blood test and ultrasound scan. So please try not to worry unless the swollen node puts on a growth spurt....Mine is/are still the same size as before (small ballbearing or small dried bean size) after 8 weeks so far.

    Just had my second jab this morning. Will see if it happens again....

  • Hi Linda,

    Did yours continually shrink over the 5 weeks or did it stay the same then suddenly resolve itself in the last week or days?

    Thanks

  • Hi, I'm new to the forum having joined whilst freaking out about some breast symptoms and a raised node above my collarbone.

    I have breast symptoms the same side so naturally I have convinced myself of the worst and am terrified.

    My glimmer of hope is my covid vaccines, both of which were administered on the same side. My last one 6 weeks ago.

    The lymph node I can feel is about the size of a small pea, it's not    visible, and I can only feel it with my head turned in the opposite direction. It's not painful, but after prodding it a thousand times a day over the last 2 weeks, it kind of aches.

    Dr Google has been cruel, and I regret searching up my symptoms as it has led me to tears on multiple occasions.

    H x

  • 5 weeks in & mine is still there BUT clearly smaller than when I noticed it.

    It has gone from being prob same size as fingertip & quite rubbery, to about 1/2 to 2/3 of that & more fleshy. 

    When I found it end of Apr I had a stiff neck, massaged it & was WTF!!!! a clear lump.

    I now still have one but I think if I was checked again at GP I would have to pointout where it is. That really should speak volumes. I could see it in early May, especially if I got neck at certain angle (which obviously I did every 5 mins....). Now I can only feel it.

    I'm telling myself "this is a fckin Cancer board mate". I'm on here fretting because there is a lump that, if I want to go looking for it, I can feel. And with some logic behind it - found after vaccine, same side etc.

    I'll stay on here to share info as I feel connected to you lot & this was a huge help when I was in a bad place with it. Exchanging notes on this is super useful and reassuring.

    Here's hoping all resolved in a few weeks, OR if for some reason they don't & they hang about doing not very much, that we can all find peace with it & move on.

  • Hi Jerry

    It stayed up for about 3 weeks  and then started to reduce in size until by about week 6 I couldn't feel it at all. It took a while and I've read reports of some people still having enlarged nodes for up to 8 weeks.

    When it first came up 4 days, after the Jab it was quite big and felt like a double lump. 

    Regards

    Linda 

    I'm due for the second jab in early June and plan to have it in the other arm to see if the same thing happens on the other side. Hopefully not next time. 

    Will keep everyone posted. 

     

  • Had my second jab on Saturday and the bigger of my two swollen lymph nodes has doubled in size (now feels like a kidney bean rather than a small dried pea). I can feel the one on the other collarbone is bigger, too. This would seem to confirm that the nodes are responding to the jabs.

    When I had the jab I mentioned the nodes, and the doctor giving the jab said that the response could be due to me having had the lymph nodes removed in one armpit along with breast surgery for breast cancer 5½ years ago.


    I was given the all-clear regarding sinister causes of lymph node swelling 7 weeks after the first vaccination, also following a clear blood test, by the ultrasound scan person, and so I feel I can't go back to the doctor to ask for more tests and scans unless it continues getting bigger over the coming weeks.

     

    I would be interested to hear if this happens to other people on the forum. All the best, everyone!