Hello

i have this exact same thing came up 29th October day after flu jab and it's still there!!!!!

is yours?

Many Thanks

Hi, 

Tagging onto this coversation, almost releived to hear other people going through the same thing. 

I had my covid vaccine (nhs radiographer) but a week or so after I found a small lump above my collarbone, it wss painless and I only found it because I poke around alot (the job makes me worry more than it should). Anyway i spoke to my gp and she called me in and had a feel and did a full blood count, testing inflammatory markers and all sorts. I even asked a consultant I work with to check it. ANYWAY  All came back perfectly normal, which is supposed to be a releif but its still there and getting alot of random bursts of  pain in my neck and collarbone. 

The dreaded C word wont leave my brain, the doctor is worried at all. Is it normal for to have lumps? Has anyone had lumps that havent turned out to be ahnormal. 

I work in cancer care so I know lumps and bumps arent normal... 

Thank you to anyone who reads this. 

Xxx

Yes it is on my left side and I had my left arm jabbed both times. Fingers crossed this is all it is. It is horrible to think I might be back in the same place I was in 13 years ago. Please get yours checked out, it reducing in size sounds good though x

Hello again,

Sorry for the delayed reply. I have been taking Anastrozole since treatment, too. For a while my joints were really stiff, so that I found it hard to walk after sitting in a car, for instance, and had to start off hobbling to get them warmed up, and my fingeres were stiff. That wore off. I have had a few problems sleeping and I still get muscle aches that I have been blaming on other things, and hot flushes, but otherwise the Anastrozole doesn't seem to have had bad effects. I walk the dog in the countryside every day, which is my version of running, and sometimes have a game of tennis. 
I'm glad I'm not the only one who really panicked when they found the node. Today the node is still there and the glands under my chin are slightly sore. Might be unconnected? 

So glad to hear the node is reducing in size. That sounds really promising. 

Hello,

This is my first post, I've been trying to find some answers on this area so am a bit relieved to find this thread. I had my Pfizer vaccine 4 weeks ago and I too have a lump just above the collar bone, the doctor is sending me for blood tests to check for lymphoma which has sent me into a bit of worry! I have also been warm overnight, I don't know if it qualifies as night sweats but I've been sweating at night. The weather is warmer though so I don't know if I'm just too warm, but this combined with the lump is where the worry is. I'm almost 39, and had been wondering if I was perimenopausal but it feels a tad early. 
 

I am hoping that the swollen lymph node above my collar bone is vaccine related, I'm seeing things about six weeks to go down etc now, so perhaps the doctor has jumped the gun a little? I have 3 children, 2 of which are under 5, so I'm feeling quite anxious. I won't know for another week! 
 

Sending positive vibes to everyone's way here, I wonder if there will be a link to the vaccine for this sort of thing. 
 

edited to add - it's my left side, the same side my as second vaccine four weeks ago 

Sorry if I missed the original post on this, but are you saying you still have nodes 6 weeks after covid vaccine? xx

Hi

I'm another one with a swollen node above my collarbone which I first noticed 4 days after my AZ jab on the same side. It's still swollen 7 weeks later but definitely moveable and maybe a little smaller ( or is that wishful thinking?). I haven't contacted my gp yet but will if it doesn't resolve soon. I also read that some nodes take ages to go down. There seem to be lots of us in the same boat - just hoping it is vaccine related. There are also some similar posts I read on a more recent thread relating the same side effect. As you say positive vibes to everyone.

Jx

Interesting. Have you reported it on the yellow card website? I reported mine today, as it is for suspected side-effects, so you don't have to know that it was the vaccine.....

Jal55 I'm such an anxious person, I just want to know the blood test results now, I admire your calmness and patience! 

Meg357 you are the sensible one - I get equally anxious but tend to put off doing anything about it!!

Hope your blood test results come quickly - waiting for results is so stressful. 
 

Take care 

Jx

Had GP appointment 1/4/21 because of a lump I found above my collar bone (day after 2nd pfzier vaccine). They said its a swollen right sided supraclavicular lymph node but wanted me to try antibiotics and have bloods done before sending me for a scan. Got home and rang for bloods appointment but couldn't get me in for 2 weeks. then had a voicemail from gp asking me to go back for further examination with her and another gp. They did bloods, breast, tummy and rectal examination and they referring me for a chest xray and ultra sound scans.  My bloods have come back normal apart from a folate deficiency for which I am now taking folic acid. I received a letter yesterday to make an appointment for an ultrasound which I am hoping will be this coming week. I have lost 2 stone in 12 month which I had put down to less meals out, less alcohol and regular meal times. I have now started to get mild pain in what I think might be chest wall pain, which also goes through to my shoulder and mild ache in my neck.

