Pamela

this is obviously a worrying time for you and the not knowing and testing process can sometimes be unbearable.

the body produces lumps and bumps for no apparent reason sometime and although I am now cancer free, underneath I am still a normal person who still gets lumps and bumps.

just watch Dr Pimple Popper.....amazing but slightly disturbing woman!

however, you are now on a treatment path, but it a tad difficult in these conditions.

my advice is just to keep yourself busy and I guess being a single mum, there is not a time when you are not.

keep chatting on here, we have all been through testing and beyond, although we are not medically trained, so can't satisfy your desire for an answer, but we can help you get there.

hang in there, there is a brilliant process working in the background, even in these different times.

so how are you doing today?

vatch

Thanks for replying Vatch, Im turned into a cleaning demon, as its easier to distract myself with practical things, so one advantage will be a cleaner house.

Daytime is not so bad, the worse is during the night, I tend to have a couple of hours sleep then Im awake with my thoughts going round and round, tend to fall asleep again round about 5 then my daughter comes in and bounces on the bed around 6.30 lol.  Im desperately trying not to be such a grump with the kids, some days are better than others.

I guess I was disheartened by the GP saying he needed to do the referral but it likely couldnt be done, if I hear nothing by Monday I may ring the hospital directly to ask if this is truly the case.

Thanks again

Pamela

That sounds like really good news, the ENT guys see this all the time so I would trust their judgement.  MRI will obviously tell if there is anything deeper that they cant see, but if your lymph nodes are normal that is a really good sign.  MRI is ok, this was the 5th one ive had, I have neuro problems too, normally I fall asleep but his time I had just had the news from radiology so was a bit jumpy, but the procedure itself is fine, little bit claustrphobic but just pick some good music then let the tic tocs do their thing.

I ended up in A&E yesterrday or coronary care unit, I called my GP to ask for something to help me sleep and told her I had terrible heartburn which was coming in waves for 3 days, they had already prescribed me omeprazole which I hadnt taken, I wanted to ask if it was ok to take, she ended up sending an ambulance, saying I could be having a heart attack, if I wasnt panicking before, I certainly was after that, paramedics said I was fine but said my GP had insisted on me going to hospital, the cardiologist spoke to me for 5 mins ran an ecg and immediately sent me home, saying im not surprised you are stressed and the sweating is associated with the lymph node, he was furious that the GP had sent me, so I still have nothing to help me sleep. Im now majorly worried, appointment tomorrow to hopefully find out results and where we go from here.  Im absolutely convinced it has spread and just want to get started before its too late, sorry I know that sounds dramatic, but yesterday was just the tipping point.

Let me know how the MRI goes x

I'm sorry you had to go through all of that yesterday ... have they given you any indication of what might be wrong? My ent dr told me that there's a lot of reasons lymph nodes enlarge ...and also as I was sweating a lot too he said that would be anxiety . Wishing you all the best and more for tomorrow , let us know how you get on , always here for a chat if you need it xxx

They said most likely tonsil cancer due to the mutant thing but at the moment couldnt rule out lymphoma, so need to wait for the histology results.  They could tell from the ultrasound of the lymph node that it was sinister, so then need to find the source, fingers crossed for tomorrow x

I have to say it was radiology that told me this, ENT havent commented as yet, as they wouldnt till histology back. (I got the impression they were not too happy about them telling me this)

Gosh I didn't even think that they were allowed to tell you anything until a consultant had looked at the report . Was that straight after you had had it done? No wonder you have felt so anxious . Will keep everything crossed for you tomorrow and hope for some positive news xxx

Hey Winnie! Thanks for checking in! 
 

I have my MRI scan tomorrow so that's a positive for me however I broke down yesterday as I found a lymph node about the same size as mine on my collarbone on my 17 month old sons collarbone but the otherwise and I'm freaking out! Booked an appointment with the doctor who sees me but he's no in till next Friday but I guess that gives me two weeks to see if it goes down which they usually ask you to do anyways but I'm super sad! How are you getting on? X

I'm sorry to hear about your son , hopefully it will all gone down by the time you see the dr. I'm ok thanks , still worrying . I have an mri scan this coming Saturday with contrast on my neck . I updated above about panicking and ending up in A&E last Friday  . Just trying to stay distracted until i know what's going on. 
Let us know how you get on tomorrow with your mri scan , wishing and hoping for all the best xx

It was the radiology consultant, she would have been the one reporting on it, but ENT were not happy, but at least Im prepared and its not going to be a complete shock.  And if it turns out to be something benign, even happier x

Best of luck Becks, hope it goes well.  Im sure little man will be ok, kids are so resilient, does mean lots of extra mummy hugs though xx

Oh bless you it's so scary isn't it! 
 

Saturday is coming! Hopefully we will both get answers soon! My ent consultant although he's actually maxiofacial but specialises in head and neck cancers he gave me reflux medicine I'm waiting on to try whilst he waits for my mri report, not sure if it's of just my neck as I've said I have collarbone and armpit lymph nodes too! I think if anything they feel a tad smaller but then I think they are big again haha! 
 

such a scary time! 
 

thank you! Let me know how you get on Saturday xx

Oh bless you it's so scary isn't it! 
 

Saturday is coming! Hopefully we will both get answers soon! My ent consultant although he's actually maxiofacial but specialises in head and neck cancers he gave me reflux medicine I'm waiting on to try whilst he waits for my mri report, not sure if it's of just my neck as I've said I have collarbone and armpit lymph nodes too! I think if anything they feel a tad smaller but then I think they are big again haha! 
 

such a scary time! 
 

thank you! Let me know how you get on Saturday xx