Complex ovarian cyst

I've had an ultrasound which has picked up hundreds of fibroids and a complex cyst on my right ovary. My CA125 is 139.
Fast forward two weeks and I've seen a junior consultant, who wasn't concerned at all and basically told me there's nothing wrong with me, she would only be worried if I were 20 years older!! I'm 43..... she said they would monitor me every 3 months. Obviously I went out of the hospital in a daze feeling like I've wasted their time!!

 I was assigned a support worker from the gyny team at my local hospital once my doctor did a fast track referral and thank god she rang me!!

 The senior consultant requested an MRI which I have now had. My next appointment is next week. The waiting is affecting my every day routine and I can think of nothing but having cancer and leaving my 13 year old twins. I know it's not long to wait but I'm so scared. 

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  • Hey 

     

    I have a 4.4cm cyst on my right ovary. I was told after a few ultrasounds that my cyst looked complex. I spent days and night googling and worrying. I'm 38 years old and have two children. 
    My CA125 was also high and twice the results for this test came up increased. So 3 months later I get a call to say you have a MRI booked and some more bloods, to b told 2 weeks later that my cyst is a hemorrohaging cyst and my CA125 results have decreased. So my MRI found nothing sinister but I am due to have surgery to drain the cyst and remove endometriosis. 

  • Hi all, Read youre stories and for reassurance. 

    I do hope you are all well and hope I'm not intruding.

     

    My partner is 26 and has a 3cm complex ovarian cyst.

    She is rather petite and 5'3, Her stomach is very bloated and in constant pain daily and codeine that was prescribed along with anti sickness, Just helps when it kicks in.

     

    She is now in a lot more pain and I am worried sick and overthink it may get worse to the thing I really hope its not.

     

    She had a son at 20 with a C section and her mother had Breast Cancer and sadly passed at 46.

     

    I've read up so many articles and forums about it and just want advice and I'm terrified.

     

    She has gave me consent to talk about our personal lives on this so she can understand aswell.

    She is due another scan in a few weeks but we are phoning the NHS24 for advice tomorrow and probably going up to A&E.

    They said previously that they would only remove it if it was 5cm or bigger.

     

    She has an eating disorder which doesn't help and it shows her stomach bloated.

    I've also researched about Tumeric,Garlic extract and Vitiman D3 which all aid in shrinking and hopefully killing off the Cyst.

    Which she now takes daily with food.

     

    I really really really hope and pray its nothing serious as she is really young and also had a Child which put my mind at ease but then finding out it can be linked to Breast cancer in the family which she had (Her mother).

     

    Any advice or reassurance would be incredible and I can only apologise if I'm in the wrong for posting on here.

     

    I just want to speak with people who have this first hand to get more information as the doctors haven't really been helpful recently.

     

    Thank you for you're time and I hope you are all safe and well.

     

    Thank you 

  • Hi, I found out in January that i had a cyst on my right ovary which was roughly 8.8cm. I am only 24 so was very worried and concerned that having this cyst could affect my future. Fast forward a few months I was at the gynaecologist signing the consent form to remove the cyst, lockdown happened and I am still waiting for a removal. I have had to ring 111 a number of times , called the doctors etc and i am currently on co-codomal as the pain is unbearable but there is nothing i can do as they aren't doing any surgeries at the moment. I had another ultrasound to re-assure me the cyst was okay however it turns out is has grown now to 13cm. I have rung the hospital and they can't push it forward so it's just a waiting game.. i still have no date for surgery :( is anybody else in the same position as me??

     

    Thank you 

  • Hi I was wondering if you could let me know where your at now? I feel like I’m heading towards a similar situation to you, 2 weeks ago I finally got an ultrasound after 8 months of drs appointments and phone consultations and they’ve found a 13x9cm cyst. I’ve been told they’ve urgently referred me but over 2 weeks later I’ve heard nothing , I’m 19 and very petite frame so this cyst is buldging through my stomach and making me need to urinate all the time and causeing bowel problems. I’m wanting it removed asap but I’m not feeling confident it will be anytime soon. Just wondering if you’ve got anywhere yet? 

  • Hi, I have the exact same problems as you - making my belly swell (especially in the morning when my bladder is full), bowel problems (not as frequent), always needing a wee (actually had a few water infections and a kidney infection because of this). I finally got a date through for removal at the end of October but because of a rise in Covid infections this was cancelled less than 24 hours before (gutted is an understatement!!). I have today however received a phone call with another date for my operation so fingers crossed this one all goes through! I would say keep ringing your doctors (i was referred as a 2 week fast track in January to the hospital) so i've rung them a number of times the past few months for updates too but just be persistent with them!! It will eventually get done although it is a massive worry! 

  • Thanks for replying, its a nightmare isn’t it! I’ve spoken to the secretary of gynaecology and they’ve basically told me that their not doing any routine surgery and have knocked it down to non urgent. I think the only way I will get it removed is if it ruptures.  Shocking though isn’t it, I don’t think any treatment should be cancelled because of Covid.

  • Hi guys . I think I am also in the same boat.I have an 8cm complex cyst with septations solid components and vascular flow. Had scan on 13th March then covid hit all services. I received a call with results in July time with consultant and it was agreed that I would have it removed. I had preop 14 August and have heard nothing since as they are trying to cope with the backlog of patients . I am very worried and I am in a lot of pain most days. I have problems with bloating and pain in abdomen and legs as well as bowel problems. I have worked from home all lockdown and am at the point i can’t even sit down for long periods. I wake up in pain I’m exhausted most days. I take pain relief with co codomol but it’s not the best. My ca125 was normal so don’t think they’re as worried as me but I just don’t feel right. Everyone reassures me it’s nothing to worry about but living through it is very hard.. I wish you both well and hope you hear back soon x
  • Hi, sorry to hear you also have a cyst.. they are a lot more common then i originally thought which made me feel at ease! Fortunately, i have now had my cyst removed!! Private hospitals in my area are helping out the NHS so i had the luxury of a private hospital which was lovely and the nurses and doctors were all so caring. I have to admit, i wasn't expecting the experience to be what it was it was very overwhelming and more intense than i thought but i'm so glad it happened. It's now been 9 days since they removed the cyst (it ended up being over 15cm on my left ovary, even though every ultrasound thought it was on the right!). They couldn't do keyhole through my belly button as they said it was have just burst the cyst so i have 4 cuts, 1 above my belly button, 2 half way down either side and one 8cm line on my pant line. They left my ovary in however they aren't sure how functionable it will be! I'm slowly on the mend though and just so grateful i was able to get it removed!! Hope you all receive updates soon and good luck x

  • Thanks for getting in touch and great to hear you had your surgery and you was well cared for. Hope you take it easy sounds like you have been through a lot x

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