Unexplained lump above collarbone

Hi everyone, 

 

I hope this post is okay, I'm not sure what's wrong with me and I don't want to offend those who have been diagnosed but I'm so anxious right now. I'm 20 years old, and I'm at university right now. About 4.5 weeks ago, I found a small lump above my collarbone on the left side. It feels about 1cm and is oval shaped, smooth and I can move it around easily. I noticed it the day after I had a flu jab so just thought it as an effect of that. It hadn't gone away in a week so I phoned the GP and they agreed to phone in three weeks. Three weeks later and it was still there, they ordered some bloods which all came back clear. They've referred me for an ultrasound after examining it - he said it felt like a lymph node and that from feeling it there shouldn't be anything to worry about. I just keep jumping to the worst conclusions and thinking that I have lymphoma, because I've had really bad fatigue for the past few months. I had glandular fever in summer 2019, and I'm so scared that it could have caused lymphoma. So sorry for the ramble, I just don't know what else it could be apart from that. 

Parents
  • Hello

     

    i have this exact same thing came up 29th October day after flu jab and it's still there!!!!!

    is yours?

     

    Many Thanks

  • Hi, 

    Tagging onto this coversation, almost releived to hear other people going through the same thing. 

    I had my covid vaccine (nhs radiographer) but a week or so after I found a small lump above my collarbone, it wss painless and I only found it because I poke around alot (the job makes me worry more than it should). Anyway i spoke to my gp and she called me in and had a feel and did a full blood count, testing inflammatory markers and all sorts. I even asked a consultant I work with to check it. ANYWAY  All came back perfectly normal, which is supposed to be a releif but its still there and getting alot of random bursts of  pain in my neck and collarbone. 

    The dreaded C word wont leave my brain, the doctor is worried at all. Is it normal for to have lumps? Has anyone had lumps that havent turned out to be ahnormal. 

    I work in cancer care so I know lumps and bumps arent normal... 

    Thank you to anyone who reads this. 

    Xxx

  • Thank you - and you too x

  • Interesting to read this chat and glad I've found it.

    I had the AZ covid vaccine on Thursday 25th March - 4 days ago in my right arm. I've had a sore arm for a few days and today I noticed a tenderspot above my collarbone on the same side as the injection. There is what I take to be a swollen lymph node.

    I googled it as I realised it might be connected to the vaccine and found lots of articles about this being a side effect of the various covid vaccines.

    I will monitor it and ring the doctor if it doesn't go away. I certainly hadn't noticed it before the vaccine.

    Best regards 

    L

  • Hi

    As with all of us who have had the vaccine it's sounds likely that's what it is. My lymph node is still palpable after 6 weeks but definitely smaller. Just wondering if the second dose will cause a similar side effect? 
     

    Kind regards

    J

  • I have one on each side of my collarbone's doctor said it was nothing to worry about.But I am not still shore as I was unwell for 3/4 weeks before they came out and I am still not well doctor said if any more comes out take pictures of them my friend has the same thing swelling both sides of his neck and itchy skin and bad sweates at night and he has cancer of the lymph nodes and I have everything the same said to me first it was can of the lymph nodes now there saying nothing to worry about so cofuis 

  • Hi J

    My husband found a study that appeared to show  that it can also happen after the second dose of a covid vaccine too. It was a Spanish study of pfizer reactions . Quite a few had the collarbone node swellings a few days after the second jab and some after the first and some had nodes disappear after 9 days, and others it was beyond a month so it varies from person to person quite alot.

    I discovered mine yesterday and it was a bit tender and swelled even bigger a few hours later. I can still feel it today but its gone down a bit again but is still there.

    My friend had her lymph nodes swell in her armpits on the same side as the vaccine and they were quite swollen and painful for a week.

    It does seem to be quite common. It says 1 in 100 on the AZ leaflet. I've noticed it being reported quite a bit in the U.S after the pfizer and Moderna jabs.. I think it can happen after the flu vaccines too. The bodies natural reaction to a virus I guess.

