Complex ovarian cyst

I've had an ultrasound which has picked up hundreds of fibroids and a complex cyst on my right ovary. My CA125 is 139.
Fast forward two weeks and I've seen a junior consultant, who wasn't concerned at all and basically told me there's nothing wrong with me, she would only be worried if I were 20 years older!! I'm 43..... she said they would monitor me every 3 months. Obviously I went out of the hospital in a daze feeling like I've wasted their time!!

 I was assigned a support worker from the gyny team at my local hospital once my doctor did a fast track referral and thank god she rang me!!

 The senior consultant requested an MRI which I have now had. My next appointment is next week. The waiting is affecting my every day routine and I can think of nothing but having cancer and leaving my 13 year old twins. I know it's not long to wait but I'm so scared. 

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  • I had a dermoid cyst removed when I was 17 including Fallopian tube and ovary removed after 2 years of back and forwards to the gp

     I now have a multioccular lesion on my remaining ovary and I’m 44. The cyst is 4.1cnm and I’m struggling with incontinence everyday and weight gain and  waiting for apt 

    lets hope they can just remove the cyst and I can get back to the gym #reallysickofthisagain

  • Hiya

    I completely understand how you are feeling... 

    I have also recently had scan and mri done for ovarian cysts. So both my ovaries have cysts that have joined together (I don't know if that is common), The left cyst which is bigger has a nodule in it which could be possibly maligment, I am low risk as no history in family etc..  My right cyst there is blood in the fallopian tube, I don't know what this means.

    So because of nodule I have been referred to oncology, the consultant wants to remove it all.. Ovaries, tubes and hysterectomy just in case it is cancer.. Even though I'm low risk and the doctor agreed with it. 

    I don't want this, it seems unnecessary.  Has anyone been told same smiliar but opted just to remove what's effected?  Im only 43 and want to keep as much as poss.

    This is a complete shock

  • hi

    thats awful for you and I bet you are worried. I hope they don’t have to take everything away and sometimes they tell you worse scenario incase they have to. I would push them to leave everything and only take away the lumps. Best of luck x

  • Thank you for your response...  I was hoping to do as least as possible, so hopefully the doctors listens.  Its quite daunting and scary.  

    Love and light to you too, it sounds like you have been on quite a journey too. 

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