I dont know if this is just paranoia and anxiety, but I am really worried. I haven't spoken to my other half about the symptoms because as a nurse is also quite worried for me. 

Had GP appointment 1/4/21 because of a lump I found above my collar bone (day after 2nd pfzier vaccine). They said its a swollen right sided supraclavicular lymph node but wanted me to try antibiotics and have bloods done before sending me for a scan. Got home and rang for bloods appointment but couldn't get me in for 2 weeks. then had a voicemail from gp asking me to go back for further examination with her and another gp. They did bloods, breast, tummy and rectal examination and they referring me for a chest xray and ultra sound scans.  My bloods have come back normal apart from a folate deficiency for which I am now taking folic acid. I received a letter yesterday to make an appointment for an ultrasound which I am hoping will be this coming week. I have lost 2 stone in 12 month which I had put down to less meals out, less alcohol and regular meal times. I have now started to get mild pain in what I think might be chest wall pain, which also goes through to my shoulder and mild ache in my neck.

I dont know if this is just paranoia and anxiety, but I am really worried. I haven't spoken to my other half about the symptoms because as a nurse is also quite worried for me. 

Hi

It is really worrying isn't it - we all seem to be in the same boat. Some gps seem to advocate a wait and see approach whereas others are more proactive. Did your gp suggest it could be related to the vaccine? It seems coincidental that most of the people who have posted have had a vaccine recently and on the same side as the swollen node. 
Hope you get your ultrasound quickly. The anxiety is horrible though.

Jx

Hi Melanijo26,

I had a look at the reported cases of lymphadenopathy on the yellow card system processed so far, and it's around 2.5 thousand for the Oxford AstraZeneca vaccine (which I had), and over 3,000 for the Pfizer vaccine, and they are probably still looking at reports coming in. Supraclavicular lymph node swelling is reported from the US as well as armpit lymph node swelling. It does seem to be happening to us after the vaccine, so fingers tightly crossed that you and the rest of us are all OK and just having a mild reaction. Your blood test results sound reassuring. Hope the other pain is a red herring.
Doesn't work the whole time, but I've found it's best to try and keep busy/active – I like the outdoors and nature, cooking, trying to do a crossword, playing a game with someone, or reading a book – concentrate on what's going on around you rather than inside you, breathe slowly, do some stretches and go out walking in the sunshine. This passes the time and helps you feel less panicky. All the best.

 

That sounds like sensible advice. I was feeling really wobbly this morning, went for a run and now doing battle with a fig tree that I am trying to repot. It helped no end. I looked at the yellow card reports too - and that must be a fraction of the cases! 
 Take care

Jx

An update from me:
I contacted, and had a phone call back from, my local GP surgery just over 4 weeks since the vaccine, 3 weeks since I saw the first GP as advised, and another GP saw me later that same day.
He said he is 90% sure that the lymph node is benign, because of the feel of it and because is so movable, but ... (I may be the first one with this symptom here), he is referring me for a fast track ultrasound on both collarbones, as there is a smaller swollen lymph node on the other side, too. That was on Monday and I haven't been given the ultrasound appointment so far. Not sure what to think about this, but the 90% comment is, at least, reassuring. I hope everyone else is making good progress and getting the all clear.

PS I had a blood test too. No result so far, which must be good news. I could phone the surgery later today to make sure it's fine. I'm glad that other people's blood tests have been OK.

Update of the update: my blood test results are normal, which is good. Hopefully we are all having similar reassuring results. 

Great news! 
 

Jx

Thanks!

Next: ultrasound?

I was so glad to read that your swollen node is finally getting smaller after so many weeks .....

x

Hi

I have experienced a swollen lymph node in collarbone region on side of vaccine it's been there nearly 2 weeks and been referred by GP for an ultrasound she said not concerned as it's mobile and smooth and it's probably a reactive node, I was ok with this but now I can feel one on the other side of the collarbone so now I'm really worried again it feels smooth and mobile  it not sure why it's come up on opposite side 

Hi

The GP said the same to me. I had thought there might be a smaller swollen lymph node on the other side (noticed just over a week ago) and the GP found it too and has referred me for an ultrasound on both sides. However, that was last Monday (a week ago) and I haven't heard anything about an ultrasound appointment yet, even though it is fast tracked. It's now just over 5 weeks since the vaccination for me. 
I'm not sure about the lymph node coming up on the other side either, but the GP didn't appear very concerned in my case. Perhaps they could ultrasound both sides for you, if you ask. Hope this helps.