    Its still worrying when you find a swollen node but reassuring to chat with other people it's happening to as well. L

  • Hi L

    I think we have probably been reading the same reports!! Yes, I saw the Spanish study too. It does seem to be more prevalent than they were expecting , as you say especially in the US. It's just a bit scary when you google collar bone lymph nodes so reassuring that it seems to be happening to quite a few of us.

    Mine stopped being painful after a few days - I'm trying to stop playing with it now as I'm sure that doesn't help!

    I hope yours resolves quickly - do keep us posted

    J

  • I keep prodding mine too I am trying to stop myself. 

    It is worrying when you find a lump or swelling  in that area and initially I was quite worried and then I remembered I'd just had the covid jab and that there could be a connection which is when I started to research it. It isn't always good to google too much as you can end up worrying yourself alot. But in this case it did reaffirm that this does seem to be a side affect that is appearing quite a bit given the number of articles and studies on it online.

    It takes a few, weeks to get fully protected from the vaccine so I suppose it's no surprise that in some people the nodes are also swollen for a few weeks too. I will report it to the Yellow Card Scheme for side, effects. Did you do that? 

    I will keep you posted about it as I will be monitoring it and if you could do the same that would be great. When do you have your second vaccination? Mine is scheduled for mid June. 

    Best regards 

    Linda 

     

  • Hi

    My second injection will be in May - so not long to wait. 
    I reported it to the Yellow Card Scheme too.

    I'll let you know if there are any further developments - it's very hard to estimate the size of the node isn't it .It seems to vary depending on which angle I approach it from!

    Take care

    J

     

  • Yes, I've found that too. It feels different if I prod it when lying down to when sitting up. It does seem to vary in size according to how you approach it like you say.  

    How many Lymph nodes are there in that area above the collar bone I wonder? My husband has said that his glands have felt a bit swollen since he had the jab last Thursday too. 

    I must report it to the yellow card scheme tomorrow.  

    I hope it resolves itself soon for us all. 

    Regards 

    L

     

     

     

     

  • This is so reassuring! 12 days after my vaccine now...I realised the point of my shoulder was tender almost like it was bruised after poking around I then realised a small pea sized lump on the outer part of my collar bone but underneath. 
     

    I read about lymph nodes too but my lump wasn't near them so I was so confused and started to worry! So glad I've seen this post! 

Reply
  • This is so reassuring! 12 days after my vaccine now...I realised the point of my shoulder was tender almost like it was bruised after poking around I then realised a small pea sized lump on the outer part of my collar bone but underneath. 
     

    I read about lymph nodes too but my lump wasn't near them so I was so confused and started to worry! So glad I've seen this post! 

Children
  •  

    Your experience is very similar to mine. I had my vaccine on the 25th March and 4 days later I felt a tenderness near my collarbone on the same side as the jab. It was then that I noticed an enlarged lymph node above the collarbone. That was exactly a week ago that I discovered  it. I can still feel it but it has definitely reduced in size quite a bit over the course of a week.  Several articles said it can last for several weeks.

    From what I've read online quite a few people have been experiencing this on their collarbones and in the armpit area (as a friend of mine did) on the same side as the covid jab. There has been a lot of reporting of it in the U.S.

    I also am still getting the odd twinge at the jab site too although not as bad as when I first had the vaccine. 

    I plan to report it to the Yellow Card scheme for any side effects.

     

  • I know this thread is a little old but I was just wondering if your soreness has calmed down now?

    I had my moderna covid jab 8 days ago. On Thursday I noticed a small lump above my collarbone which I assume is an inflamed lymph node but yesterday the part where my shoulder joins my arm became incredibly tender and I too noticed a small bump underneath my collarbone area. Did yours go away? 

  • Hey, welcome to the club. I haven't seen a post on here yet where someone says their node has completely gone. We all seem do be ranging from a week to a couple of months.

    Personally mine has been just over two weeks and it seems to be shrinking very slowly overall. 

