Lump on neck - I hope my story helps others

Hi there - here is 'my story' which I thought may help others.  This site has given me much comfort at the beginning of my journey with a 'cause for concern' lump.  I will soon know the definite outcome and wanted to share my hopes and fears here in the hope that it may help others.  Albeit a short journey - so far - compared to many on here, I feel others in a similar position to mine will draw comfort.  About 6 weeks ago I noticed a lump on my neck.  Not painful at all but certainly noticeable.  An appointment was made with the GP the next day.  A week's course of Antibiotics was given in case it was an infection.  The antibiotics made no difference.  A scan was then arranged.  The morning after the scan I received a phone-call from the GP saying 'cause for concern..  An appt was made at the ENT clinic.  The wait until then - well, my family and I were beside ourselves with worry.  The ENT specialist after doing all the necessary examinations ENT entails assured me I did not have cancer and what I had was most probably a blocked saliva gland.  He arranged another scan, plus biopsy.  This took place last week.  This time the scan was much more extensive and after it was done the biopsy was then done.  I was told by that particular doctor that I had a '50/50 chance of it being cancer'.  The result will be back in 'a week-10 days'.  It is the week-end now and yes, I am anxious, but I am focusing on what the ENT specialist said in the first instance.  I hope my story helps.UPDATE:  A few days aftet I posted this I had a phone call from the Doctor who did the ENT examination.  He said the scan plus biopsy I had, did show a blocked salivary gland but ALSO THAT I HAD CANCEROUS CELLS IN TWO LYMPH NODES.  TO SAY I AM GUTTED IS AN UNDERSTATEMENT AFTER BEING TOLD BY HIM INITIALLY I DIDN'T HAVE CANCER.  i now await to find out what is next. I will post as and when.

  • Hi Heddybell, 

    Thanks for sharing your story here. Hopefully it will help someone who is in the same position as you at some point in the future. 

    I know that you are having lots of support from other forum members to cope with this period of waiting. Keep taking it one day at a time Heddybells! :) 

    best wishes, 
    Jenn
    Cancer Chat moderator

  • Thank you Jenn.  However, I have had to update my story with not such a positive ending.  Yes - lots of support - the site has been so so helpful.

  • Hi Heddubell

    thus isnHazel I am 10 month post radiotherapy for tonsil cancer alsomdound in lump,in neck arrest a. Don’t getbdown keep,off de google please there’s a few if us in here who have been down your road. I have a blog www.radioactiveraz.wordpress.com when yiu feel like reading ut guve my version of events W from diagnosis to present day. Remember we are all different but baby steps will get you there plus positive mental attitude any questions shout out my blog has links to others as well when yiu have more info please uodate

     

     

    good luck

    Hazel x

  • Dear Hazel

    Thank you very much for you message.  I greatly appreciate this.  I will most cetanly look at your blog today.  I will also update as soon as I have any more info.  I am waiting for a letter today - supposedly - for another appointment so hope to find out more then.  Have I said I am scared?  I am terrified to find out what kind of cancer I have and how far advanced it is.  But you will know I am scared Hazel - for you too have 'been there' hence you are on this site.  I don't know what I would have done without this site this past week or so.

     

    Heddybell x

  • YHi Heddybelle

    please don’t be scared it was a tear ago on the 26 June since i got my confirmed staging T2N2NM which was t for tumour 2-4 cams 2 lymph nodes I only felt one but by time if last scan  prior to treatment had changed to several poorly differentiation ones to which I said ok tell me in English please I had Larry the big one. Junior behind it I couldn’t feel 2 more with microscopic bits of dead cells and one near top of spine at back of neck which couldn’t be operated on or revphrased  they didnt want to operate which was fine by me. I had every faith in my oncologist when he greeted me with hello I am Dr .... and I am looking to cure you nit justvtreat you thatbwas fine by me I never doubted him. 

    The nm stands for no metastasis ie no live cells anywhere else in my body  I was also h p v 16+ more of that later  

    just deep breath and try not to  imagine the worst look at me here 10 month post radiotherapy in Spain at our rental apartment ok this time last year wasn’t sure  if. I would see Xmas but natural thoughts so you aren’t alone . Think of me getting in my bike shortly to bike out for breakfast ok might not manage to eat all of it but each week things do improve. 

    Yes the site is very food , also look at Ian’s blog on my blog there’s a link he also has a posting on here under Anchor 1707 Living with cancer sub heading Radiotherapy For Throat Cancer , it’s had ivee a 1000 postings and we are a small but tight band who also have a laugh coz otherwise we would cry.

    please please keep off google no matter how tempting and tell famiky n friends to do the same direct them in here to to blog but as me Oncologist said even he could go on google and diagnose himself dead within 5 mins  

    keep in touch if u want to send friend request to chat private like feel free 

    Hazel x

     

  • Dear Hazel - thank you for taking the time to message me.  I am going to send you a friend request.  Thank you x

  • Hi Heather how are things with you ?

    hazel x

  • Hey I'm going thro the same thing at the mo. I have ent next week. I read your story and it really connected to me and i feel how bad it must have been for u to be given all clear then u get the phone call. I followed your posts (im not a stalker) and im just genuinely interested in how ur treatment went as I think I will get lymphoma diagnosis on Tuesday. Everything is up in the air as we are moving to a bigger house and I have a job interview. Next week and I don't know how to react to it all. Your story really touched me and I just want to know U r ok now xxx