I had a dermoid cyst removed when I was 17 including Fallopian tube and ovary removed after 2 years of back and forwards to the gp

 I now have a multioccular lesion on my remaining ovary and I’m 44. The cyst is 4.1cnm and I’m struggling with incontinence everyday and weight gain and  waiting for apt 

lets hope they can just remove the cyst and I can get back to the gym #reallysickofthisagain

Hiya

I completely understand how you are feeling... 

I have also recently had scan and mri done for ovarian cysts. So both my ovaries have cysts that have joined together (I don't know if that is common), The left cyst which is bigger has a nodule in it which could be possibly maligment, I am low risk as no history in family etc..  My right cyst there is blood in the fallopian tube, I don't know what this means.

So because of nodule I have been referred to oncology, the consultant wants to remove it all.. Ovaries, tubes and hysterectomy just in case it is cancer.. Even though I'm low risk and the doctor agreed with it. 

I don't want this, it seems unnecessary.  Has anyone been told same smiliar but opted just to remove what's effected?  Im only 43 and want to keep as much as poss.

This is a complete shock

Hiya

I completely understand how you are feeling... 

I have also recently had scan and mri done for ovarian cysts. So both my ovaries have cysts that have joined together (I don't know if that is common), The left cyst which is bigger has a nodule in it which could be possibly maligment, I am low risk as no history in family etc..  My right cyst there is blood in the fallopian tube, I don't know what this means.

So because of nodule I have been referred to oncology, the consultant wants to remove it all.. Ovaries, tubes and hysterectomy just in case it is cancer.. Even though I'm low risk and the doctor agreed with it. 

I don't want this, it seems unnecessary.  Has anyone been told same smiliar but opted just to remove what's effected?  Im only 43 and want to keep as much as poss.

This is a complete shock

hi

thats awful for you and I bet you are worried. I hope they don’t have to take everything away and sometimes they tell you worse scenario incase they have to. I would push them to leave everything and only take away the lumps. Best of luck x

Thank you for your response...  I was hoping to do as least as possible, so hopefully the doctors listens.  Its quite daunting and scary.  

Love and light to you too, it sounds like you have been on quite a journey too. 

Hi,

i have a 10cm complex cyst on my ovary and they want to remove it along with both my ovaries, tubes and an abdominal hysterectomy.  I do not have any pain and i only found out due to bleeding in between my periods once.  I am going to pay for a second opionion and ask for a hystroscopy to be done before i make my decision.  I really only want the cyst removed and the ovary it is attached to, I dont know why they have to remove everything else, however they did say it is my decision.  The tumour markers ca125 came back at 9 & 8 so that was good and the consultatants at the MDT meeting are saying it is unlikely to be malignant.  It is a very hard decision to make, however they cant be 100% sure it is benign unless they remove it and test it!  I really feel for you all it is awful to go through this. I am 49yrs old and i dont want to go through the menapause early.  i will let you all know what the private consultant says.

Hello everyone,

I am 49, and thought I may have been going through the change as I missed the odd period, then had a really heavy period, I have never had one that heavy since eating them as a teenager. 
I have always since about 32 had bloating and I had really bad pain ( I thought I was having a miscarriage or ectopic)  which way back I thought was due to a coil I had fitted. The doctor said it was IBS. 
Around a month ago I had test to see if I was on the menapause but they came back that I am not. 
I was referred for a scan, which showed I had a 7.5 cm cysts. On my right ovary. I have had no pain whatsoever. The technician fast tracked the info back to my GP, who referred me for an MRI scan which I had that this morning, the consultant who referred me also took bloods for ca125, anaemia, kidney, and liver. 
I haven't had the results back from my bloods, I didn't want to call them.  
How long generally do the results of the MRI take to come back? 
It's from only reading this thread that I have noticed that everyone's periods have altered, and mostly you have all had pain. Thankfully I haven't suffered with that but once you are aware that something exists it's as if your brain says it's there. 
my thoughts are with you all going through the same. Stay strong x
Tina

Hi I'm 33 and have a 35 cm cyst and have been told I have to have a full hysterectomy because they can't be sure if it contains cancerous cells and rather than waiting to do a biopsy and then having to go back under the knife they suggested that. I'm completely fine with that as I wouldn't want to risk going through this again or even worse x

I would rather they take mine all away too.

My complex cyst is 4cm or 4.5cm and they still  have my on the urgent list for surgery yet nothing.  Its been 2 years now.  Been to a&e twice.  Been admitted for severe pains twice also.