So sorry you've had to join our little chat room ... though it's amazing to have somewhere to talk about things that are on our mind ...
I think a lot depends on age with this ... but treatments have come on over the years ... so just know your not alone ... you'll always have a hand to hold along the way ... have you got a treatment plan in place yet .. l know it's a really scary time ... but try to take one day at a time ... and just sending a vertual hug to you ... Chrissie x
Hi, I have just joined here... my father was diagnosed this month with AML, his treatment is vidaza. What should I know apart of the vidaza leaflet? Which is not optimistic at all. Is anyone here who had this treatment and is alive more than... than it is mentioned everywhere?
My husband has AML given an estimation of 15 months. In patient for approx 5 months. Including ICU. Now home, on chemo approx in 3 weekly intervals. He is Writing a book which is keeping him busy (good, as not focusing on AML). Finding this conversation hard, when good hearted friends ask is he feeling better! obviously day by day.
I am type 1 diabetic for 50 yrs. We are both in our 70’s
I noticed you've tried to reach out to Paepi a couple of times but haven't had a reply. Unfortunately the last time this discussion was active was over 4 years ago so Paepi and the other members on this discussion may not be using the forum as much anymore, which may explain why you haven't heard back from anyone.
I'm very sorry to hear about your husband's prognosis. This must be so difficult, especially now you've found out that the chemo hasn't been working and he's in a lot of pain. If you haven't done so already, make sure his medical team are aware of the pain he's in so they can make this more manageable.
Hopefully some of our more active members will stop by soon to offer their support and advice but if you'd like to talk any of this through with one of our cancer nurses they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very insightful and will do all that they can to help.
We're here for you Silverbabel and sending you both all our strength and support at this very distressing time.
