Concerns about bladder cancer.

Hi everyone, 

I hope this is ok to post. I'm hoping to find some advice.

Around 8/9 weeks ago I began having an urgency to go to the toilet, I couldn't hold it at all, and I had to urinate very frequently. (I'm 28 years old).

I didn't have any pain going to the toilet but would often feel like I hadn't urinated it all out. Around 2 weeks after this I had pain in my upper back, it felt like it shook my whole ribcage. 

I booked a doctors appointment, and did a urine sample and was told I had an extremely large amount of microscopic blood in my urine but no infection. I explained about the back pain and was told by the doctors where I was describing the pain was not near my kidneys at all, however she would put it down to a kidney stone and I was sent for a CT Scan (without dye). 

I went for the scan and was told I had the all clear but symptoms once again kept reoccurring, except I no longer had any upper back pain. I have since had antibiotics in the hope it could of been an infection not picked up, however once again upon repeating my urine sample, still lots of blood and no infection. However my frequency has eased but I still have the urgency to go to the toilet, and an agonising pain in my right hip/lower back. 

Has anyone on here who has been diagnosed with bladder cancer only ever had microscopic blood in there urine? 

My doctors has told me not to show any concern, however I'm a little worries why there is still so much microscopic blood in my urine? 

 

Thanks for reading.  Lucie 

 

Update ****

I went for a Cytoscopy on Monday, where a growth/mass was detected in my bladder which has been photographed. I was told to go away and someone would be in touch, so I'm waiting to hear from a doctor as to what this might be. 

Parents
  • Hello Lucie8

    I'm sorry to hear about the ongoing health problems that you've had recently. It's understandable that you've feeling a bit worried about things. 
    I noticed that one of our nurses replied to a very similar post earlier today and said this in her response 

    "There are guidelines written by BAUS ( The British Association of Urological Surgeons) when blood is is discovered in urine. Have a look at them here".  

    You might find it useful to have a look through the link that the nurses shared but you're also most welcome to give them a call. I'm sure they will be able to offer you some advice and support. 

    If you'd like to chat to them they're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    I do hope that things settle and improve for you soon. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

Reply
  • Hello Lucie8

    I'm sorry to hear about the ongoing health problems that you've had recently. It's understandable that you've feeling a bit worried about things. 
    I noticed that one of our nurses replied to a very similar post earlier today and said this in her response 

    "There are guidelines written by BAUS ( The British Association of Urological Surgeons) when blood is is discovered in urine. Have a look at them here".  

    You might find it useful to have a look through the link that the nurses shared but you're also most welcome to give them a call. I'm sure they will be able to offer you some advice and support. 

    If you'd like to chat to them they're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    I do hope that things settle and improve for you soon. 

    Best wishes, 
    Jenn
    Cancer Chat moderator

Children