    Ours are all above collar bone as far as I can tell but there are lymph nodes all over your body. If you are at all concerned it might be worth speaking to your doctor for some reassurance.

  • I'm 3 weeks in & seeing VERY slow shrinkage. I could definietly see it 2 weeks back as a small bump in skin an inch above collarbone but can only feel it now.

    Definietly movable - feels like a very small butter bean. Feels different depending how I touch it, so staying clear of it.

    But 3 weeks in seems to be sinking into the flesh around it a bit more & just going on gut feel it is shrinking. I have a non urgent ultrasound on the way but god knows when that'll be & hopefully I won't need it.

    @ Mzee - Moderna here as well. Had a really stiff shoulder & only felt lump when I was massaging area.

  • Hello, I am same!

    I used to be able to see it in the mirror when moving my shoulders back but now I can't.  I am also having to sometimes search for it too which is a good sign.

    I also think that not touching it makes a real difference and I know it is hard to leave alone especially when you want to check and see if it has gone down but it is a vicious circle.

    I have an ultrasound booked for 01 June

    x

  • Sorry for the long post.

    Had GP appointment 1/4/21 because of a lump I found above my collar bone (after having 2nd pfizer vac). They said its a swollen right supraclavicular lymph node but wanted me to try antibiotics and have bloods done before sending me for a scan. Got home and rang for bloods appointment but couldn't get me in for 2 weeks. then had a voicemail from gp asking me to go back that day for further examination with her and another gp. They did bloods, breast, tummy and rectal examination. They referred me for a chest xray and ultra sound scan. 

    Bloods came back clear apart from a folate deficiency for which I'm now taking folic acid. I had ultra sound which confirmed a lymph node, chest xray was clear. GP then referred me to ENT, had telephone consultation but he didn't feel the need for head and neck CT.

    My GP is concerned because of bone and muscle pain and 2 ½ stone weight loss in 12 months without trying. 

    GP has done further blood tests and has referred me to something called ACE pathway (The ACE pathway is in place for those who require urgent investigations of non-specific or vague symptoms because of the possibility of cancer or another serious illness. All the investigations are carried out as soon as possible without the need for admission to hospital) 

    I've seen my most recent blood tests online and can see that one test - Serum total 25-hydroxy vitamin D level is very low.  I have a follow up appointment with GP on Thursday so may start treatment for Vit D deficiency, then to await the ACE referral.

    I am still hopeful that it is a result of vaccine and the other things are just incidental findings but I have to say my GP has been excellent.

    P.S lump is still there but has definitely halved in size.

    Fingers crossed for everyone. 

  • Dear Melaniejo

    Just read your post. Hope all is going OK for you. This group has been very reassuring regarding our swollen lymph nodes following the covid jabs. Mine took 5 weeks to resolve and was very worrying.

    I hope you get on OK with your tests and will keep my fingers crossed for you that all is OK. As someone who suffers from terrible health anxiety I can really relate to what you are going through. Please keep us informed of how you get on.

    Best regards 

    Lindax

     

  • Hi all thought I would post a little update as I saw my GP yesterday. I can only feel it at certain times and typically the GP couldn't feel it. He examined my neck and both sides of collarbone amd said it's promising if he can't feel it. He thinks it a sign of it going down but has ordered blood tests anyway which I can't have for 2 weeks. My anxiety is awful as my mother in law in hospital really unwell with pancreatic cancer.  Walking back to the car I could feel the lymph node again. ‍♀️

  • Mine pops up if I raise my arm in a certain way. It's hiding behind the collarbone (and there's a smaller one behind the other collarbone). I was given the all clear after blood test and ultrasound scan. So please try not to worry unless the swollen node puts on a growth spurt....Mine is/are still the same size as before (small ballbearing or small dried bean size) after 8 weeks so far.

    Just had my second jab this morning. Will see if it happens again....

  • Hi Linda,

    Did yours continually shrink over the 5 weeks or did it stay the same then suddenly resolve itself in the last week or days?

    Thanks