Unexplained lump above collarbone

Hi everyone, 

 

I hope this post is okay, I'm not sure what's wrong with me and I don't want to offend those who have been diagnosed but I'm so anxious right now. I'm 20 years old, and I'm at university right now. About 4.5 weeks ago, I found a small lump above my collarbone on the left side. It feels about 1cm and is oval shaped, smooth and I can move it around easily. I noticed it the day after I had a flu jab so just thought it as an effect of that. It hadn't gone away in a week so I phoned the GP and they agreed to phone in three weeks. Three weeks later and it was still there, they ordered some bloods which all came back clear. They've referred me for an ultrasound after examining it - he said it felt like a lymph node and that from feeling it there shouldn't be anything to worry about. I just keep jumping to the worst conclusions and thinking that I have lymphoma, because I've had really bad fatigue for the past few months. I had glandular fever in summer 2019, and I'm so scared that it could have caused lymphoma. So sorry for the ramble, I just don't know what else it could be apart from that. 

  • Sorry if I missed the original post on this, but are you saying you still have nodes 6 weeks after covid vaccine? xx

  • Hi

    I'm another one with a swollen node above my collarbone which I first noticed 4 days after my AZ jab on the same side. It's still swollen 7 weeks later but definitely moveable and maybe a little smaller ( or is that wishful thinking?). I haven't contacted my gp yet but will if it doesn't resolve soon. I also read that some nodes take ages to go down. There seem to be lots of us in the same boat - just hoping it is vaccine related. There are also some similar posts I read on a more recent thread relating the same side effect. As you say positive vibes to everyone.

    Jx

     

     

  • Interesting. Have you reported it on the yellow card website? I reported mine today, as it is for suspected side-effects, so you don't have to know that it was the vaccine.....

  • Jal55 I'm such an anxious person, I just want to know the blood test results now, I admire your calmness and patience! 

  • Meg357 you are the sensible one - I get equally anxious but tend to put off doing anything about it!!

    Hope your blood test results come quickly - waiting for results is so stressful. 
     

    Take care 

    Jx

     

     

     

  • Had GP appointment 1/4/21 because of a lump I found above my collar bone (day after 2nd pfzier vaccine). They said its a swollen right sided supraclavicular lymph node but wanted me to try antibiotics and have bloods done before sending me for a scan. Got home and rang for bloods appointment but couldn't get me in for 2 weeks. then had a voicemail from gp asking me to go back for further examination with her and another gp. They did bloods, breast, tummy and rectal examination and they referring me for a chest xray and ultra sound scans.  My bloods have come back normal apart from a folate deficiency for which I am now taking folic acid. I received a letter yesterday to make an appointment for an ultrasound which I am hoping will be this coming week. I have lost 2 stone in 12 month which I had put down to less meals out, less alcohol and regular meal times. I have now started to get mild pain in what I think might be chest wall pain, which also goes through to my shoulder and mild ache in my neck.

     

    I dont know if this is just paranoia and anxiety, but I am really worried. I haven't spoken to my other half about the symptoms because as a nurse is also quite worried for me. 

  • Hi

    It is really worrying isn't it - we all seem to be in the same boat. Some gps seem to advocate a wait and see approach whereas others are more proactive. Did your gp suggest it could be related to the vaccine? It seems coincidental that most of the people who have posted have had a vaccine recently and on the same side as the swollen node. 
    Hope you get your ultrasound quickly. The anxiety is horrible though.

    Jx

  • Hi Melanijo26,

    I had a look at the reported cases of lymphadenopathy on the yellow card system processed so far, and it's around 2.5 thousand for the Oxford AstraZeneca vaccine (which I had), and over 3,000 for the Pfizer vaccine, and they are probably still looking at reports coming in. Supraclavicular lymph node swelling is reported from the US as well as armpit lymph node swelling. It does seem to be happening to us after the vaccine, so fingers tightly crossed that you and the rest of us are all OK and just having a mild reaction. Your blood test results sound reassuring. Hope the other pain is a red herring.
    Doesn't work the whole time, but I've found it's best to try and keep busy/active – I like the outdoors and nature, cooking, trying to do a crossword, playing a game with someone, or reading a book – concentrate on what's going on around you rather than inside you, breathe slowly, do some stretches and go out walking in the sunshine. This passes the time and helps you feel less panicky. All the best.

     

     

  • That sounds like sensible advice. I was feeling really wobbly this morning, went for a run and now doing battle with a fig tree that I am trying to repot. It helped no end. I looked at the yellow card reports too - and that must be a fraction of the cases! 
     Take care

    Jx

  • Wow - quite surprised (and reassured) to see how many others have had a similar issue.

    I'm a 27 year old student doctor and am currently in remission from advanced testicular cancer following a good response to chemotherapy last year.

     

    Last week I noticed a painless smooth, mobile, rubbery left supraclavicular mass similar to the ones you have all described. I immediately thought the worst (as I had a similar lump when I was first diagnosed and know all too well the clinical significance of a raised left supraclavicular node). Have spent the past few days tearing my hair out and it was only last night that the thought occured to me that this could be a result of my 2nd AZ vaccine 2 weeks ago.

    I am now feeling fairly reassured having read a number of the case reports in the medical literature and on here. I have nonetheless been submitted for an ultrasound by my team given my history.

    Hoping all of you are feeling similarly reasurred - but enourage all of you to get booked in for ultrasound scans via your GP as you can never be too careful! 

    Kindest

    Iowan